Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 601
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by Celia on March 30, 2014 at 3:55am

Rita - what is it called ?  Anybody else recommend one ?

Comment by Rita - Canada on March 29, 2014 at 11:25pm
I do not have an antibiotic history and shunned them for most of my life but tried a course of doxyclycine for my FFA re my derm and I honestly am not sure if it helped though the shedding seemed to cease for the most part. Through the time i took the med, i always took an probiotic. My naturpath said to take a quality brand which is refrigerated and contains multiple strains and the more,the better. I have recently decided to take 1 per day regardless of whether i am on this med.
Comment by Anne Louise on March 29, 2014 at 8:47pm
I have been reading a lot the past few days since my conference and it seems to me out gut is the cause of our problems but also can be the solution. So much of our immunity comes from our gut. Antibiotics wipe out the good bacteria that are essential in maintaining a healthy digestive tract. When it becomes too permeable, bad stuff can get into the bloodstream...the result of a leaky gut. I don't know enough about probiotics to recommend a brand or amount yet, but I'm sure someone out there does. I am fascinated by all of this and will continue to study and share. So far everyone that has responded to this thread has been on antibiotics in the time leading up to their FFA diagnosis. Are there any of you ladies that do not have an antibiotic history?
Comment by PamW San Diego, CA, USA on March 29, 2014 at 12:09pm
I am going to jump on the bandwagon. I don't remember dates, but if had a lot of urinary tract infections and sinus infections and took antibiotics several times. Is this a question for Dr. Christos? Could someone reach out to him?

I would also like a recommendation on probiotics. And, who is taking duasteride? I need info.
Comment by Mandy on March 29, 2014 at 9:57am
Hi C my GP told me that he thought that and infection/virus I had in the December which I struggled to get over May have triggered the FFA... He explained that the body had been fighting an infection/virus and the when I was over it my body still thought it was there and mistook the make up of my hair for the make up of the infection/virus??? Who knows x
Comment by Celia on March 29, 2014 at 5:45am

I wonder ?  I have always felt my FFA was triggered by an illness - severe double pneumonia from which it was touch and go for a while - I had a lot of anti-biotics and X rays and took many months to recover - after this my hair began falling out steadily and I was told it was because of being so ill and having lost so much weight. Then 10 months later the inflammation began followed by The Diagnosis.  Can anyone recommend any particular probiotic ? Thanks.  Is there anyone else who feels that medications have triggered their FFA ?

Comment by Maddy, California, U.S. on March 28, 2014 at 4:26pm

I agree. Really interesting comments about the probiotics, infections and antibiotics. I just saw several similarities, so wanted to speak up. First, when I started going through perimenopause, my skin became very oily and I started to have severe acne breakouts...almost like cysts on my face. I was on Amoxicillin for a couple of years. I think my FFA was definitely triggered by a medical condition....while not an infection exactly, I got Influenza really bad the year before my FFA started. It literally took my lungs months to recover (probably close to having an pneumonia). Finally, I actually thought to myself the other day how much better my FFA seems now that I eat an Activia yogurt every morning regularly (for about two months now). I have MUCH less hair shedding. I wonder if we are onto something?

Comment by Jules UK on March 28, 2014 at 4:01pm

Really interesting comments about probiotics.  Does this mean that if I make my own yogurt, it may help? Or is that too simple?  I've just heard from Nottingham that I've been randomly selected to take part in the research into psycho-social affects of alopecia.  My appt is on April 8th.  The Dr sounds lovely. Has anyone else opted to participate?

Comment by Annie on March 28, 2014 at 3:47pm

Anne, I also had a severe ear infection a few years ago.  I took two rounds of Amoxicillin, then ended up having to take Zirithromiacin to clear it up.  I've always wondered if the perhaps the infection triggered my ffa since I'd rarely been sick in my life up to that point.  Regarding antibiotics, I've always had oily skin, and have taken more rounds of antibiotics to combat acne than I can count.  I have been taking probiotics for about three months and have started making kefir, which has natural probiotics. 

Comment by Anne Louise on March 28, 2014 at 11:48am
MJ wouldn't it be great if all we had to do was take probiotics and we could cure FFA?! Ive been taking one on and off since I started Doxy a month ago. After learning more about them I plan to research some more and figure out the best one to take. As far as I can tell, there is not much harm that can come from taking probiotics and there could be a ton of benefits.
 

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