Comment

Comment by MJ on March 14, 2014 at 7:22pm

Hi Jen, I have two little girls, ages 11 and 8, and my little one is always telling me I am beautiful no matter what. I was so upset with my dx in December that I couldn't eat and became obsessed with all things hair related. I am still obsessed with everyone else's hair, and certainly have small moments of self pity, but with the help and strength from this group, I decided to take all the action I could to combat FFA. I am following the standard medical protocal, but I think the thing that has helped me the most is coompletely overhauling my diet and mindset. I started following Dr. Weil's anti inflammatory diet (learned about it from Debs) and started looking into alternative medicine. I started by reading Spontaneous Healiing by Dr.Weil and just did alot of reading from there. I decided that know one knows what triggered this, so there is no reason to believe I can't untrigger it! During the past three months, my focus has been on getting the healthiest I can thru diet, exercise, and breathing exercises. My head is in such a different place from where I was just three months ago. All the cosmetic options I have learned from these ladies has also reassured me that if I lose too much hair or my eyebrows, there are really good options available. One other point I will share with you. I had breast cancer four years ago and handled a mastectomy and reconstructive surgery much better than hairloss. Just so you get a sense of how bad I took this initially. You can and will get past this point too!
MJ

Comment by Jules UK on March 14, 2014 at 6:19pm

Hi Jen, I'm so glad you found us too. This forum has been a huge source of support. I remember well that "screaming inside" feeling you probably have right now. I was diagnosed 18 months ago, having had FFA for 10 years now, as it turns out. I think we've all struggled to find causes and cures; you'll read about them here.... And it's good to feel you're doing something for yourself.
I have only just reached a point where I can look at my hairline without squirming. I think hairloss is slower than I feared at first, and there's always the chance that it could burn out. It has certainly helped my outlook to know that a hairpiece is possible that can stay put and behaves like your own hair. For you, that might still seem a horrible prospect, and you may never need one. There are many degrees to this condition - but its unpredictability is so frustrating.
Where are you? UK? Just be kind to yourself, as my daughter tells me! Listen to your family - they care about you. And have that glass of wine! Jules x

Comment by Jen S. on March 14, 2014 at 4:34pm

Hi all!  I admit that I have been obsessed with this site the last week.  I had a biopsy last week that confirmed Wednesday what I thought was already happening -- mild FFA.  Really - is there such as thing as "mild-forever-hair loss"  Yea!  (sarcasm).

I am having trouble getting past this.  You all seem to have adjusted pretty well.  How do I get there?  How do I accept?  How do I look in the mirror?  I'm only 43.  My 10-year-old son has been telling on a hourly basis how beautiful I am and how he'll love me forever.  My 12-year old son doesn't know what to think and my husband tells me that I am strong enough to get through this.  I am not sure I agree right now. 

I had a series of shots around my hairline and am using Minoxodil 5% and Clobestal (sp?). 

I want to fight this.  I don't really know where to start. So many things that "may or may not work" or that "work for a little while then stop".  Argh!!!  So angry.   I don't drink more than maybe a glass of wine a week, I don't smoke, I run six days a week (though haven't at all in the past few weeks of my personal pity party).  Why me?

Help!  Advice?  Where do I begin? I hate going to sleep and I hate waking up to this every morning as well.

Anyway, I promise I won't rant all the time.  I didn't expect to today -- just happened.  Regardless, I am so very grateful that you started this group, Celia. 

For now, I will continue to linger on the site -- looking for hope and strength.  Take care fellow fighters.  Bye from Marietta GA.

Comment by Jules UK on March 14, 2014 at 3:55pm

Pam, I saw Rob, your hairdresser, today. He was so helpful! I've ordered 2 hairpieces. I'm looking forward to seeing your new hairdo at c's next week too.

Comment by claire on March 14, 2014 at 3:43pm

YES A GOOD POINT WHAT WOULD YOU LIKE ME TO BRING FOR LUNCH?

Comment by Pam on March 14, 2014 at 1:53pm

Celia - looking forward to seeing you on Sat Mar 22nd. What time are you expecting us? Would you like us to bring anything towards the lunch?

Comment by Polly UK on March 13, 2014 at 5:50pm

Got it thanks C xx

Comment by Celia on March 13, 2014 at 5:33pm

Polly I have just sent you an e mail on this site - let me know here if you don't get it. x

Comment by Anne Louise on March 13, 2014 at 4:15pm

Thank you all for the eyebrow tattoo feedback. I had my consult today and I will likely go through with it, once I get the courage up. The permanent nature of it puts me in a bit of a panic, yet I love the thought of not having to deal with makeup and swimming without looking like an alien. I started using Latisee two weeks ago, and even though it's too soon to tell, I am noticing some slight re growth. Would a tattoo hamper any potential re growth?

Comment by Polly UK on March 13, 2014 at 3:20pm

Hi Celia, really looking forward to our meeting next week - please can you send me your address and also a taxi firm phone number, I will be coming by train again.
Also are you still taking lymecycline and if not did you notice any changes when you stopped? I've taken the last tablet today of my 2 month prescription and my scalp has felt so good during that time that I'm concerned what will happen now..

Thank you Jules for your participation in the telephone conference and the research sounds very interesting. Look forward to hearing more about it on 22nd.

I had my eyebrows done at the end of January and I'm very happy with them, it's great not having to pencil them in every morning and they look so much better than I could ever do.

Polly x

• ‹ Previous
• 1
• …
• 301
• 302
• 303
• 304
• 305
• …
• 506
• Next ›
• Page