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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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Anyone who still needs directions as to how to get here on Sat 22nd - please let me know - here - and I will e mail you on this site. Thank you !
Hi Pam - look forward to seeing you and other ladies. Let's say any time from 10.30 on. Julie has very kindly agreed to put an agenda together and she said she would keep checking for any items that may be suggested here. I would have done this, but my WORD has timed out........... I hope this doesn't sounds too formal but I just thought it might help for the future to have some kind of focus. I have half a mind to ask the GP to come along and meet us all, but, actually A - it's a weekend and B - he probably is not so interested. I know that Dr Harries in Salford attends a support group who meet regularly 'up there'. I wonder if Dr Cheung might have some interest , perhaps next time round in 'the summer'. Just a thought. x
Celia I cant believe your GP would be negative about this forum - my local GP who specialises in dermatology thinks that the forum is an excellent idea, both to share information, and also as a support network.
What time are we meeting on Saturday?
Debs - I just read your post on Jen S' discussion. Interesting we are both not taking the meds. Lymecycline did not agree with me at all in that it gave me tummy ache each time after I took it.
I won't go to the GP any more, I'll go to a different one. Wouldn't you think that if they didn't know about a condition, their professional curiosity might lead them to find out ? I guess they encounter this so infrequently................ x
Hello everybody. I am still reeling from a very negative meeting with my GP 10 days ago. He was very dismissive about any form of forum/they don't know what they're talking about etc etc. He was very animated to the point where I said that I had to leave. He felt that any info we have on this 'kind of forum' is probably incorrect etc. I was very upset but managed to leave with dignity until I got to the car. I wonder if any of you have hit a GP brick wall ever ?
Jules, I wonder if you might be able to type up an agenda for next Sat - my WORD facility is gone since I actually use it so little. Thank you in advance !
Perhaps over the next 2/3 days those of you who are coming over next Sat might like to let us know agenda items. Please, if anyone does not know directions - let me know via this site. So looking forward to seeing you all - wish we could be meeting up in better circumstances, but I will try to make the day pleasurable for you. If there are any dietary requirements please let me know and I'll try to make sure you have whatever you need/like. xx C
Thank you MJ and Jules. I can't tell you how much I needed to hear from y'all. You are both spot. MJ - I think I will look into the book. I am looking forward to talking with you though out this. Long day of tears and worry -- so, I'll write more later. It's 10:00PM in GA. Good night and take care.
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