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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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Hi all! I admit that I have been obsessed with this site the last week. I had a biopsy last week that confirmed Wednesday what I thought was already happening -- mild FFA. Really - is there such as thing as "mild-forever-hair loss" Yea! (sarcasm).
I am having trouble getting past this. You all seem to have adjusted pretty well. How do I get there? How do I accept? How do I look in the mirror? I'm only 43. My 10-year-old son has been telling on a hourly basis how beautiful I am and how he'll love me forever. My 12-year old son doesn't know what to think and my husband tells me that I am strong enough to get through this. I am not sure I agree right now.
I had a series of shots around my hairline and am using Minoxodil 5% and Clobestal (sp?).
I want to fight this. I don't really know where to start. So many things that "may or may not work" or that "work for a little while then stop". Argh!!! So angry. I don't drink more than maybe a glass of wine a week, I don't smoke, I run six days a week (though haven't at all in the past few weeks of my personal pity party). Why me?
Help! Advice? Where do I begin? I hate going to sleep and I hate waking up to this every morning as well.
Anyway, I promise I won't rant all the time. I didn't expect to today -- just happened. Regardless, I am so very grateful that you started this group, Celia.
For now, I will continue to linger on the site -- looking for hope and strength. Take care fellow fighters. Bye from Marietta GA.
YES A GOOD POINT WHAT WOULD YOU LIKE ME TO BRING FOR LUNCH?
Celia - looking forward to seeing you on Sat Mar 22nd. What time are you expecting us? Would you like us to bring anything towards the lunch?
Polly I have just sent you an e mail on this site - let me know here if you don't get it. x
Sounds good Julie - well done ! Claire I hope you got the address for the 22nd.
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