Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 601
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by Rita - Canada on March 6, 2014 at 3:37pm
Thanks Annie,I assume you feel it appears natural as you purchased it twice? Did it take some getting used to, applying it to get that natural look
Comment by Annie on March 6, 2014 at 2:26pm

I have used powder, but it doesn't seem to cover the bare areas as well as the SmartBrow.  The SmartBrow is much like mascara which thickens and stays in place until you take it off with the makeup remover (included with purchase).  It has a tiny brush on one side to fill in bare areas and a mascara-type wand to coat the entire brow area on the other end.  However, as much as I like the product, I've only purchased it twice because it's so darn expensive.  One tube is $29.95, and it lasts only about 6-8 weeks.   

Comment by Rita - Canada on March 6, 2014 at 1:25pm
I am wondering whether powder or smart-brow (I've seen people mention on this site), looks more natural when brows are sparse. If smart-brow is gel type, salesgirl @ Ulta said their gel brand for brows is meant when just a little fill in is needed.
Comment by Alice on March 6, 2014 at 1:08pm

I have had good luck with using Elidel cream on my brows. On was nearly gone but now I just use a little eye shadow to fill in. The powder works better for me tan a pencil.

Comment by Annie on March 6, 2014 at 10:54am

I started using 5% Rogaine foam eyebrows as well as my head as soon as I was diagnosed with ffa almost a year ago.   My eyebrows have gotten thinner over the years, but my doctor said that they were not affected by the ffa yet.  My eyebrows and eyelashes have both gotten thicker as a result.  I don't use the Rogaine around my eyes, but my eyelashes have gotten so long that I now have a problem with my mascara leaving dots all around my eyes before it dries.  I did have an initial shed a couple weeks after starting Rogaine, but I never noticed losing any eyebrows. 

Comment by MJ on March 6, 2014 at 7:53am
Since I am still at the stage where I look at everyone's hair everywhere I go, I have two observations. First, I wonder how many cases od FFA are undiagnosed. I see a lot of thinning hairlines. Second, they must be making really natural looking wigs these days, because I never see anyone with what appears to be a wig.
Comment by claire on March 6, 2014 at 4:33am

Does anyone know if any of this stuff is available on prescription? I have seen some eyelash serum available on line and I am thinking of buying some. it all seems so hit and miss as to what to do. 

Comment by Jules UK on March 6, 2014 at 4:18am
I tried Regaine on my brows but it made no difference. I think it's helping slow down front hairloss. Can't be sure of course. I had my brows tattooed and they're wonderful!
Comment by MJ on March 5, 2014 at 8:50pm
My brows did not shed but I don't think my hair did either.
Comment by Sam on March 5, 2014 at 8:30pm
For those of you using rogaine on your brows, does that make them shed before they start growing, similar to what it does with the hair? My derm recommended it as well. He said they shouldn't shed but I was nervous to try. I may though and would be interested in hearing from anyone that has used rogaine on the brows. Thanks!!!
 

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