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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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Welcome to the group Anne. I have learned so much from the wonderful ladies on this forum. I am always learning something new. This diagnosis is a devastating one, but as Meme said, it is not life threatening. For that I am very thankful. Take care of yourself, Anne.
Welcome to the group Anne. I have only been a member myself for about a month but these ladies have been very supportive and have given me so much information to think about. I have had FFA for over 10 years now but was not diagnosed until 2 weeks ago by Dr Chris at Guy’s hospital.
I believe my FFA is hereditary from my father’s side of the family. But who knows. I know this must come as a blow to you; especially after all you have been through. My FFA is a always there as a constant reminder, but my thinking is that if I have to have a medical problem then at least I haven’t got one that causes me to be unwell or in physical pain. Just my way of looking at it and trying to get through it.
Take care.
meme
Hi Cathy. I would be interested to know how you get on with Dr Farrant. I've messaged you :o)
x
Claire, ive just seen your comment about mycophenolate mofetil. This is the medication that I have been on since February 2013. I started on a lower dose but was increased to 1g twice daily at my last appointment to give it a last go, I think, before giving up on it. I have an appointment with my dermatologist, Dr Farrant at Brighton hospital, on Thursday so I will let you know the outcome. Not sure he will continue with it though as my hair is still receding and scalp is very itchy.
Clarie, I'm sorry about your mom. That is also my case. My mom died 18 months ago as well, and it was right after that very stressful year that I had my worst bout with FFA. It sounds like stress is a major trigger for a lot of us.
I also work nights in a boarding school and believe that stress is a great trigger for me as well. Things have got so much worse during the last 18 months which coincides with my mother dying and a number of personal matters.
Jules, it is great news that you have been invitied to the steering group.
I've been reading the recent posts with interest. I wasn't born by C-section. I agree with MJ that stress is a trigger. In my case I believe my immune system is being placed constantly under stress from working nights over a long period. It is my choice to work nights, as without going into any detail, I can cope better with my job which in itself is extremely stressful. I have a year left before I can retire.
I had weight issues in my teens and twenties and spent years on crash diets. I was never actually overweight but had a poor body image. Managed to conquer my eating problems after children came along and I had them to focus on rather than myself.
I have suffered from IBS for years which seems to be triggered by gluten. I have medication for this but don't need to take it on a regular basis, only when I have a flare-up. Also I have eczema, though fortunately it's mild and controlled by hydrocortisone cream. In the past I have had thinning hair caused by low ferritin levels which were corrected by taking daily ferrograd C. Once my ferritin levels improved, my hair grew back - this was about ten years ago. Then 18 months ago I developed FFA. Like Sally I am trying to stay possitive, enjoy my life, not get too obsessed about my hair loss, eat healthily and exercise as much as I can. When I want to look nice I can wear my wig and feel better about myself.
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