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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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Has anyone tried aloe vera gel to the scalp to lessen inflammation. The Clobetasol lotion is causing small bumps even though I apply sparingly and scalp is still itchy so don't want to keep reapplying it.
Hi. Is there anyway to make this group private? If I put a search for FFA in to Google I get all our comments and pictures.
xx
Hi all, Just got back from my 3 month derm appt. I was very disappointed because while I was with the doctor, the building was evacuated due to a power outage. I never got to talk to him about using Zyrtec. I've been using Plaquenil for 6 months and a .05% Betamethasone topical steroid for 3 months since my scalp was extremely sensitive to Clobetesol. The doctor very pleased that the redness & inflammation has lessened considerably. He didn't seem concerned when I told him that the shedding is about the same (At least it hasn't gotten worse!). He said it sometimes takes 6-9 months for the Plaquenil to affect hair loss. He is also prescribing Amoxicillan to treat the acne breakouts I've been getting along my hairline (possibly from using the topical). He suggested I come back in 6 months, but I requested a 3-month apt to discuss other options if the hair loss continues.
By the way, I've noticed that the a lot of the hairs that have fallen out over the last month or so are different. I'm seeing lots of little fine wispy hairs between 1 & 2 inches in length. Has anyone else experienced this? I wonder if I'm sheddiing some of the new growth from using Rogaine.
MJ, coloring my hair is also what caused me to go to the doctor about my hairloss. I had my hair colored in February 2013 and noticed that my entire scalp was tender. My hairdresser hadn't use anything new, and I assumed it would get better. My scalp was still tender two weeks later, so I started looking for my symptoms online. I took me a while to find ffa, but I knew it was exactly what I had as soon as I saw the pictures of the early stages. I've seen 3 doctors who all agree it's safe to color your hair, so I keep on coloring. I figure my hair might as well look good as long as I have it! I will say, however, that the hair color burned around areas affected with ffa for a few color sessions after my diagnosis. I'm guessing it was affecting the open follicles where the hair had recently fallen out. It no longer hurts when I color my hair, but I do experience pain when the wind blows extremely hard.
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