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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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MJ, I believe I had ffa for at least 2 years before I ever had a painful flareup. I started out losing the wispy hairs around my hairline when I was about 48. I just thought it was part of the aging process. I never even noticed any extra shedding during that time. It was only after I had a painful flareup & went to a doctor that I started to notice of the hairs in the shower and sink. I've never had extreme shedding with ffa. I usually notice between 20 & 30 hairs in the sink on the days I blow dry my hair. The problem is that many of those hairs aren't growing back. I'm still able to camouflage my hairloss with the help of a Rogaine & a good hairdresser, but the hair around my face is definitely getting thinner.
Hi all, just wondering how those taking Zyrtec are getting along. Are you taking 3 times the daily recommended dose like the case study? I switched my usual Claritin allergy meds for the recommended daily dose of Zyrtec each night about a month ago. I've also been on Plaquenil for six months The redness and pain has lessened considerably. I don't know if the Plaquenil is finally kicking in or the Zyrtec is helping. I feel much better, but the shedding continues. I'll discuss it with my doctor at my 3 month appointment on Friday.
Brenda I have just sent you a personal message with a 'friends' request, if you don't see it then please see my post above 'FACTSHEET FOR FRONTAL FIBROSING ALOPECIA', please read it and you can get my email address. If you contact me I can send you that factsheet which contains wig website addresses so you can get yourself properly iinformed. You dont have to drive 4 hours to find a wig shop you can safely order online if you know what you are doing. The webiste addresses in the factsheet will give you everything you need. Wigs are a new product for most of us, myself included, so we do need to do our research and take advise from people that are experienced wig wearers. All this is in the factsheet. Happy New Year.
KarenGinny the first generic for plaquenil that i took caused a rash all over my body. my Dr. said to find a different manufacturer or take true plaquenil. I havent had a rash since.
Happy New Year everyone! I have been seeing a new dermatologist and tried the plaquenil but ended up with a rash from it and had to stop it. He now wants me to take methotrexate which I have started today. Hopefully I will be able to tolerate it. Has anyone else tried this before? It is supposed to be an anti-inflammatory drug sometimes used for rheumatoid arthritis and cancer. I hope it will help my scalp which is always dry and itchy. My hairline has receded more in the past year, but seems to be staying the same for now, although my bangs are very thin, and it's hard to hide the bald patches.
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