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Comment by Brenda, IL US on January 2, 2014 at 4:33pm

KarenGinny the first generic for plaquenil that i took caused a rash all over my body.  my Dr. said to find a different manufacturer or take true plaquenil.  I havent had a rash since.  

Comment by KarenGinny - Iowa, US on January 2, 2014 at 4:09pm

Happy New Year everyone!  I have been seeing a new dermatologist and tried the plaquenil but ended up with a rash from it and had to stop it. He now wants me to take methotrexate which I have started today. Hopefully I will be able to tolerate it. Has anyone else tried this before? It is supposed to be an anti-inflammatory drug sometimes used for rheumatoid arthritis and cancer. I hope it will help my scalp which is always dry and itchy. My hairline has receded more in the past year, but seems to be staying the same for now, although my bangs are very thin, and it's hard to hide the bald patches.

Comment by Brenda, IL US on January 2, 2014 at 11:27am

Happy New Year to all!  Celia my hairline is still receding horribly.  Zyrtec has taken care of the itching.  I'm using clobetasol twice a day now and the inflammation  seems to be lessening.  or it may be the doxy helping.  It's all such a puzzle.  i need to check into wigs but i dont know where to go.  My dermatologist told me to go to a guy in Chicago but its a four hour trip one way and i'd have to go at least twice.

Comment by Polly UK on January 1, 2014 at 1:49pm

Hi everyone hope you had a good Christmas and I wish you all a very Happy New Year xxx

Celia - I've had more aches and pains than usual since taking Hydroxy but it's probably a coincidence. I saw a physio in December because my knee was now very painful and she said the muscles and tendons were in spasm and I had some muscle wastage! It's feeling a bit better now after treatment and following her exercises. I'm going again next week. I also have painful hands but I think it's the nerves in the backs of my hands, not the joints. When I knock them even gently the pain can be excruciating!
I tried cutting down a little on my hydroxy dosage and after one week my forehead and hairline was sore and sensitive and the hair felt singed. Consequently lots of hair fell out over a couple of days and I've returned to 2 tablets daily. It all feels fine now and again could have been a coincidence or over indulgence at Christmas! I'm still taking anti-histamine every night.

Comment by Kath UK on January 1, 2014 at 11:44am

Happy New Year to everyone!

Comment by sammi on December 31, 2013 at 2:48pm

Happy new year to all!love and best wishes Sammi x If anyone wants to meet up in Manchester let me know, maybe for a coffee after or before appointment if travelling to see Dr Harries x

Comment by MJ on December 31, 2013 at 1:06pm

Pauline,
Have you been told how long you will be staying on hydroxy and has it been working for your ffa after two years? I just started a couple of weeks ago. By the way, you look fantastic in your picture. Was it taken before your hair loss? Your hair looks great! Would never know you lost an inch.
Marla

Comment by Celia on December 31, 2013 at 1:01pm

How is your hair loss now, Brenda.

I went for my hair do today - I used to so enjoy visits to the hairdresser - fortunately they are very caring and made a nice job of it for me.  I can go a bit longer before the wig plunge I think.

Anyway - Happy New Year to all of you.

I would like to plan a day here for the UK dwellers in Jan as we have done a couple of times before. It would be nice to see you all. x

Comment by Brenda, IL US on December 31, 2013 at 11:25am

I had severe joint pain.  My Dr. said it was from lupus.  Hydroxychloroquine has helped immensely.  I tried to quit taking it because i thought it was the reason i was loosing my hair.  My joint pain got a lot worse and my hair still kept falling out so i resumed taking it.

Comment by Celia on December 30, 2013 at 5:16pm

Thank you Annie for your reply.  I will go and see my GP I think and see what he suggests.  Perhaaps the different things I've been doing lately have triggered this situation.  The weather certainly doesn't help - this dampness really seems to get to me.  Sorry to moan !!

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