Comment

Comment by Annie on December 30, 2013 at 5:07pm

Celia, I'm sorry you're experiencing joint pain.  I wish I could offer you some advice, but the hydroxychloroquine seems to have helped my aches & pains.  My knees have hurt whenever there's a change in the weather as long as I can remember.  I've been taking hydroxychloroquine for almost six months, and  now have very little knee pain.  I do, however, experience pain in my hands when I do a lot of tedious work such as wrapping gifts, decorating cookies, sewing, etc...  I have some joint pain right now in the joints that connect my thumbs to the rest of my hand because of the extra work preparing for Christmas.

Comment by Celia on December 30, 2013 at 4:53pm

I wonder if any of you are experiencing any kind of joint pain.  I certainly am - this has been noticeable for about a month now but has worsened lately.  I understand that arthritis is an autoimmune inflammatory disease and that one of the drugs used to manage this is hydroxychloroquine..............................

The other day someone shook my hand - a rather too firm handshake and I cried out - it was soooooo painful !  I have researched (as one does) on the internet and one of the tests for rheumatiod arthritis is squeezing the hand or foot - if this is unduly painful then that may be an indicator.  Has anyone got a view on this or any experience, please ? x

Comment by ElleMN, USA on December 27, 2013 at 5:09pm

Thanks Debs!

Comment by Annie on December 27, 2013 at 2:40pm

I was just looking at how many have signed up on this website.  It's now at 117.  I was the 50th member to sign up in late March, 2013.  I don't believe this disease is nearly as rare as doctors think.  I think there are a lot of women who don't have any physical pain, and just accept the hairline recession as part of the aging process. 

Comment by Debs on December 27, 2013 at 12:30pm

Ellen I bought mine for just £24, i use it on my face too as an anti ageing treatment, you can use it any where on your body. The 0.5mm needle is suitable for our faces/scalp, you only use it 2/3 times a week, I run mine over my face, the skin where I have lost hair and into my hairline for about 3cm. I think it is worth trying as a non drug option. It compliments any of our drug options. It will encourage collagen production and does stimulate a healing response of course as with other options it will work for some people and not others I know my hair loss stopped in my brows and eyelashes after they were tattooed because of this effect.

Comment by ElleMN, USA on December 27, 2013 at 12:12pm

To Debs and anyone else using a dermaroller; just wondering how it's going? I'm checking them out on Amazon and wondering if it's worth the money. What I'm most interested in is improving the texture of the skin on my forehead where the hair has fallen out. Any comments would be helpful.

Comment by Debs on December 26, 2013 at 8:51am

Deleted emails by mistake.... Apologies to several ladies I just accidentally deleted some of your emails in my private email address.

Can u please resend if you have emailed in the last 24 hours

Comment by Celia on December 25, 2013 at 4:10pm

I wonder if Dr Harries' previous questionnaire results might become part of the research being spearheaded by Dr T ? I think Dr H's research may have had insufficient funding.  I have asked him for updates on my last 2 visits but no conclusive thoughts.

Kath - I am so sorry that your derm stopped seeing you after she thought the hydroxy wasn't working. The hydroxychloroquine does not work for me in that I still lose hair, still red etc.  I don't understand how you can be written off.

I am taking antibiotics. No effect. I know that one of our group recently posted that she was considered to be now free of FFA - I have not heard of this happening before - I hope that is still going strong.  Hope for some good news in 2014 !

Comment by Jodie UK on December 25, 2013 at 6:10am

Merry Christmas to all xxx

Comment by Kath UK on December 24, 2013 at 5:08pm

Merry Christmas to everyone. xx

• ‹ Previous
• 1
• …
• 327
• 328
• 329
• 330
• 331
• …
• 506
• Next ›
• Page