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Comment by Brenda, IL US on January 2, 2014 at 11:27am

Happy New Year to all!  Celia my hairline is still receding horribly.  Zyrtec has taken care of the itching.  I'm using clobetasol twice a day now and the inflammation  seems to be lessening.  or it may be the doxy helping.  It's all such a puzzle.  i need to check into wigs but i dont know where to go.  My dermatologist told me to go to a guy in Chicago but its a four hour trip one way and i'd have to go at least twice.

Comment by Polly UK on January 1, 2014 at 1:49pm

Hi everyone hope you had a good Christmas and I wish you all a very Happy New Year xxx

Celia - I've had more aches and pains than usual since taking Hydroxy but it's probably a coincidence. I saw a physio in December because my knee was now very painful and she said the muscles and tendons were in spasm and I had some muscle wastage! It's feeling a bit better now after treatment and following her exercises. I'm going again next week. I also have painful hands but I think it's the nerves in the backs of my hands, not the joints. When I knock them even gently the pain can be excruciating!
I tried cutting down a little on my hydroxy dosage and after one week my forehead and hairline was sore and sensitive and the hair felt singed. Consequently lots of hair fell out over a couple of days and I've returned to 2 tablets daily. It all feels fine now and again could have been a coincidence or over indulgence at Christmas! I'm still taking anti-histamine every night.

Comment by Kath UK on January 1, 2014 at 11:44am

Happy New Year to everyone!

Comment by sammi on December 31, 2013 at 2:48pm

Happy new year to all!love and best wishes Sammi x If anyone wants to meet up in Manchester let me know, maybe for a coffee after or before appointment if travelling to see Dr Harries x

Comment by MJ on December 31, 2013 at 1:06pm

Pauline,
Have you been told how long you will be staying on hydroxy and has it been working for your ffa after two years? I just started a couple of weeks ago. By the way, you look fantastic in your picture. Was it taken before your hair loss? Your hair looks great! Would never know you lost an inch.
Marla

Comment by Celia on December 31, 2013 at 1:01pm

How is your hair loss now, Brenda.

I went for my hair do today - I used to so enjoy visits to the hairdresser - fortunately they are very caring and made a nice job of it for me.  I can go a bit longer before the wig plunge I think.

Anyway - Happy New Year to all of you.

I would like to plan a day here for the UK dwellers in Jan as we have done a couple of times before. It would be nice to see you all. x

Comment by Brenda, IL US on December 31, 2013 at 11:25am

I had severe joint pain.  My Dr. said it was from lupus.  Hydroxychloroquine has helped immensely.  I tried to quit taking it because i thought it was the reason i was loosing my hair.  My joint pain got a lot worse and my hair still kept falling out so i resumed taking it.

Comment by Celia on December 30, 2013 at 5:16pm

Thank you Annie for your reply.  I will go and see my GP I think and see what he suggests.  Perhaaps the different things I've been doing lately have triggered this situation.  The weather certainly doesn't help - this dampness really seems to get to me.  Sorry to moan !!

Comment by Annie on December 30, 2013 at 5:07pm

Celia, I'm sorry you're experiencing joint pain.  I wish I could offer you some advice, but the hydroxychloroquine seems to have helped my aches & pains.  My knees have hurt whenever there's a change in the weather as long as I can remember.  I've been taking hydroxychloroquine for almost six months, and  now have very little knee pain.  I do, however, experience pain in my hands when I do a lot of tedious work such as wrapping gifts, decorating cookies, sewing, etc...  I have some joint pain right now in the joints that connect my thumbs to the rest of my hand because of the extra work preparing for Christmas.

Comment by Celia on December 30, 2013 at 4:53pm

I wonder if any of you are experiencing any kind of joint pain.  I certainly am - this has been noticeable for about a month now but has worsened lately.  I understand that arthritis is an autoimmune inflammatory disease and that one of the drugs used to manage this is hydroxychloroquine..............................

The other day someone shook my hand - a rather too firm handshake and I cried out - it was soooooo painful !  I have researched (as one does) on the internet and one of the tests for rheumatiod arthritis is squeezing the hand or foot - if this is unduly painful then that may be an indicator.  Has anyone got a view on this or any experience, please ? x

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