Comment

Comment by Debs on December 10, 2013 at 3:13am

Hi Brenda, great news that you are going to see Dr Mann and she is leading FFA research, can you let us know what she thinks about using the Zyrtec for FFA.. and if so how much do we take a day? for how long? and is it safe to take with our other drugs like hydroxychloroquine sulphate and tetracycline antiboitics  ?

Comment by Brenda, IL US on December 10, 2013 at 12:19am

I received a letter from Dr. Caroline Mann from the School of Medicine at Washington University in St. Louis, MO.   She's the Principal Investigator in Dermatology that's doing a study of FFA.  Since i'm being treated for FFA at Washington U I'm being asked to participate in the study.  I have to fill out a survey and await further word.  I'm also going to let her know about our group and Alopecia World.

Comment by April on December 8, 2013 at 3:50pm

Pam, the study was from 2010

Comment by Debs on December 8, 2013 at 6:09am

Liz, check out Dr Joel Furhmans diet advice and Dr Andrew Weil.  Dr Furhman is a more restrictive approach but is virtually vegan, his auto-immune protocol is on the internet.  I have downloaded it but can't transfer it to this site because there is a small fee (I think it was about £7) and it is not possible to send as an attachment. 

Comment by Brenda, IL US on December 7, 2013 at 8:24pm

I took a Zyrtec yesterday and today.  Last night i noticed that my scalp wasnt itching as bad as it had been in the last two months.  Today there isnt any itching and the inflammation isnt as bad.  I'm keeping my fingers crossed and will keep on taking Zyrtec.

Comment by Liz on December 7, 2013 at 6:30pm

I am thinking of trying the Paleo diet to see if it helps with my inflammation. Before I invest in any books though I would like to ask if it is a diet which a vegetarian could follow?

Comment by sallylwess on December 7, 2013 at 2:50pm

I actually was diagnosed with FFA by a biopsy in April of 2013.  That month I also quit taking the heart medication.  (My doctor gave me permission, but not her blessing.)  I am doing better with the arrhythmia also.

Comment by sallylwess on December 7, 2013 at 2:49pm

I am finding the discussion on allergies quite interesting.  I am making so many links to my own history.  I can't take Zyrtec, but do take Allegra.  I am going to begin taking allergy shots soon.  My allergies and hair loss went into high drive when we moved a year ago.  We moved to an area where I am surrounded by things I am allergic to.  I can't take benadryl or prednisone.  I have heart arrhythmia which is aggravated by many allergy medications.  

When I started Flecainide for the arrhythmia, I broke out in rashes, saw great hair loss, had nausea, and even began experiencing attacks of pancreatic pain.  When I was told I had chronic pancreatitis, and I was having acute stomach pain, and esophageal problems, and my hair changed color from silver gray to nearly black, I quit the Flecianide.  My rashes, pancreatic pain, nausea, and my esophageal problems went away.  I am not currently experiencing much hair loss, and my hair is becoming silver again.  

Also, my levels of inflammation are down in blood work.  

Comment by PamW San Diego, CA, USA on December 7, 2013 at 1:51pm

A few months ago, I experienced two separate bouts of hives. Both times my dermatologist said to take one Zyrtec a day and Benadryl at night for the itching and discomfort. Last weekend, I was having problems with burning and itching scalp. I took a Benadryl at night and it knocked down the inflammation considerably, to the point where I had one of the most comfortable weeks ever. I think histamine is made in our adrenal glands, which also control other hormones. Maybe there is some connection. April, what year was the study you cited published?

Comment by Debs on December 7, 2013 at 12:10am

Cetirizine sounds like another tool we can use to treat our FFA... Any ladies seeing their derms soon can you ask please about this ?

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