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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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My doctor also ordered blood work me after being on Plaquenil for one month, then again at three months. I've been taking it for five months, and my blood work has been normal so far.
Hi All, Just a note for those (including myself) thinking about using Zyrtec. The side effects listed include a small chance of liver damage. I'm definitely going to ask my derm at my 3 month appointment in January since I'm currently taking Plaquenil, which can also cause liver damage.
Debs, thanks for your information regarding the Dermaroller. You are such a blessing! It might be something for me to consider in the future. I can tell that my scalp is very slowly getting better. I noticed this morning that it no longer hurts when I put my sunglasses on - a small thing, but a blessing nonetheless.
Annie, 'yes' I use it on the first 2 inches of my hairline, so basically the next bit of my hair that is going to disappear!!!! I don't get any pain from my FFA so it is OK for me to do but I can appreciate for those ladies that have painful scalps the dermrollers would be a problem. I only use it 2/3 times a week as you are supposed to let your scalp heal in between rolling (or needling as I like to call it). This is just one of many methods we are using to try and control our FFA, if you are unable to use it Annie please don't worry, it is just one of several options that I and other ladies are pursuing.
Hi All, Just wondering how those using the Dermaroller are getting along. Are you using it on the areas where the ffa is active? I think those areas would be too painful for me to tolerate it at present.
Also, for those taking Zyrtec: How much are you taking each day, and how are you tolerating it? Are you taking it along with the oral meds prescribed by the doctor?
Thanks in advance for sharing. I so appreciate everyone who shares their experiences.
I'm awaiting word from Dr. Mann. Just mailed the survey form to her today. I listed my meds and included zyrtec. When i hear from her i will let you know what she says about zyrtec and if she needs more participants. I dont know if i will be able to see her in person. My derm is Dr. Musiek at Washington University. The zyrtec has stopped my itching.
Brenda, I live in Missouri, approximately four hours from Washington University in St Louis. I would be willing to participate in the study if more participants are needed.
Hi Brenda, great news that you are going to see Dr Mann and she is leading FFA research, can you let us know what she thinks about using the Zyrtec for FFA.. and if so how much do we take a day? for how long? and is it safe to take with our other drugs like hydroxychloroquine sulphate and tetracycline antiboitics ?
I received a letter from Dr. Caroline Mann from the School of Medicine at Washington University in St. Louis, MO. She's the Principal Investigator in Dermatology that's doing a study of FFA. Since i'm being treated for FFA at Washington U I'm being asked to participate in the study. I have to fill out a survey and await further word. I'm also going to let her know about our group and Alopecia World.
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