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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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Thanks Celia, it was actually a very uplifting morning, I came away with more info that I had imagined and although not a cure there are at least a few more things we can try out if we feel inclined. Putting my feet up now and having a night just relaxing in front of the TV
Debs - all that information is amazing. Thank you for taking such exhaustive notes.
I was interested in the fact that Dr Tziotzios actually said FFA was 'an epidemic' in UK. I've thought for years that it was under reported because I kept seeing ladies with the same hair loss pattern as I had and wondering what treatment, if any, they were having.
I will certainly take part in Dr Tziotzios' research project.
Thank you again for the info.
Debs - thank you very much for all of that info. You must have had an exhausting day, what with getting there, listening to all of that - on a subject that is so emotive and making such comprehensive notes too. VERY much appreciated. The epidemic statement is a rather shocking and reminds me of the first stages of internet research I did before, in desperation to find others similarly afflicted, I started this forum on Alopecia World. I refer to that early Daily Mail article which reported that FFA was 'the new epidemic among women' . For those of you who haven't read the article - it is easy to find and I found it so compelling that I contacted 2 key professionals interested in FFA, namely Dr Harries and Carol Michaelides. When I saw Dr Harries recently I tentatively suggested that he lets his patients know of our forum which they may derive some comfort and support from. So - lots to think about, Debs, following on from your notes. Thanks again ! X
CARF MEETING
3 dermatologists attended
Dr Christos Tziotzios is doing a research project and needs our DNA. He will send you a kit to your home for a saliva sample. Please email him for kit christos.tziotzios@kcl.ac.uk
He said that FFA is now an epidemic in the UK.
Aim of treatment: 1 stop inflammation
2 control disease activity
Drugs:
Antibiotics; doxycycline, ciprofloxacin, rifampicin, lymecycline
Steroids; scalp injections, oral - prednisolone, topical - dermovate, etrivex shampoo
Hydroxychloroquine sulphate
Roaccutane - usually used on acne but can be used on scarring alopecias if pustular
Minoxidil - regaine/rogaine. increases blood supply and shifts hair into a growth phase. Foam is best causes less irritation. Must use every day for 6 months to see a difference.
Pioglitazones; diabetic drug, used in USA for lichen planopilaris. Slight risk of bladder cancer
Laser - LLLT low level laser therapy. 6 - 9 months to see a result. Activates hair growth stage. Not on NHS. One woman at meeting uses a helmet 25 mins every other day. Make is IGROW you can buy on internet.
PRP platelet rich plasma - already in use for other alopecias. Derms said think it would work for FFA. You take some of your blood, remove plasma, inject the plasma into scalp.
Food: derms agreed that sugary foods promoted inflammation in their acne patients and did think the diet plays a part however the medical profession has not carried out any studies on diet! Sugar, dairy and alcohol we things many of the ladies knew from experience to trigger inflammation.
Cloning techniques
www.replicel.com see carf website there is a link to a video
Microneedle rollers - concept that slight injury promotes hair growth. Already proven as areas that are tattooed often retain/regrow hair. Nanogen company are retailing this product n 2014.
Hair simulation tattoo - short strokes representing hair that can fill in gaps and create an illusion of hair density. www.looklikeme.com live in 2014 will give details of tattooing for aloecpia.
Hair transplants - when this is done with FFA it can trigger the FFA to reactivite, so not recommended.
Causes: genetic predispositon plus environmental factors.
Lots of research is going on.
Although there are no new drugs to try some of us might want to look at the microneedle rollers, laser helmet, PRP.
Again ladies please do contact Dr Tziotzios and donate saliva for his DNA research.
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