Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

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Comment by Annie on November 5, 2013 at 2:08pm

Celia, I think the problem is that our autoimmune systems are in overdrive, which isn't healthy.  Something has caused our autoimmune systems to overreact and attack our own bodies.  I've been healthy my entire life and taken good care of myself by exercising and eating healthy.  I do have seasonal allergies, but I've never been sick other than an occasional cold or flu.  My doctor said it shows God has a sense of humor.

Comment by Celia on November 5, 2013 at 11:21am

Interesting !  We are all trying to stay healthy and eat all the right things, and as Jean said 'improve auto-immune systems' .  I am going to ask a dumb question now...............why are we offered drugs to suppress the auto-immune system on the premise that it is the AI system that is attacking healthy hair follicles and destroying them so that they scar over.  I was offered ACTOS but declined as it can, in suppressing the AI system, leave the user less likely to fight infection, that is just one side effect that may happen. 

Comment by Debs on November 5, 2013 at 4:36am

Jean... this does actually make sense to me... after I had my eyebrows tattooed I have not lost any more hair from my eyebrows... I did not regrow any but the hair loss in this area has halted... this is one of the reasons I got my eyelash enhancements done back in June this year, I was hoping to trigger the same effect... touch wood and my eyelashes have not remained stable since I had the tattoo in this area.  I have heard of this from other people too.  I can only think the action of the tattoo needle somehow stimulates extra cellular activity which prevents hair loss.... whatever it is I would definately recommend trying it. 

Comment by Jean on November 5, 2013 at 4:24am

I don't know whether this is helpful but for what it's worth............

I'm not too concerned about what's happening with the scalp (prescribed local medication/shampoo) but I've been trying to improve my autoimmune system as I also suffer with arthritis and psoriasis.  To this end, I've been seeing a Chinese practitioner for acupuncture and pills to sort out my gut.  He's also given me an 'instrument' which looks like a long flexible pipe with seven sharp pins at the end.  I have to use it to  whack my head (not where I've lost hair but the bit between there and my crown) for 5 minutes on alternate days!!!  Sounds bizarre but Belinda Hale (eyebrow lady) was telling me that an FFA sufferer had successfully grown eyelashes following an eyelid tattoo and I've now got  a few hairs growing on my eyebrows following a tattoo.  Perhaps it's something to do with stimulating the skin and with no other tried and tested solutions in the offing I'm going to continue with the 'Chinese torture'.  It's only been 3 weeks so far and I'll obviously share any results (ever the optimist) with you lovely FFA sufferers.

Ever hopeful - Jean

Comment by Alice on November 4, 2013 at 5:42pm

I took doxy for years for another condition. Be sure to drink plenty of water with it.

Comment by Debs on November 3, 2013 at 3:18pm

Rita thanks for that info.  I have taken my 4th dose of doxycycline tonight and so far no tummy probs.  However  I will be defiinately going to the health food shop tomorrow to get a probiotic as we are going to be on this drug for several months so we do need to be extra careful.

Comment by Rita - Canada on November 3, 2013 at 10:46am

Debs, I have been on Doxycycline, taking it at dinner and have taken a good strong probiotic @ bed as I was told at health food store to keep those 2 apart . Anyway, no stomach problems.

Comment by Debs on November 3, 2013 at 6:26am

Ann thanks for that info... I will try it too.  thanks ladies with reassurance that the dents do fill in after injections... if the doxycyline doesn't work I may have to try the steriod injections as a last resort.   I am going to use a probiotic whilst on the doxycline to after reading all your advice.  thanks v much. XXX

Comment by Pam on November 2, 2013 at 5:45pm

Looked at dream hair blending site and it says its out of stock until after November 15th! It does look amazing in the claims it makes.

I can`t see how it would attach to cover the sides and front hairline though, as it appears to be a system which uses your existing hair, to pull through a net to add the new hair piece.

Comment by Jules UK on November 2, 2013 at 4:05pm
Just followed a link on this site to Dream Hair Blending Enhancements website. Sounds too good to be true! If anyone wants to take a look, it would be interesting to know what others make of it. X
 

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