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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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I really believe this is stress related. Every time i have been under extreme emotional or physical stress my temples have receded and my hair has thinned. It always grew back but not as thick. Since i had surgically induced menopause in 1998 its gotten worse. I also developed horrible allergies in 1992. Thats when my doctor thinks i developed lupus. Its a puzzle.
Annie - that is absolutely right - of that I am sure. My system went into overdrive almost 3 years ago when I was battling with pneumonia. I am certain that I absolutely know this was the cause. I was so ill and eventually had to shuffle around using a zimmer frame, so thin and weak. 3 weeks before all of that I was playing squash, swimming gyming and cycling. How to correct it is the BIG question. At the moment most of us are on various cocktails of treatment and we must accept that the medics have not come up with a 'cure' rather they are doing as much as they can by trying different meds - it is difficult to know whether meds are working or whether any changes in the condition would have happened anyway. In other words - 'shots in the dark'. The only treatment I can be sure of is the topical kind - ie dermovate / clobetasol. This does 'dampen down' the redness, but I don't really have a clue if hydroxychloroquine or any antibiotics work. This frustrating situation is what we are all trying to get our heads around. My hairloss continues despite treatment and this is the case for many of you. Apologies for 'going on' a bit - sometimes monologues feel a bit self-indulgent but good to be able to sound off on this forum. x
Celia, I think the problem is that our autoimmune systems are in overdrive, which isn't healthy. Something has caused our autoimmune systems to overreact and attack our own bodies. I've been healthy my entire life and taken good care of myself by exercising and eating healthy. I do have seasonal allergies, but I've never been sick other than an occasional cold or flu. My doctor said it shows God has a sense of humor.
Interesting ! We are all trying to stay healthy and eat all the right things, and as Jean said 'improve auto-immune systems' . I am going to ask a dumb question now...............why are we offered drugs to suppress the auto-immune system on the premise that it is the AI system that is attacking healthy hair follicles and destroying them so that they scar over. I was offered ACTOS but declined as it can, in suppressing the AI system, leave the user less likely to fight infection, that is just one side effect that may happen.
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