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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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Hi Debs, I, too, had injections 2 times 2 years apart. Both times my head dented and both times it has returned to normal. Also, be careful with the doxycycline as it can be hard on your stomach. Make sure to take it with food, and you might want to consider taking a probiotic at the same time because along with the bad bactieria, it also kills the good bacteria in your stomach. I had a lot of stomach aches with it and found it somewhat hard to take. That's why I switched to minocycline which worked just as well for me as doxy, but seemed to be easier on my stomach. However, I have digestive issues as well so maybe it was just me. :-)
Mandy, check out www.drfurhman.com www.drweil.com www.rebootwithjoe.com
Hi Ladies, saw my derm yesterday. Been taking plaquenil twice a day for 8 months. Hair loss has slowed to about half what it was before but still active. Derm has now added doxycline twice a day in addition to the plaquenil. I go back in 6 months.
Steriod injections: discussed using them, I asked questions about the dents they can cause. Derm said dents caused if injections not done properly. I asked if they go away with time.... answer is NO, dents are permenant... I have decided not to risk further disfigurement to my scalp.
Have a good weekend.
Hi everyone, just wanted to give an update on my latest Dr appt. My new dermatologist had gotten my old dr's records and prescribed Plaquenil to me last month. After 10 days I developed an itchy red rash all over my body and was advised to stop taking the Plaquenil, so now that is off the table for me. I saw him Tuesday and he looked through my hair and saw there is a lot of inflammation, itchy redness and flaky scalp. He did a biopsy in 2 places and I will go back in 2 weeks to get the stitches out, and hopefully get the results of the biopsy. He thinks I may have LLP rather than FFA, but to me they seem to be pretty similar. Most of my hair loss is at the forehead and temples. I feel it has receded more this past summer and getting harder to cover up. He mentioned another med, an anti-inflammatory, but I can't remember the name. He may prescribe that later.
On the subject of injections, my previous derm gave me 4-5 rounds of steroid shots into the front of my scalp a few years ago, and I feel the hair loss got much worse after that, so it didn't help me. I like my new derm much better and he seems much more interested in getting to the bottom of this. I'm trying to be hopeful!
Dee, I have not been prescribed oral steroids by my doctor, but he did mention that I should call to schedule an appointment as soon as possible if I have a flareup or my shedding increases so he could prescribe a short-term round to get it under control as soon as possible.
UK BASED LADIES
CARF (the USA based cicatrical alopecia research foundation) are holding their 1st patient support group meeting Sat 16 November in London at the British Association of Dermatologist HQ. (FFA is a type of cicatrical alpocia)
I am going to attend. If anyone else is up for it just email to book your place:
londonsupportgroup@carfintl.org
Hi everyone. Am I alone in being on a regime of oral steroids ( prednisolone +Azathioprine) as well as plaquenil and steroid gel. My dermatologist is not the most communicative person and I'm concerned that I am having very unpleasant side effects with questionable results. I have lost a patch about the size of a large egg in ten months and have new inflammation creeping ever onwards. I've also prescribed myself turmeric.
I've not been offered injections .
April, yes this is part of the anti-inflammatory diet advice given by Dr Andrew Weil and Dr Joel Furhman... please check out their online websites and they list exactly what you can eat to help auto immune conditions. I have been following this dietary advice since July, my FFA is still active but slower but my overall health is very good and I have dropped over one dress size - whilst eating more food than usual! Also check out the Joe Cross website 'reboot with Joe Cross' he is auto immune and has basically cured his skin complaint with diet.
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