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Comment by dee on October 31, 2013 at 9:17am

Hi everyone. Am I alone in being on a regime of oral steroids ( prednisolone +Azathioprine) as well as plaquenil and steroid gel. My dermatologist is not the most communicative person and I'm concerned that I am having very unpleasant side effects with questionable results. I have lost a patch about the size of a large egg in ten months and have new inflammation creeping ever onwards. I've also prescribed myself turmeric.

I've not been offered injections .

Comment by Debs on October 31, 2013 at 9:10am

April, yes this is part of the anti-inflammatory diet advice given by Dr Andrew Weil and Dr Joel Furhman... please check  out their online websites and they list exactly what you can eat to help auto immune conditions.  I have been following this dietary advice since July, my FFA is still active but slower but my overall health is very good and I have dropped over one dress size - whilst eating more food than usual!  Also check out the Joe Cross website 'reboot with Joe Cross' he is auto immune and has basically cured his skin complaint with diet.

Comment by April on October 31, 2013 at 7:43am

Hi everyone! I was just reading this article that claims fish oil/dha has the same effect on the body as glitazone drugs like Actos. I know actos is sometimes prescribed for FFA. Does anyone take fish oil/DHA? Any success? Thanks

Comment by ElleMN, USA on October 28, 2013 at 10:28am

http://experiencelife.com/article/questionable-food-combos/

I'm a pretty healthy eater but this article was eye opening. It talks about food combining and how some combinations can lead to inflammation. This just touches the surface but I found it helpful. 

Comment by Pam on October 28, 2013 at 4:22am

I have been wondering about injections too. I am going to see Dr Harries next week (shame its not the same time as you Celia - we could have done Trafford therapy together!  My husband is not so keen to accompany me to that!!). Seriously, I am very interested in hearing how you get on, and any other tips for me about different treatments that I should discuss with him that I have not already tried.

Comment by Debs on October 28, 2013 at 3:26am

I have just bought the new book by Dr Joel Furhman 'Eat to Live Cookbook', he has just released a revised copy this month.  Very easy to follow recipes that are suitable for those of use trying to use diet to help our FFA.  I am not a good cook and even I can get my head round this. XX

Comment by Sam on October 27, 2013 at 10:29pm

I had my third round of injections last week. No dents for me but they are being done in my hair, 1 centimeter back when done correctly by dr. Shapiro. Because he doesn't take insurance the plan was to go to him every third round but when I went to my other derm for the second, she was not there and a resident physician did them too far back. I was very angry bc they had dr. Shapiros explicit instructions and didn't follow. He did 30 injections 1 cm and she did about 7, even 2 inches back at one point. I truly believe dents are due to shots being done on the hairline not further back. Not sure if working. I am having a lot of thinning out on the sides :( but maybe if they didn't screw up my second round that wouldn't be as bad? Who knows.

Anyone think the topical may thin hair more? I kinda do and have been reluctant to use too much for that reason.

April, I'm with you on the meds but was almost ready to try doxy short term but I read a lot from google search that people feel doxy causes hair loss. Anybody find that on here? I took this 10 days before and thought I had more shedding.

Comment by Celia on October 27, 2013 at 2:01pm

Hello all.  I am seeing Dr Harries  on Thursday morning.  I hope to be cured this time by Friday.  If there are any new questions anyone may have - I will happily ask him.  Looking forward to a little retail therapy afterwards in The Trafford Centre.  On the subject of injections, I didn't have them the last time as Dr Harries felt my skin was still recovering from the previous ones.  I am not planning to have them this trip as I still have a long ridge at my hairline plus a few dents.  Fortunately my fringe still covers them. x

Comment by April on October 27, 2013 at 1:39pm

Debs, I guess I will have to decide soon whether to try them or not.  Keep me posted if you decide to try them and if they are working.  Thanks!!

Comment by Debs on October 26, 2013 at 3:47am

April this is such a hard decision for us all... As you say the steriod injections work for some ladies and not for others... I am having very mixed emotions about whether to try these injections or not.  I am very worried about the dents they can leave... I am using oral meds (plaquenil) and I want to give the doxycycline a go next time I see my derm.  I guess if you are not using oral meds then the shots might be worth continuing with, you could also back them up by using the steriod lotion dermovate and some of the ladies are using regaine (also marketed as rogaine) to see if that helps.  You are certainly well informed and doing everything you can with your diet and supplements to help heal yourself.  XXX

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