Comment

Comment by Debs on October 28, 2013 at 3:26am

I have just bought the new book by Dr Joel Furhman 'Eat to Live Cookbook', he has just released a revised copy this month.  Very easy to follow recipes that are suitable for those of use trying to use diet to help our FFA.  I am not a good cook and even I can get my head round this. XX

Comment by Sam on October 27, 2013 at 10:29pm

I had my third round of injections last week. No dents for me but they are being done in my hair, 1 centimeter back when done correctly by dr. Shapiro. Because he doesn't take insurance the plan was to go to him every third round but when I went to my other derm for the second, she was not there and a resident physician did them too far back. I was very angry bc they had dr. Shapiros explicit instructions and didn't follow. He did 30 injections 1 cm and she did about 7, even 2 inches back at one point. I truly believe dents are due to shots being done on the hairline not further back. Not sure if working. I am having a lot of thinning out on the sides :( but maybe if they didn't screw up my second round that wouldn't be as bad? Who knows.

Anyone think the topical may thin hair more? I kinda do and have been reluctant to use too much for that reason.

April, I'm with you on the meds but was almost ready to try doxy short term but I read a lot from google search that people feel doxy causes hair loss. Anybody find that on here? I took this 10 days before and thought I had more shedding.

Comment by Celia on October 27, 2013 at 2:01pm

Hello all.  I am seeing Dr Harries  on Thursday morning.  I hope to be cured this time by Friday.  If there are any new questions anyone may have - I will happily ask him.  Looking forward to a little retail therapy afterwards in The Trafford Centre.  On the subject of injections, I didn't have them the last time as Dr Harries felt my skin was still recovering from the previous ones.  I am not planning to have them this trip as I still have a long ridge at my hairline plus a few dents.  Fortunately my fringe still covers them. x

Comment by April on October 27, 2013 at 1:39pm

Debs, I guess I will have to decide soon whether to try them or not.  Keep me posted if you decide to try them and if they are working.  Thanks!!

Comment by Debs on October 26, 2013 at 3:47am

April this is such a hard decision for us all... As you say the steriod injections work for some ladies and not for others... I am having very mixed emotions about whether to try these injections or not.  I am very worried about the dents they can leave... I am using oral meds (plaquenil) and I want to give the doxycycline a go next time I see my derm.  I guess if you are not using oral meds then the shots might be worth continuing with, you could also back them up by using the steriod lotion dermovate and some of the ladies are using regaine (also marketed as rogaine) to see if that helps.  You are certainly well informed and doing everything you can with your diet and supplements to help heal yourself.  XXX

Comment by April on October 25, 2013 at 11:51am

Hey Everyone, I think I need some advice.  I am worried about these injections.  They seem to have helped others on here, but others not so much.  I had one round of the injections about 2 1/2 months ago.  These shots caused a dent in my forehead which I believe is starting to fill in a bit thankfully. I also believe they caused increased shedding of hair.  I refused another round of shots last time I saw my derm because of this.  He said these shots do not cause hair loss and that I should continue with the shots because it is the only thing that will really help.  I am not going to do oral meds, at least for the time being.  Currently I am receiving UV excimer laser therapy which has reduced the red, inflamed appearance of my scalp greatly.  I believe it may be slowing down but not stopping my hair loss.  I am also following a Paleo diet  and using a shampoo with tea tree and peppermint oil as well taking turmeric. I may try the shampoo that PJ had success with.  I'm not sure what else I can try medically other than the shots, since I am not doing oral meds.  I have an appt. for a second opinion with another doctor and I am seeing a different provider at my derms office on Tuesday.  Not sure if I should continue with the shots or not??

Comment by PJ - MN, USA on October 25, 2013 at 8:06am

I forgot to mention with the shampoos, you need to leave them on your head for 3-5 minutes. Also, do not rub the conditioner into your scalp. Just in case it has something to do with my hair, I have been taking a multi vitamin, fish oil, vitamin D, blood pressure meds and potassium. I have been taking these for a long time and none of which were prescribed because of my hairloss.

Comment by Annie on October 23, 2013 at 12:58pm

I agree with PJ's doctor regarding  hair follicles that haven't been severely damaged growing new hair.  I've been able to regrow some hair  with the use of Rogaine.  I've had the best results on the right side side of my face where the ffa didn't start as early.

I'm curious how many women on this site have had steroid injections, and if they think it has helped.  I was diagnosed in March, 2013, have seen 3 doctors, and not one ever mentioned the option of steroid injections.

Comment by PJ - MN, USA on October 22, 2013 at 11:47pm

April - I do wash my hair everyday alternating the shampoos. I was told from the beginning that it is important to wash your hair everyday to keep follicles clear of any residue, etc.  Once in awhile I will take a week off from these shampoos and use my "normal" shampoo which is Matrix Biolage Delicate Care. My Dr took me off of DHS Zinc because she thought I might be having a reaction (itchiness/redness) to it after using it for a few months. The ketoconizol was just something else to try, not sure if it has made any difference or not. I did develop some dents from the injections. One that took 9-10 months to go away. I did not notice the doxycycline helping with my hairloss or scalp. It did help with my dry eyes and face. She prefers to not have  you take any oral meds if possible.  Hope someone else has this news to share soon!

Comment by Chrisy, MA USA on October 22, 2013 at 10:42pm

Great news PJ! I'm really happy for you. That gives hope to all of us.

• ‹ Previous
• 1
• …
• 353
• 354
• 355
• 356
• 357
• …
• 507
• Next ›
• Page