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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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I agree with PJ's doctor regarding hair follicles that haven't been severely damaged growing new hair. I've been able to regrow some hair with the use of Rogaine. I've had the best results on the right side side of my face where the ffa didn't start as early.
I'm curious how many women on this site have had steroid injections, and if they think it has helped. I was diagnosed in March, 2013, have seen 3 doctors, and not one ever mentioned the option of steroid injections.
April - I do wash my hair everyday alternating the shampoos. I was told from the beginning that it is important to wash your hair everyday to keep follicles clear of any residue, etc. Once in awhile I will take a week off from these shampoos and use my "normal" shampoo which is Matrix Biolage Delicate Care. My Dr took me off of DHS Zinc because she thought I might be having a reaction (itchiness/redness) to it after using it for a few months. The ketoconizol was just something else to try, not sure if it has made any difference or not. I did develop some dents from the injections. One that took 9-10 months to go away. I did not notice the doxycycline helping with my hairloss or scalp. It did help with my dry eyes and face. She prefers to not have you take any oral meds if possible. Hope someone else has this news to share soon!
I first noticed hair loss around 2008. I was officially diagnosed Aug 2012 with FFA & LPP. My treatment was very conservative. I was told in the beginning that once hair was gone it would not grow back. Later I was told I was in early stages/mild case of FFA and the hair follicles weren't completely destroyed so hair might grow back. I started out getting the steroid injections, rotating between Head & Shoulders Classic shampoo and DHS Zinc shampoo, using Free & Clear Conditioner and Free & Clear Hairspray. Now I use Ketaconizole shampoo instead of DHS Zinc, otherwise hair regiment is the same. I think I did a total of 4 rounds of steroid injections. I was on Doxycline for 4 months (Feb-June 2013) I did not change anything with food/drink. I just have been trying to eat healthier in general (which I'm not good at). I color my hair every 5-6 weeks. Almost forgot I did use Clobetasol foam once in awhile - not on a regular basis. I did use it day before and day after hair coloring. I do not have any eyebrow hair regrowth. I'm using Elidel cream on the eyebrows. I am to continue with what I am doing and go back to Derm Dr in 3-4 months. I'm also seeing her to deal with my rosacea. I do believe the steroid injections are a very important part of the treatment and getting treatment started right away. I know I am lucky because I have a milder case than what it sounds like a lot of you have. I didn't get a chance to ask her if I will have to continue treating my hair/scalp the same way forever or if I can use other hair products. I think I will be afraid to stray from this treatment for fear my hair will start falling out again. One other thing, I tried to not let FFA consume my life. Sure I had my bad moments, but I really tried to keep it in perspective and carry on in life. Everyone around me was very supportive and did not make a big deal out of it either. I am afraid though when I go back in 3-4 months the Dr might look at my scalp and decide it's still active. For now, I'm not going to worry about it.
So everyone - just be good to yourself!
So happy for you PJ! Very exciting to hear that your hair is coming back! Please let us know if you took anything besides steroid shots.
PJ, this is the best news ever. Congratulations. Break out the best champagne. My derm said that FFA is irreversible so this is pleasantly surprising. So what did you eat and drink and what other treatments turned your luck around?
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