Comment

Comment by Brenda, IL US on October 15, 2013 at 2:56pm

KarenGinny don't give up on plaquenil. Some generics cause a rash and others don't. When i was first prescribed it in 2010 for lupus i had a full body rash within two weeks. I saw a new doctor in 2011 and he said to try another generic or use the original plaquenil. I haven't had a rash since.

Comment by Alice on October 15, 2013 at 2:54pm

Anne, I swear by yoga classes for reducing stress and anxiety. I've been going twice a week for about 9 years. Its very affordsble with a membership at my local Y. It has also helped me with acceptance and an body image issues in general. The rooms are usually darkened, which is nice if you are worried about your hairline showing.

Comment by Annie on October 15, 2013 at 1:14pm

KarenGinny,
I'm sorry to hear about your problems with Plaquenil. I know that some ladies are taking the antibiotic, Doxycycline, instead of Plaquenil for the inflammation. Perhaps that would work better for you.

Comment by KarenGinny - Iowa, US on October 15, 2013 at 11:20am

Hello and welcome to the new ladies here. I just wanted to give an update on my doctor's visits. I saw a new dermatologist a while ago and after getting my old derm's records he prescribed Plaquenil for me to take twice a day and see him in a month. I started it on October 1 and on the 9th I noticed a red rash starting on my legs, thighs, back and stomach. It was itchy but not horrible, just mostly irritating. I have had hives in the past that were much worse, requiring a cortisone shot. After the first day I suspected the new RX since I haven't done anything else different and called my Dr, who advised me to stop taking it and take an anti-histamine - "allegra" & come to my appointment I have scheduled on the 29th. I still have the rash, but it is slowly going away. So now I can't take the plaquenil and I don't know what other options I will have to stop my FFA. I've lost a great deal of hair in the past 2 years and though it seems to have stopped, I still have a lot of hair in the drain when I wash it and struggle with making the hair I have left look good. I still have a very itchy irritated scalp and use a dandruff shampoo Neutrogena t-gel, to try to keep it under control. Has anyone else had a bad reaction to Plaquenil?

Comment by Annie on October 15, 2013 at 10:56am

Hi All,
I had my three-month apt with my derm yesterday. I've been on Plaquenil for almost four months now. I was concerned since I had a flareup in September after taking it for two months, afraid that it wasn't helping. The doctor said that the ffa is a little more active than it was three months ago, but I had very little redness & no inflammation at that visit. He thought perhaps the stress from the death of family member might have caused the flare-up, but he said that he feels it would have been much worse it I hadn't been taking the Plaquenil. He said that I should call his office immediately to schedule an appt if I feel like I'm having another flare-up so he could prescribe an oral steroid or antibiotics to lessen the length & severity. I was not aware this was an option, so I thought I might share it with you. He prescribed a different topical steroid since the Clobetesol has been irritating my scalp. I don't remember what it's called, but will let you know what it is as soon as I pick it up at the pharmacy. I asked if I needed an antibiotic as well as the Placquenil, but he doesn't want to overload my system with drugs at this time. I have another three-month prescription for Plaquenil and will go back in January unless I have another flare-up. He said I need to find an outlet for stress to prevent another flare-up. I definitely need to work on that since the most stressful months are coming up with the holiday season.

Comment by Debs on October 15, 2013 at 4:22am

Jean I have used acupuncture a few years ago and it cured me completely of period pain so I am a big fan of chinese traditional medicine. I will be very interested to find out how you get on. If Belinda has done your eyebrows I know you will now look fantastic. XXX

Comment by Jean on October 14, 2013 at 1:43pm

We're off on holiday over Christmas and the New Year, so huge thanks for the advice on Factor 50, Celia. Belinda told me that she had now seen four ladies with FFA within a year, having 'treated' none previously. She also gave me discount as I was having the tattoo on 'medical' grounds. I'm now seeing a Chinese practitioner who feels he may be able to improve my autoimmune system with herbal pills and acupuncture............Watch this space!!
Kind regards
Jean

Comment by Celia on October 14, 2013 at 1:00pm

Jean - you look fab as we used to say a hundred years ago. Just keep positive and take it all in your stride. I must say yet again how having eyebrows albeit tattoed ones makes SUCH as difference. Did you mention to Belinda that you have alopecia - Debs and I both got a discount because of that - great perk !! I went in December last year - I always use Factor 50 on them to help prevent fading, but will have a top up as and when. x

Comment by Jean on October 14, 2013 at 12:14pm

Thanks, Celia - finally managed to send through a photo. It's not on the Members grid......maybe I did something wrong!!

Best wishes
Jean

Comment by Celia on October 14, 2013 at 9:18am

Jean - to post a pic - go into Settings which you will find on the top right hand side of the page where you sign in or out. You then upload a photo from whatever is stored on your computer. If you have Skype - put the webcam on and SMILE - get 'caught on camera' ! You can use that image to put on your profile - then just save it and you will see it to the left of the comment box on the FFA page. Hope that makes sense !

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