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Comment by Celia on October 19, 2013 at 3:33am

To contact Tiffanyaa - go into the list of members at the top of this page - click on to View All and you will find T on page 3.

Comment by Maddy, California, U.S. on October 18, 2013 at 6:19pm

Jen, Yes, I always have that problem! I wish I knew where to look.

Comment by Jen on October 18, 2013 at 6:14pm

There is a message from Tiffanyaa but I cannot find it.  Does anyone else have this problem?

Comment by Celia on October 16, 2013 at 10:38am

Welcome to the 101st person to log on to this site, but I'm not sure who you are ! I hope you find the contributions here helpful. Best wishes !

Comment by Annie on October 16, 2013 at 10:19am

Very wise advise, Alice. Thank you. I'm sure that it would be much healthier emotionally if I could just take a break from thinking about ways to manage my ffa.

Comment by PamW San Diego, CA, USA on October 15, 2013 at 9:32pm

Karen, when I started Plaquenil (generic) I itched like a crazy person, especially my hands and feet. I told my dermatologist right away and she said that it was a side effect of the drug and that I should try to work through it to see if it subsided. She really didn't want me to stop taking the drug. She suggested an antihistamine such as Zyrtec during the day and Benadryl at night. Perhaps that would help your rash. Costco sells a generic Zyrtec that is very inexpensive compared to the brand name.

Comment by Alice on October 15, 2013 at 8:16pm

Anne,a very wise Chinese physician gave me some good advice years ago, but it took me a long time to understand what he was saying. When I complained that I didn't understand why I wasn't getting any better when I was trying so hard, he responded, "Perhaps you should try softer." It works for me!

Comment by Annie on October 15, 2013 at 4:04pm

Alice, thanks for the yoga nudge. You must have read my mind. I was just thinking I need to get back to yoga. I have a couple DVDs that are so relaxing I sometimes fall asleep at the end, but I usually choose a fat-burning workout instead. I think slowing down is exactly what I need. My life has been so busy lately that I go until I crash instead of taking time to relax. I don't think I'll get control of this ghastly disease until I start nurturing myself.

Comment by Brenda, IL US on October 15, 2013 at 2:56pm

KarenGinny don't give up on plaquenil. Some generics cause a rash and others don't. When i was first prescribed it in 2010 for lupus i had a full body rash within two weeks. I saw a new doctor in 2011 and he said to try another generic or use the original plaquenil. I haven't had a rash since.

Comment by Alice on October 15, 2013 at 2:54pm

Anne, I swear by yoga classes for reducing stress and anxiety. I've been going twice a week for about 9 years. Its very affordsble with a membership at my local Y. It has also helped me with acceptance and an body image issues in general. The rooms are usually darkened, which is nice if you are worried about your hairline showing.

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