Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

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Comment by Debs on October 2, 2013 at 6:49am

100 ladies are now in the group.

In the summer of 2012 I felt totally alone with this condition, I found this group that Celia had just created and our numbers have grown. This is a lifeline for us all. Thank you to everyone for your support and advice. Thanks to Celia for setting the group up last year.

Comment by Celia on October 1, 2013 at 12:35pm

I meant to say that if I have forgotten anybody - sorry - please let me know !

Comment by sammi on October 1, 2013 at 12:30pm

Thanks Celia Sammi x

Comment by Celia on October 1, 2013 at 9:53am

Hello All - looking forward to seeing you on the 9th - hopefully...... Julie, Sammi, Paula, Polly, Caroline, Debs, Pam so far - please leave a message on my profile if you need directions.
Sammi, Terry - Sammi .......I will send you directions this evening for both train and car. Perhaps you could all confirm next Monday, please - that would be good. Thanks, Celia X

Comment by Debs on September 28, 2013 at 1:22pm
Carol I am so happy for you that wearing your new 'hair' is working out so well for you. I like sci-fi, i will keep an eye out for your new show.
Comment by Debs on September 28, 2013 at 4:17am
Rita i knew nothing about wigs before i had FFA bit i have been told by a lady that has had alopcia since she was in her 20s that wig technology has greatly improved in the past 5 years, so nowadays as long as you get a name brand wig you will be ok.

I have bought wigs that resemble hairstyles i have worn in the past so it is basically the 'old me' not a new look... I have gone a bit mad a have 2 that are long and nothing like any previous hairstyles. Last week i bought my usual Ignite wig by jon renau but have a slightly different colour so i am now feeling comfortable enough to enjoy changing my hair colour.

Good luck, i am sure you will look lovely if you do decide to try supplemental hair but if course there are orher options like headbands, wearing a fringe etc..
Comment by Rita - Canada on September 27, 2013 at 9:50am

Debs, Thanks again- the wig site www.wigs.com is very helpful in describing the different aspects of buying a wig. You're quite correct though in that one has to feel that in the end,you look like you. I remember the wigs of the 80's and how we'd buy these fake looking masses/ plop them on our heads and think nothing of it when wearing to an evening event or wedding. The pictures are really quite funny.

Comment by Alice on September 27, 2013 at 8:19am

Has anyone here tried spearmint tea? I've been doing ome reaerch and it seems to have antiandrognic properties, similar to Avodart and spironolactone. I grew new hair on the top of my head while on the spiro, but had to stop it because my BP was too low. I've been offered Avo, but was afraid to take it. I'm thinking spearmint tea might be worth a shot. It's also supposed to help face breakouts, which I've had problems with recently. Any thoughts?

Comment by Debs on September 27, 2013 at 2:38am

Rita a name brand wig like Jon Renau is good quality. Hand-tied, monofilament, lace-front, fully wefted are expressions you will see... I could explain the meaning on here but it will be easier for you to just look at www.voguewigs.com and www.wigs.com websites are they will have full explanations on there with diagrams. My personal preference is synthetic hair (because it is light density and you don't need to style it), lace front (because it means I don't have to hide my front hairline because it looks like hair is growing out of my scalp). A monofilament top also looks very natural but is not absolutely necessary.

I suggest you go back to the store. Look for a style that you like and that you feel comfortable looking back at you in the mirror. If you find a style that you can 'recognise yourself in' if that makes any sense then consider getting that one. If a wig looks like you that is more important than the 'construction' which as I say will be of a good quality with any type of name brand wig.

Comment by Polly UK on September 26, 2013 at 7:38pm
Thanks Rita, I have ordered a trial Toppik in dark brown from a UK website.
 

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