Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 601
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by sammi on October 1, 2013 at 12:30pm

Thanks Celia Sammi x

Comment by Celia on October 1, 2013 at 9:53am

Hello All - looking forward to seeing you on the 9th - hopefully...... Julie, Sammi, Paula, Polly, Caroline, Debs, Pam so far - please leave a message on my profile if you need directions.
Sammi, Terry - Sammi .......I will send you directions this evening for both train and car. Perhaps you could all confirm next Monday, please - that would be good. Thanks, Celia X

Comment by Debs on September 28, 2013 at 1:22pm
Carol I am so happy for you that wearing your new 'hair' is working out so well for you. I like sci-fi, i will keep an eye out for your new show.
Comment by Debs on September 28, 2013 at 4:17am
Rita i knew nothing about wigs before i had FFA bit i have been told by a lady that has had alopcia since she was in her 20s that wig technology has greatly improved in the past 5 years, so nowadays as long as you get a name brand wig you will be ok.

I have bought wigs that resemble hairstyles i have worn in the past so it is basically the 'old me' not a new look... I have gone a bit mad a have 2 that are long and nothing like any previous hairstyles. Last week i bought my usual Ignite wig by jon renau but have a slightly different colour so i am now feeling comfortable enough to enjoy changing my hair colour.

Good luck, i am sure you will look lovely if you do decide to try supplemental hair but if course there are orher options like headbands, wearing a fringe etc..
Comment by Rita - Canada on September 27, 2013 at 9:50am

Debs, Thanks again- the wig site www.wigs.com is very helpful in describing the different aspects of buying a wig. You're quite correct though in that one has to feel that in the end,you look like you. I remember the wigs of the 80's and how we'd buy these fake looking masses/ plop them on our heads and think nothing of it when wearing to an evening event or wedding. The pictures are really quite funny.

Comment by Alice on September 27, 2013 at 8:19am

Has anyone here tried spearmint tea? I've been doing ome reaerch and it seems to have antiandrognic properties, similar to Avodart and spironolactone. I grew new hair on the top of my head while on the spiro, but had to stop it because my BP was too low. I've been offered Avo, but was afraid to take it. I'm thinking spearmint tea might be worth a shot. It's also supposed to help face breakouts, which I've had problems with recently. Any thoughts?

Comment by Debs on September 27, 2013 at 2:38am

Rita a name brand wig like Jon Renau is good quality. Hand-tied, monofilament, lace-front, fully wefted are expressions you will see... I could explain the meaning on here but it will be easier for you to just look at www.voguewigs.com and www.wigs.com websites are they will have full explanations on there with diagrams. My personal preference is synthetic hair (because it is light density and you don't need to style it), lace front (because it means I don't have to hide my front hairline because it looks like hair is growing out of my scalp). A monofilament top also looks very natural but is not absolutely necessary.

I suggest you go back to the store. Look for a style that you like and that you feel comfortable looking back at you in the mirror. If you find a style that you can 'recognise yourself in' if that makes any sense then consider getting that one. If a wig looks like you that is more important than the 'construction' which as I say will be of a good quality with any type of name brand wig.

Comment by Polly UK on September 26, 2013 at 7:38pm
Thanks Rita, I have ordered a trial Toppik in dark brown from a UK website.
Comment by Rita - Canada on September 26, 2013 at 9:28am

Polly, There is a product available here that we can purchase from 'Sallys', called 'Toppik' which are fibers that you sprinkle over the roots and comes in a few colors.Then a little hairspray to secure it in place. There is another brand called 'Illusion' which is the same type of product.The 2 websites are:
www.toppik.com
www.illusionhairfibers.com

Comment by Polly UK on September 26, 2013 at 8:10am
I'm feeling so much more optimistic now my body seems to have accepted the Hydroxychloroquine. I've been taking 2 tabs a day for 6 days and no nausea or dizziness. Have been on it for 5 weeks in total but most of that only taking one a day. The inflammation looks a lot less to my untrained eye and shedding a lot less hair too. Hope it's still like it when I visit my dermatologist next week.
I'm taking turmeric daily and ordered the turmeric extra which Debs recommended - I've replaced one of my turmeric tablets with one of those.
I'm definitely feeling fitter and have lots more energy now I'm eating healthier and exercising more (3 classes a week).
I wanted to take multi vitamin and found a hair, skin and nail supplement from Holland & Barrett which includes Biotin and taking 2 of those daily.
I'm also still taking Ferrous Fumerate prescribed by my GP because a blood test organised by my dermatologist showed my iron stores were low.
I've decided not to have my roots coloured as frequently and found if I wear a beret or similar hat during the day that conceals my grey roots. Does anyone know of a good colouring pen I could use to cover my grey roots for when I go out to dinner etc in the evening?
Thanks to everyone on here for sharing things that have helped them.
 

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