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Comment by Rita - Canada on September 26, 2013 at 9:28am

Polly, There is a product available here that we can purchase from 'Sallys', called 'Toppik' which are fibers that you sprinkle over the roots and comes in a few colors.Then a little hairspray to secure it in place. There is another brand called 'Illusion' which is the same type of product.The 2 websites are:
www.toppik.com
www.illusionhairfibers.com

Comment by Polly UK on September 26, 2013 at 8:10am

I'm feeling so much more optimistic now my body seems to have accepted the Hydroxychloroquine. I've been taking 2 tabs a day for 6 days and no nausea or dizziness. Have been on it for 5 weeks in total but most of that only taking one a day. The inflammation looks a lot less to my untrained eye and shedding a lot less hair too. Hope it's still like it when I visit my dermatologist next week.
I'm taking turmeric daily and ordered the turmeric extra which Debs recommended - I've replaced one of my turmeric tablets with one of those.
I'm definitely feeling fitter and have lots more energy now I'm eating healthier and exercising more (3 classes a week).
I wanted to take multi vitamin and found a hair, skin and nail supplement from Holland & Barrett which includes Biotin and taking 2 of those daily.
I'm also still taking Ferrous Fumerate prescribed by my GP because a blood test organised by my dermatologist showed my iron stores were low.
I've decided not to have my roots coloured as frequently and found if I wear a beret or similar hat during the day that conceals my grey roots. Does anyone know of a good colouring pen I could use to cover my grey roots for when I go out to dinner etc in the evening?
Thanks to everyone on here for sharing things that have helped them.

Comment by Rita - Canada on September 25, 2013 at 9:22pm

Debs,Carol- I went out to look at synthetic wigs & the store really liked and promoted the Jon Reneau synthetic. I tried to find more info on wig support but came up empty on what I was looking for and that is the way the wig is made. she mentioned something about hand .... and what would you suggest for the construction of the wig, please & thanks?

Comment by Polly UK on September 24, 2013 at 6:35pm

Hi terry - thanks for the Regaine/Rogaine info. If it works I will be interested in finding it cheaper online as I bought mine in Boots!! I think I've seen it cheaper on Amazon?
I asked my derm if he thought it was ok for me to use it as it says not to if you are on drugs to lower BP and I take 3 different tablets daily. He didn't think much would be absorbed through the scalp so I should be ok....but I'm not sure if he thought I was going to try the women's 2% version so I am going to keep a check on my BP whilst using it just in case.

Comment by Jules UK on September 24, 2013 at 10:25am

I'm pleased that Regaine is helping many of you; is there anyone who hasn't had success with it? I'm afraid it may be responsible for my increased hairloss and after 3 months, there's no sign of it helping at all. I know it doesn't work for everyone so maybe I'm just unlucky. I emailed Dr Harries yesterday for advice. No reply yet. X

Comment by Debs on September 24, 2013 at 4:43am

Dee, I sometimes come up to Edinburgh, Glasgow and Aberdeen... If you are in/near any of those cities we can meet up for a coffee and chat. xx

Comment by Polly UK on September 23, 2013 at 5:02pm

I bought Regaine for men extra strength scalp solution on Sunday but reading on here I think I've got the wrong thing? As my inflammation is down at the moment I thought I'd try to thicken my hairline and see if it helps my eyebrows to grow back. I was having them tattooed last week but had to have a patch test first as I'm allergic to nickel so now have to wait a couple of weeks.

Comment by Polly UK on September 23, 2013 at 4:56pm

Hi Paula, it's interesting you are only taking one Plaquenil tablet daily and it seems to be working as I thought I had to take two a day for it to work. I'm struggling with side effects when taking two but no problems with one! I've been taking it for five weeks and my inflammation seems less at the moment but it could be Dermovate and/or turmeric helping too.

Comment by dee on September 23, 2013 at 3:06pm

I would love to be able to meet up with someone, anyone who has FFA. I'm on such a bundle of medication just now and feeling quite isolated. But I don't suppose there is anyone up here in the wilds of the Scottish Highlands. I hope you all have a productive and supportive get- together. Please post anything interesting that is shared. xxxx

Comment by dee on September 23, 2013 at 3:02pm

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