Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

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Comment by Celia on September 23, 2013 at 1:45pm

Hi Terry - are you close to London and if so perhaps able to join us for a get together on 9th October. e mail celiareeve@hotmail.com for directions if you think this might be possible. Best wishes !

Comment by Paula uk on September 23, 2013 at 11:01am
Hi Terry,
Thanks for the info, I take one plaquenil 200mg,I use clobestol foam shampoo each morning.I use Elocon steroid cream on my eyebrows and elocon scalp lotion on my scalp each evening.Of late I have reduced my use of the steroid cream and lotion as the inflammation seemed to have reduced considerably and I guessed it was from the plaquenil.so at the moment I am using them every 2-3 days.I'll keep a close eye on my scalp just in case.
Px
Comment by Debs on September 23, 2013 at 10:09am

Hi Terry, thank you very much for your info. I have never had much hair on my arms of legs, I have never needed to get my legs waxed for instance and use to just shave them once a week to keep them completely smooth. My eyebrows just fell out about 3 years ago - that said, I do have some eyebrow hair just not enough to look groomed.

At my age, 50 years, I have found that in the past 2 years I have only been menstruating about once every 6 months. However since July I have found I am back to menstruating once a month!!! There are 2 possible causes; I started juicing back in July and using Dr Weil's anti-inflammatory diet, I started plaquenil in March. I have also found that the skin on my body (arms/legs) is not dry any more and my hands look 'younger'. I think my improved diet is most likely the reason but maybe some other ladies have these symptoms that are using plaquenil.... whatever the cause I am quite happy with it. XXXX

Comment by Celia on September 23, 2013 at 3:42am

I have had an e mail from mobrsb - I haven't opened it - was not sure if it is from one of you or a spoof....if anyone emails me please refer to the get together in the title then I will know it is safe to open it - thanks !

Comment by Celia on September 22, 2013 at 8:25am

Thank you for messages re our get together. My e mail address is celiareeve@hotsmail.com for those of you needing directions. If you e mail me then I will send info, rather than here. Hope that's OK. So - the 9th October is the date and I hope that Paula can make that one ! So we are Julie, Sammi, Paula, Polly, Caroline, Pam, Debs and hopefully Heidi if she gets a message. Have a good rest of the weekend ! x

Comment by Caro UK on September 21, 2013 at 9:16am

Hello Celia. Thanks so much for the invitiation. Yes the 9th October is good for me as well. In fact it's perfect as I am not working that week! Really looking forward to seeing everyone again.

Comment by Pam on September 21, 2013 at 5:10am

I could do Oct 2nd, 3rd, and possibly the following week too, but will let you decide a date and then see if I can make arrangements to join you.

Comment by Debs on September 21, 2013 at 4:58am

Hello Celia, thanks very much for organising us UK ladies again. I can do the 9th Oct the other dates are OK for me too.

Comment by Celia on September 19, 2013 at 5:47pm

Hope also to hear from Caro ! Trying not to get in a muddle with this ! x

Comment by Celia on September 19, 2013 at 5:42pm

Hello - regarding our get together....my suggested dates were - 2,3,4,9,10,11th October - so far :-

Julie 3,9,10
Sammi 3,4,9,10
Paula 9, but best for her are Fridays - ie 4,11th
Polly 2,4,9
So at the moment the best date looks to be the 9th unless anyone has a better idea ? I hope that we can make this work. I don't know how to contact Heidi as she doesn't log on very often but hope to hear from Liz and Debs.
Best wishes !

 

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