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Frontal Fibrosing Alopecia
Information
This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.
Location: Dubai UAE
Members: 601
Latest Activity: Jul 8, 2023
Discussion Forum
Botox and FFA
Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Trying a new approach with CBD oil...
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Man with FFA. New member.
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Dermatologists who specialize in alopecia?
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
Comment Wall
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Comment by sammi on September 19, 2013 at 11:10am
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Hi Celia would love to meet up and I'm free all those dates except the 2nd of October. I have already met up with Julie and Terry at the Trafford Centre on the days of appointments with Dr H and it was very good to talk and discuss medications! Sammi x
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Carol & Debs, Thank you so much, I will do my research with all your info, have printed it out to carry w/me.
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Comment by Debs on September 19, 2013 at 3:30am
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Rita, I also use the wigsupport website for all of my wig info. You do need to buy name brand wigs, the ones that Carol has listed, there are some very cheap wigs on the market but I think if a wig costs the same as a pizza it will probably only last as long!... You don't need to spend a fortune on a wig for it to look natural. My preference is synthetics because they bizarrely look less 'wiggy' than human hair wigs. They are not too thick and you don't have to style them. Mine cost Ignite, Jon Renau brand £99 - Julia, Jon Renau brand £145, Stream, Ellen Wille brand £120 - Techno Cut, Gisela mayer brand £140, I have a human hair wig from Raquel Welch that was about £500 that I never wear because it is so difficult to style.
If you want to check out a good range of wigs look at
these online wig stores are in the USA and carry a huge line of wigs. NOTE you don't have to purchase from these sites as you may well find the same wigs cheaper somewhere else, I just suggest looking at the sites to see just how many lovely wigs are on the market.
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Hi all,Its hard to keep track of details I know I've read along the way but those ladies that have purchased wigs,what brands did you feel were of very good quality or do they all have high & low end quality.Thanks.
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Comment by Polly UK on September 18, 2013 at 6:58pm
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Celia thanks I have replied, hope you get it..
A general question regarding Hydroxychloroquine, has anyone found they're ok taking one tablet a day but feel unwell when taking two?
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Comment by Celia on September 18, 2013 at 3:35pm
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UK ladies - please check your mail - I am trying to get us together again for lunch and to solve this problem we have - it will only take us a couple of hours................
Suggesting these dates2,3,4, 9.10.11 October - if you let me know which of these dates you are free then I will try to make a plan to accommodate all. Looking forward to seeing you again ! x
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Thanks, Kath. I did suspect it was unlikely. X
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Comment by Kath UK on September 17, 2013 at 4:14pm
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Hi Jules - No I don't sleep in my hairpiece. The clips at the back would make it uncomfortable and I'm not sure if acrylic hair would stand up to being rubbed on a pillow all night. I believe there are wigs you can sleep in though. Maybe if you ask wigsupport they could advise you.
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Hi Kath, are you able to sleep I. Your hairpiece or must you remove it each night? I was told they could stay on for a few days but are they really that secure? Julie x
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Hi Pam - My hairpiece is like a little cap and mixes in with my own hair at the back and sides. It has three patches at the front (one in the middle of my forehead and one each side) which I use wig tape on and there are three little clips at the back which clip into my own hair. It's very secure and comfortable to wear once you get used to the idea. My own hair is cut in a short bob with a fringe which I brush back when I put on the hairpiece and which I can still brush forward so I can wear a headband or scarf if I want a rest from the hairpiece.
My hairpiece is from the Ellen Wille 'Hair Society' acrylic range and the piece is called 'Close'. My own hair is sort of mouse with some grey and some highlights and the hairpiece really matches in very well at the back and sides.
Don't be scared to give your wig a go - even just around the house. Think of it as a new beauty aid! Good luck with it. Hope this helps.
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