Comment

Comment by Polly UK on September 9, 2013 at 11:31pm

Hi, I felt fine taking one Hydroxychloroquine 200mg tablet a day for two weeks but after four days of taking two a day I started feeling sick and dizzy so as we're on holiday this week I've cut back to one and already feeling better. Has anyone else had this problem? I am also taking iron as prescribed and applying Dermovate but just doing it once a day for convenience while on holiday. I had felt ok with both of those for past month so it has to be the increased Hydroxy dose...
Liz, I have a mouth full of amalgam fillings, in some cases it's more filling than tooth!

Comment by Rita - Canada on September 9, 2013 at 8:42pm

Maddy, I recall you were taking the same med Doxycycline 100mg only twice a day. Also Clobetasol on scalp twice a day. Do you see any difference. i see my Derm tomorrow. Did you also have those scalp injections ev.8 wks.?Thanks.

Comment by Liz on September 9, 2013 at 12:28pm

Hi Ellen. I'll have to find out about having my fillings replaced. I have 3 which have been in my mouth for about 30 years!
I am allergic to nickel. I have also had bouts of eczema which flare up from time to time and is made worse if I jewelry x.

Comment by Annie on September 9, 2013 at 12:22pm

Liz, I also had silver fillings, but they were replaced gradually between ten and fifteen years ago.

Comment by ElleMN, USA on September 9, 2013 at 12:15pm

Liz, I had my nine amalgam fillings replaced with composite fillings in Dec 2011 because my dentist husband had come across one article mentioning a possible connection in all his research about LP. I'm still losing hair but I'd say my case is more on the mild side, so not sure if it's helped or not. I've also abandoned steroid shots and stopped using creams and ointments and shampoos. I'm just not sure what works and what doesn't so I'm just trying to stay healthy and simplifying things; I also couldn't afford all the treatments! If you can afford to have the fillings replaced you'll be happy with the results but be prepared for some tooth sensitivity while you get used to the new fillings. Do you know if you have an allergy to nickel? That's another trigger for my eczema that I've wondered about with FFA. I think I might just be more sensitive to metals. Hope this helps!

Comment by Pam on September 9, 2013 at 9:41am

Jules - I do totally sympathise with you. My holiday in Cornwall was badly affected this year by my increasing sensitivity over my hair loss. I was very self conscious in the sea about my balding sides, and windy walks were a nightmare. I wore a hat a lot, and twice it blew into the sea! Also my eyes seemed more sensitive to the salt water and got red and itchy, and my scalp seemed on fire at times, itching. It seems to have settled down more now that I am back.
I do have tooth fillings, not sure what is in them though!

Comment by Rita - Canada on September 8, 2013 at 7:48pm

Liz:I have many, loved/still do, my sweets. I've heard that some people actually do have them removed & refilled w/other kinder material. I wonder if any of the Derms/research has looked at that aspect.

Comment by Liz on September 8, 2013 at 6:18pm

Hi all. Jules I've been looking at the handybands from Seasalt. Do let me know how you get on with it.
Who on this site has amalgam/silver coloured fillings? I was reading something about the mercury in them causing hairloss and maybe causing lichen planus. Both my mum and I have several of these type of fillings.
xx

Comment by Jules UK on September 8, 2013 at 4:32pm

Hi all, feeling very mixed up at the moment.... Just back from a great week in Cornwall. But after using Regaine for about 3 months and taking Plaquenil for 6 months, my hairloss has accelerated considerably. Do I carry on in the hope that something may kick in? Hubby has hinted that a wig may be closer on the horizon. I'm trying to just get on with things as normal but so churned up inside! I've invested in some lovely soft buffs and circular carves from Seasalt. Even on still days, just walking moves the hair to show bald bits and there's barely enough hair to cover my ears anymore. Just feeling disbelief! Sorry, needed to offload! Thanks for being here! Xxx

Comment by Rita - Canada on September 7, 2013 at 4:26pm

Sigga-Excellent advice, wish I had done that but Derms should have come up w/this: taking a photo of one's frontal hair areas before a treatment(which are usually 3-6mths) & one afterwards.

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