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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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Linda - what did your eye check up comprise of ? I just read from a card to the nurse - was that the same for you and all others out there ?
Kath - thinking about you and hoping you can rally round and get positive again - sent you a message but not sure if you will have got it ! X
Kath, sorry you're feeling down, I think we all feel that way about ourselves sometimes with this condition. It's funny how every doctor seems to have a different strategy with this condition and the drugs we use. I just talked to my new dermatologist after he reviewed my previously done biopsy and he wants me to start Hydroxychloroquine, whereas my other derm didn't want to use it because of side effects he said were bad. My new derm said the side effects were minimal and rare. He said I should try it for 6 months to a year before we'll know if it's working. I've been doing nothing for the past year due to my old doctor giving me no hope, but now my new doctor says it's worth a try. I have lost a lot of hair in the front & sides and it's gotten worse in the last 6 months I think. Getting hard to hide it now but I'm not ready for a wig. I took my first hydroxy pill today and I hope I don't have the stomach problems, but if it does cause loss of appetite, I could live with that.
For the first time in a while I feel a wee bit down. Saw my dermatologist this week and she basically said I should stop taking the hydroxychloroquine (Plaquenil) because it hasn't worked for me. She said there were other immune suppressing drugs but they had potential bad side effects and were not proven to work anyway. I said I didn't want to take anything with a risk of bad side effects.
She said that I could continue with the clobetasol lotion and she didn't need to see me again. She said FFA tended to be self-limiting (I knew that already) but every case was different.
I'd be interested in hearing what other people's dermatologists say about how long you should take the hydroxychloroquine as I only took it for about 5 months. My dermatologist said that if it was going to stop the FFA it would have stopped it in the first few months.
Oh well. I guess that's my last treatment hope gone for just now - until they come up with a new medication.
At least I've got my pretty hairpieces. Think I'll go out tomorrow and buy a nice new pair of shoes to cheer myself up!
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