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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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Annie, are you using any topicals on your scalp or hairline? My scalp was very sore when I was using clobetasol. It got better when I switched to tea tree oil for the itching. All I use topically now is Elidel along the hairline and on my brows. I've been on Plaquenil for about 6 months, twice daily.
Annie, Thank you for the information about not using rogaine before or after coloring hair. I need to read all of the directions. I should not give advise without doing so. Sorry Terry. No wonder my hairdresser always washes my hair before she colors it.
Christiekd, I have a question regarding your treatment regimen if you don't mind answering. What is the Retin A for? Is it to keep the hair follicles open by sloughing off dead cells? I have some samples from my previous derm & thought I might try it.
Also, for those that have been using Plaquenil for a while. How long before the tenderness along the hairline goes away? I think mine is from the topical treatments because I never noticed it before my diagnosis. I've been on the Plaquenil for 6 weeks now, 1 x daily for two weeks to give my body time to adjust to it & 2 x daily for 4 weeks.
Terry, I color my hair & use a generic version of Rogaine. You should not have Rogaine on your scalp when you color your hair or use it for 24 hours after, probably to avoid irritation. I found this information on the leaflet in the Rogaine box. Skipping a few applications shouldn't affect the results.
Rita, I have been grain free the past month, except for one time I had some rice. I think I feel better without it for now, so I will stay grain free for the time being.
Thanks April so do you strictly abide by the no grains which I think is the most difficult part of the whole Paleo approach?
Rita, I am currently eating a Paleo type diet. I am kind of doing a combo of Paleo and Specific Carbohydrate diet. I am doing this to try and clear up some other issues I have been having, but also hoping maybe it will have some effect on the FFA? I have been doing it for about a month now. I have been on a gluten free diet for 7 years so going Paleo was not a huge stretch for me, but it is definitely hard. You have to cook EVERYTHING you eat, which I hate, but it can be done. It really is more of a lifestyle than a diet. There is a book and website called Elana's Pantry which is full of great recipes including muffins, breads, and even bagels! I am not a doctor, just someone who is suffering from multiple food intolerances and immune issues, but I really think so many things are related to diet. I'm not sure if the diet is helping the hair loss, but it seems it may have reduced the itching I experience a bit. Also I have lost about 8 lbs. without really trying which is great! I agree that Dr. Weil's diet conflicts with the Paleo diet, yet both are supposed to reduce inflammation. What it really comes down to, I think, is that if you are having any food intolerances or sensitivities you need to eliminate those foods to improve your health. The Paleo diet approach eliminates a lot of the most common food offenders, i.e. grains, dairy, soy, etc., so it seems to be a good place to start for many people. There are some good books that can help you get started. Dr. Loren Cordain is the founder of the diet and has some good books. I can't say I follow any one diet exactly, but just do what works for me. Listen to your body most of all. Good luck!
Hi everyone I haven't been on for a while! I stopped it coming through to my emails as there are so many on the website it was flooding my inbox! I hope everyone is well and enjoying this lovely weather, I wish every summer was like this.
Hi Terry-I have my roots colored by an excellent hairdresser. My doctor says it doesnt hurt the FFA treatment. I use minoxidil 5% and it doesnt affect the color. Hope this helps.
Rita, I have compared Dr Weil, Dr Fuhrman and the Joe Cross diet plans (however he used Dr Fuhrman to monitor his juice fasting) and the info on the CARF website... this all pretty much follows the same guidelines. I have not compared the paleo diet with it but basically I think if we eat food as it grows naturally and don't process it that is pretty much all we can do. I wish the medical community would experiment more with diets for all medical condtions so we could get really precise info. I am eating rice and quinoa as my grains and some gluten free oats for breakfast. Good luck Rita, this is very challenging. XXXX
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