Comment

Comment by Annie on July 11, 2013 at 5:11pm

Perhaps I should clarify my earlier post regarding Minoxidil. I should have said that it has worked great for the areas that haven't been affected by the FFA. Unfortunately, those spots are still bare. I have been able to regrow a lot of the short baby hairs around my face, which helps to cover up the bare spots. I use it on my entire scalp to thicken up the existing hair as well as on my eyebrows, which haven't been affected yet. As an added bonus, my eyelashes have gotten longer & thicker. Maybe the FFA will take longer to advance if there's more hair follicles to attack. One can always hope....

Comment by Debs on July 11, 2013 at 2:44pm

MINOXIDIL (also called rogaine and regaine) Hi Ladies, this is very interesting that the minoxidil is working for you. The first person that diagnosed FFA for me was a trichologist at the Belgravia Hair Loss Clinic in London. This was after my GP had told me I had alopecia but did not know what type! She told me to go back to my GP and ask for a scalp biopsy to get the FFA confirmed. I was supposed to go back to the trichologist and she was going to put me on a strong formulation of minoxidil but I did not go back and have been seeing dermatologists ever since.

How many of your ladies have used minoxidli ? Has it worked for you all?

Comment by Annie on July 11, 2013 at 10:57am

Terry, I have had good luck with the men's 5% Minoxidil foam. I have been using for 3 months at the recommendation of my doctor. I have regrown a lot of the fringe around my face and have new hairs about an inch long all over my scalp. I did have an initial shedding from week 2 through week 6 after I started using it. This is normal, and a good sign that new hairs are growing in and pushing the old hairs out. It's not easy seeing all those lost hairs on your bathroom counter when the last thing you want to do is lose more hair, but I honestly think that that Minidoxil is the only thing I've used since my diagnosis 4 months ago that makes me feel like I'm actually seeing some positive results.

Comment by Alice on July 11, 2013 at 9:22am

I am also bothered by lot by an itchy, sensative scalp. It sounfs weird but the thing that seems to calm it down best is drinking oolong tea. I read that it helps psoriasis and eczema, so decided to try it. I now drink it daily, hot and iced. For topical relief, I rub in some tea tree oil. Both can be ordered from Amazon at reasonable prices.the Clobetsol was too strong for me.

Comment by PamW San Diego, CA, USA on July 10, 2013 at 5:41pm

I have heard of the interlace system, but not sure if it is an option for me since my scalp is very sensitive and itchy. Not everyone of us experiences scalp discomfort. I think I am more bothered than most.

Comment by Jules UK on July 10, 2013 at 1:18pm

Thanks Debs, I'll look into it. Xx

Comment by Paula uk on July 10, 2013 at 12:42pm

Hi all,
You know ladies,I just don't know how I feel about this " thing" I have . Im just going along with what Dr Fenton recommends, hydroxychloriquine, prednosoline , clobestal foam shampoo, elocon cream and scalp lotion!I think I feel indifferent to the whole thing ...

Comment by Debs on July 10, 2013 at 8:20am

Jules you can buy generic cheaper versions of minoxidil online. I have not used it but I did check it out last year. Regaine is just a brand name, Boots chemist do their own version and so do a few other companies. Xx

Comment by Kath UK on July 10, 2013 at 8:04am

Hi Celia - I can honestly say that I do not wake up every morning and immediately think about FFA.
Of course, I have had several years to get used to gradually losing my hair and I've found that it's something I've now learned to accept.
My daughter - a young mother - has been diagnosed with a far more serious (and potentially crippling) auto-immune condition and is being very positive, pragmatic and brave about it and though she is a constant worry, her diagnosis helped put my problems in perspective for me.
I have decided to get on with my life and if people don't like what they see when they look at me - well they can look the other way!
I enjoy my wigs - they're fun, look good and boost my confidence but I don't feel I am defined by my hair.
I've decided focus on the fact that in many ways I'm blessed.
The bottom line - for me anyway is that I detest having FFA but I refuse to build my life round it.
Sorry to rant a bit. This support group is really good and supportive and my heart goes out to the ladies who are newly diagnosed. It's a tough time for you all, I know.

Comment by Jules UK on July 10, 2013 at 4:57am

Welcome Terry. Glad you've found us! We all support one another.
I'm putting together a list of issues raised in our discussions for the focus group meeting next month, but will run it past you before then for amendments.
Celia, the first thing I do on waking is make sure I pull my hair down over bald bits and try to make my thinning fringe reach over where the eyebrows should be. Can't imagine how my husband feels about the sight he faces each morning.... I'm still not examining my hairline closely; it's a form of denial ( alongside taking meds etc of course) that helps me cope. Going to price Regaine today but it might be too pricey.
Jules x

• ‹ Previous
• 1
• …
• 394
• 395
• 396
• 397
• 398
• …
• 507
• Next ›
• Page