Comment

Comment by Elizabeth W on September 2, 2020 at 9:00pm

Hi Annie,  I am not sure if it is psoriasis. This is what my primary care doctor thought it might be.  She prescribed Methylprednisolone that I took last week and she told to call her back if it did not improve.  She was going to do a biopsy.  I had what looked like mosquito bites on my left arm. they itch.  I have an appointment with my dermatologist later this month.  I still need to get back to her and see if I need to try to get an earlier appointment with the dermatologist.

Comment by AnnieMay on September 1, 2020 at 10:29pm

Hi Elizabeth, I'm sorry you're dealing with this. I don't have psoriasis but I have so many crazy skin issues from FFA it's depressing. This insidious condition is so much more than hairloss. 

Comment by Elizabeth W on August 26, 2020 at 9:29pm

How many of you have psoriasis?   About a month ago I started getting bumps on my arms that look like insect bites.  My primary care physician suspects it is psoriasis and has sent out a sample for testing.  I have a scheduled appointment with my dermatologist next month.  Does psoriasis go along FFA which is an autoimmune condition?

Comment by Elizabeth W on July 20, 2020 at 4:19pm

How many of you attended the Hair Necessities virtual CARF conference on Saturday?  What were your impressions of the conference?

Comment by CurlyK on June 25, 2020 at 6:01pm

CARF is holding a VIRTUAL half-day conference for all those with scarring alopecia. The date is Saturday, July 18 from 11am-3:30 eastern time in the US. There is a fee of $99 to attend (early bird fee good through June 30) but this supports the technology cost to put the conference on (CARF is a non-profit dedicated to supporting all of us with scarring alopecia). You can find more information and register on their website: http://www.carfintl.org/virtual-conference/

Comment by CurlyK on June 25, 2020 at 5:57pm

Comment by CurlyK on May 11, 2020 at 8:50pm

Hi friends! Sharing a free CARF webinar with you that will be on Facebook live and on YouTube tomorrow (Tuesday) night with Dr. Maryanne Senna on the Mind & Body Connection with Scarring Alopecia. If you've been anxious or stressed with all that is going on in the world right now, tune in to this great resource with me! 

https://youtu.be/otBteQzX_4Y

Comment by BubbaLu on April 7, 2020 at 6:31pm

My hair has never stabilized, it itches, but the hairline is not yet too far gone.  I attribute some of the control of my hairline to hydrochloriquine.  Three weeks ago I went to the pharmacy and I was told they were “out”.  COVID19 patients are using it to fight the virus.    Maybe that is more important than my hair, but it doesn’t make me very happy!  Has anyone else run into this?

Comment by illustr8r on April 7, 2020 at 2:42pm

I guess I’m stressed. I have 3 red pimples in my hair line. Just when I thought my hair had stabilized. This makes me very upset. I guess if I’m in lockdown no one can see me go bald!

Comment by Minter on April 1, 2020 at 7:54am

Hello to AnnieMay & everybody!  It is crazy times for sure now and I hope you and your loved ones are staying safe and healthy.  I was just thinking the other day of what will happen with the salons closed, to people like us and our 'problem hair' I know it is not really a priority in the great scheme of things at the moment-  but now that so many have closed down in the USA and other countries what can be done for those that have bonded hair or intralace systems etc... they need to be maintained or it can become pretty uncomfortable pretty fast and it is not really something that can be taken care of at home by yourself.  Anyway, again, Stay safe! Stay Healthy!  

• ‹ Previous
• 1
• 2
• 3
• 4
• 5
• 6
• …
• 507
• Next ›
• Page