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Comment by KarenD on February 13, 2019 at 8:28pm

Halfbakedwho,

You look wonderful I think!  As much as I study everybody's hairline that walks past me these days, I would not give your hairline a second glance as I think it looks great!  Your wonderful curly hair gives you a great boost and I think you should just rock the look you have for now!

Comment by Kandy15 on February 13, 2019 at 4:49pm

Halfbakedwho,

You have beautiful curly hair and I don't think anyone looking at you could detect that you have a hair loss problem.  I know that we will never have our hair from when we were younger and oh so carefree but your hair looks great!

Comment by Halfbakedwho on February 13, 2019 at 4:39pm

yeah well the side burn thing doesn't cut it really, it sort of looks like side locks, like I'm a religious freak. Am thinking of getting it straightened when I get home, and doing a headband for a bit...

Comment by illustr8r on February 13, 2019 at 4:28pm

Gosh @HBW I would kill to have that much hair! I understand how it is that “this” hair is NOT the hair I’ve known my whole life and the adjustment and adaption to salvage our look is an endless chore.

I think your curls and color are wonderful! Have you thought about having sideburns cut that you pull in front of your ears? It’s how I am able to manage a pixie cut. You wouldn’t need to go THAT short though. A curly shag? I think with a consultation with a good hair stylist you might be able to have a workaround to hide your loss for now. 

My baby fine flat  straight hair is envious of those bouncy curls!

Comment by Halfbakedwho on February 13, 2019 at 12:17pm

this is what I mean...

Comment by Halfbakedwho on February 13, 2019 at 8:51am

Hi Kandy Minter Claire Julia, illustr8r and everybody

Kandy - please don’t let your hair keep you from your life. I’m 53 as of yesterday, and there’s still so much to do, as I imagine there is for you! Can you imagine a man saying the same thing? Actually if this were a man’s disease it would have already been cured (duh!). I know it’s not the same for us, but some of these men go around looking just frankly scary (don’t take this wrong, but I find this especially true here in the States) and they take up all the space and time and walk around like they own the place. Okay so they do but still. 

Though I hadn’t been thinking about it until I got here - people at home are used to my intense hair- but my mom begs to differ... in her opinion, my hair is looking weird officially now. I was just describing to someone how my big curly hair is only helpful if I pull it forward, but then my mother complains that that looks weird too. Another option - wearing a headband to hide the front, but then big fat scary hair in the back that stands up. 

Am tempted to get the brazilian hair straightening again, and wear a chic headband. The dermatologist hates the brazilian straightening. Am wondering if I am going to need the bonded piece sooner rather than later, and let her shave my head partially (like you say Kandy) or maybe just going with the former.

In all honesty I know I’m just going to be indecisive and maybe just get my hair blown out as the least invasive option, until I go home at least. Then when I get home I’ll obsess in a different way ; ). 

I am just aiming for more or less normal, though actually looking nice would be nice too ; )

Comment by Minter on February 13, 2019 at 8:39am

2Dachsunds, you just made me realize that my own cowlick that used to drive me bonkers is gone forever also.  Now that I look back I see that I kept burning my forehead with the curling iron/straightener when doing my bangs, but I couldn't figure out why and it was because my hairline was disappearing but I didn't know it yet.    Anyway, I've tried using the ananda salve on my hairline, but the smell, which I love! bothers my eyes- so that is why I will give the oil a go, plus I want to start taking it internally- too many achy joints for the salve to cover haha!  

ClaireJulia, I am so happy to hear you are pleased with Lucinda Ellery, I hope life is good for you! 

Kandy15,  sending you hugs, I agree- this disease is the most mentally draining thing I've ever dealt with.  It sucks.  

Comment by Kandy15 on February 12, 2019 at 5:29pm

Claire Julia,

I'm so glad that you posted to let us know that you feel okay most days but life still isn't what it was before.  I wish that Lucinda Ellery had places close to me in Florida because I would definitely try the intralace system.  I found a salon that will do a bonded hairpiece but she said she would need to shave a portion of my head in order to bond the piece.  Then maintenance would be every 6 weeks.  

I am so sick and tired of how bad my hair looks. I'm exhausted just worrying about it all of the time.  I'm so sad because I had such big plans and dreams for my life when I retire in about 4 years.  Now I don't want to do anything, go anywhere and I can find no joy in my life.  I should be looking forward to spending time with my grandkids and taking them to Disney World but right now I can't even begin to think about it.

That's why I appreciate the ladies who let us know how they have gotten on with their lives using helper hair or wigs.  It gives me hope that I will be able to crawl out of this dark pit one day.  

Big hugs and many thanks to all of you brave ladies.

Comment by Claire Julia on February 12, 2019 at 2:15pm

Have not posted for a long time. Have had this horrid condition for 5 years. Tried everything and paid a fortune to see private consultants. I now have the interlace system and have stopped all medication. Life is not great but I don't have a horrid bald forehead and most days I feel ok. I am having a new system next week as its now 2 Years since I got my new hair from Lucinder Ellary. I'm excited To get my hair done. For me it's the only option.

Comment by Kandy15 on February 12, 2019 at 11:08am

2 Dachshunds,

I don't blame you for not wanting to lose your hair. I fight every single day to try to keep what I have left.  With bangs and a headband on windy days I'm okay for now but worry so much about what the future holds.  I'm taking a medication to suppress the immune system, put CBD oil on the hairline and have changed my diet as much as possible to an anti-inflammatory one with no gluten and very little dairy or sugar.  Also have changed all of my lotions, hair products, deodorant and make-up to Be Green products with no chemicals.  Just when I think I have done everything to stop this stupid disease, up pops a painful pustule on my front hairline this morning.  I don't have white or silver discs around my hair follicles but I do have little black dots around them and the area is swollen where the disease is active.  Damn!  I just don't know what to do any more.  It's exhausting and occupies my mind constantly.

   

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