Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 601
Latest Activity: Jul 8, 2023

Discussion Forum

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

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Comment by ElleMN, USA on June 30, 2013 at 9:19pm
Just wondering if anyone has had success with acupuncture?
Comment by Debs on June 27, 2013 at 2:20pm

Hi Rita, it does not look like I am wearing eyeline, it looks like I have more eyelashes than I actually have. The eyelash enhancement is much finer and the pigment is placed in eyelash line so it isn't noticeable and ideal to disguise hair loss. There will be practitioners in a major city like Toronto, I would check out wwww.heralopecia.com and ask the ladies on there if they can recommend anyone near you. It is a real art to do this so you do need to find a real pro. XXX

Comment by Rita - Canada on June 27, 2013 at 11:37am

Debs, What a wonderful idea for eyeliner. As you say, you must have a super professional to apply & I wouldn't know where to start as I am north of Toronto,Canada. If anyone else has had it done with success, please let me know. My sis had her eyebrows done some years ago but they are rather just too bold in color but she did choose it.

Comment by Debs on June 27, 2013 at 10:53am

EYELINER TATTOOS

I had my eyebrows tattooed in January and love them. This morning I had eyeliner tattooed because I can see that I am losing some of my eyelashes. The process was as follows:

Applied anaesthetic gel to numb the area.
That is left for several minutes.
Tattoo needle is used to prick the skin and more anaesthetic gel is applied so it can go deeper before the actually pigment is tattoed in.
The upper eyelids are done with eyes closed. It doesn't hurt and there was very little sensation.
The lower eyelids you have eyes open - BUT you look up and away so you don't see a tattoo needle coming at your eye it comes at you from an angle so it is out of your sight. The same procedure is done on the lower eyelid.

I hate injections and nearly faint when I have a blood test, I have a very low pain threshold and I can honestly say this does not hurt and you never seen any needles or tattoo equipment coming near your eyes.

I thoroughly recommend getting your eyelashes enhanced. I just had a subtle 'enhancement' I did not have a thick line of eyeliner applied. If I now lose my eyelashes I have this enhancement in place to mask the hairloss. It is a huge weight off my mind. The effect is very natural and not at all 'madeup'. I went to see my mother after I had it done and she loves it.

You need to ensure you have a very good permenant makeup artist to do your work. In the UK I recommend and go to Belinda Hayle in Chertsey, Surrey.

www.belindahayle.com

I had the work done at 10am today, I have no pain and no swelling at all. Am delighted. XXXXX

Comment by Debs on June 26, 2013 at 7:51am

Pam since you have not seen these folk for 15 years they will not have a clear picture in their head of what you look like, they too will have changed with time, weight/wrinkles/hair greying & thining... so I doubt that your hairline will be noticed. I am like Celia, I only tell very close family and a few close girlfriends, this is simply because I don't want to be in a position of having to educate people about FFA and alopecia when I just want to forget about it and get on with life as normal. When you see your friends I would just play it by ear. Enjoy yourself. XXX

Comment by Kath UK on June 25, 2013 at 6:17pm

Hi Pam - I hope you enjoy your reunion with old friends and relatives and I'd agree with Celia that probably nobody will notice any difference in your hair - they'll just be so delighted to see you again!
Even though I've actually lost two and a half inches off my hairline now, the only person who ever seemed to notice was my daughter who asked me one day why I had started to wear headbands.
We're all different and I take the opposite approach to Celia in that I now tend to tell friends and family, quite casually, that I've got a skin problem that's destroying my hair. I've found that if I am very matter-of-fact about it then people take their cue from me. Well - this approach works for me anyway. But like I said, we're all different and I've had this FFA for over eight years - possibly longer and have more or less come to terms with it.

Comment by Celia on June 25, 2013 at 5:03pm

Hey Pam ! My advice for what it's worth - is stay cool and say nothing. They will prob not notice anyway. Wait until you are ready - don't be freaked out because you have a social 'do'. I still have told only family - and actually - they say they don't notice. No big deal for them ! I have cut my husband's hair since we met in 1969. We are now 63ish. I think he would be panicking if I were to say hmmmmmmm looks a bit thin on top ! But he is supportive, if a little weary of me searching in the mirror every day ! And so - Pam - enjoy your time with your friends and family - DO NOT TALK ABOUT IT UNTIL YOU HAVE TO !!!!!! XXXXX

Comment by Pam on June 25, 2013 at 4:32pm

I am finding it a great support linking in to this group, it just echoes so many of my feelings and anguish over this condition.
I am off to Canada tomorrow for three weeks, to see old friends and relations who I haven`t seen for well over fifteen years. I am longing to see them, but also have a horrible thought that they will notice my vanishing hairline and say nothing...should I be the first to mention it??

Comment by Debs on June 25, 2013 at 11:38am

I wore my wig for over 17 hours last week at work... I honestly did not know I had anything on my head. There is no sensation from a wig, it isn't hot, itchy or anything else. 95% of women have an average size head, different wig brands can vary slightly but you have straps inside (like a bra) that you can loosen/tighten up. Like the other ladies have said please check out www.wigsupport.com for everything wig related.

Note: counter-intuitively synthetic wigs can look/feel more natural than a human hair wig. Synthetics maintain their style when washed and are a lot less hassle. Recommend a synthetic to begin with. XXXX

Comment by Alice on June 25, 2013 at 11:08am

Rita, I suspect that the reason derms are seeing FFA in "affluent" women is b/c they are the ones who seek out a specialist when they are losing hair. I believe that FFA is a lot more common than is generally thought and that a lot of postmenopausal women think it's just part of normal hair thinning that often comes with aging. Most of us will admit that we didn't notice it right away.

 

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