Comment

Comment by Susanne on February 9, 2013 at 3:06pm

Liz - redness.

Comment by Liz on February 9, 2013 at 2:59pm

How do I know if have any inflammation or not?
x

Comment by Susanne on February 9, 2013 at 2:51pm

Welcome, Simone and hi, everyone. Celia, I have to say, I've been better at reducing my wine intake, but I haven't stopped it completely. We have to have some pleasure in our lives. There are mixed messages about red wine as inflammation-reducing/inflammation-inducing. I'm trying to only have that glass with food. What a lot of people are saying about sugar fits with what my nutritionist told me about having to be sure I don't have so many sugar highs and lows - she thinks that's part of what got my system out of wack because I often eat breakfast, don't have a good lunch, but then eat again in the evening. I've never had diabetes, but my dad has had some blood sugar issues, bordering on diabetes and he's completely controlling it with diet and exercise. So I'm trying to be moderate in my sugar-intake (only small treats after having eaten something real), limit alcohol and then I'm still off gluten. I'm also eating some beef stock every day which I make myself (lots of minerals and gelatin, which is good for hair and skin.) My hair loss seems to have slowed down and for the past several days I've had no inflammation at all. I'm sorry if I'm repeating myself too much, but I just wanted to post an update. The tricky thing is that I've made quite a few changes, so it's hard to say what's helping, but it does seeem to be helping. Time will tell... All the best to everyone!

Comment by Simone NJ USA on February 9, 2013 at 1:13pm

Hi Celia:
I noticed a patch of hairloss at the let temple 1 1/2years ago and thought it was from stress. I didn't think much about it. Then last year Dec I noticed the right side temple starting to recede as well. In Jan I started to see the hairline receding. So I went to the dermatologist in Feb & was diagnosed with FFA. This has been very hard for me as I'm sure for everyone else in the forum. This is new to me so day by day I try to find strength to accept it...my eyebrows are still intact..and yes, lol, I would love to be in a sunny climate right now...lol...thanks for support..

Comment by Liz on February 9, 2013 at 9:51am

My mum reckons that the hormones we absorb might have a part to play. Those such as in the contraceptive pill and in the foods we eat. I'm a big milk drinker and I dont think this can be good and the stuff they feed animals before slaughtet would makybe make us wince if we knew the details. Does anyone have FFA more on one side than the other? The right side of my head is at least twice as affected than the left.Half my right eyebrow has gone too. In addition to this I have problems with other righthand areas of my body. My right eye, my gall bladder etc. Does anyone have gall stones? Also, a weird question I know, how many of us are left handed?
xx

Comment by Simone NJ USA on February 9, 2013 at 9:16am

Hi Debs: I'm new to this forum as I have recently been told I have FFA. I'm scared as concerned and always looking for more information. Right now I am able to get away with not wearing a wig & am interested in experimenting. I live in the US & wondered where you got your wig...or If you tried hair pieces to the from only? Thanks ..

Comment by Debs on February 9, 2013 at 8:39am

Celia, hi there, I have been back at work after my 5 week break so I have not been online for a few days... I have now been in the wig at work for a week, I was at work this morning and it is unbelievable that I can stand right next to someone chatting away and they are asking me where I had my hair done!!!! PJ, I did not have any problems with my health at all in the run up to getting FFA, I did not have any stressful events either... when I noticed the initial recession on my temples I just thought it was the menopause starting and part of the ageing process. It is so good that there are now 38 of us to share info with. Good on Celia for starting this group up.

Comment by Alice on February 8, 2013 at 7:30pm

Susanne,

I sent you a message but am not sure how it works. Did it arrive in your inbox? I'm interested in who you see at UNC.

Alice

Comment by PJ - MN, USA on February 8, 2013 at 7:17pm

People have mentioned stressful events (health/loss of family member)near the onset of their hairloss. Did anyone have any major health events as a child? Just thinking that maybe our immune system got whacked out early in life and as we age, these auto immune things start popping up. I had pneumonia and scarlet fever as a very young child and I think I had allergies issues early on too. I'm sure stress can play into this disease too. Everyone reacts differently to it. I just can't think of anything that stressful that took place just prior to the hairloss. There has to be more than one issue here. Sleep depravation can do alot to a body too over years. It could be some preservative/chemical we injested years ago that has slowly attacked our bodies. Many of us in my age group (at least in the US) I think lived on boxed, frozen, processed foods growing up. It was popular to have these easy to fix meals when all our mothers went to work. There wasn't the time to fix foods from scratch. Cancer loves sugar, so who knows what else it does to your body. Just a few rambling thoughts - thanks for listening!

Comment by Jules UK on February 8, 2013 at 12:20pm

Liz,that's interesting about your Mum, and reassuring that it sounds as though her FFA has burnt out.
I've been to see my homeopath friend today and been prescribed silica tablets. So let's see if anything comes of this...... It is a very holistic approach, looking at life history, major events send matching them with other ailments. Building a personality type and then choosing the treatment for this particular condition. So presumably, silica may not be the choice for all FFA.
Suzanne, the 5:2 diet is big over here at the moment. It began with a TV programme on research into how our bodies react to fasting and it's benefits. I'll try to find a link to it and post it later. I think it's properly termed alternate day fasting. X

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