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Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies 4 Likes
Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue
Started by NorthCarolinaMama. Last reply by tcasal Nov 2, 2022. 1 Reply 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
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Hi Alice - you're in Durham! Wow. I'm new to this and am not sure how the friend request thing works here, but I'll sort it out. Who's your dermatologist?
Susanne,
I have been lurking in this discussion for a while and just joined today. I am also in Durham w/ FFA and sent you a friend request. I hope to chat w/ you soon.
Alice
I had time today to check out information relating to autoimmune disease so I could relate that to your discussion. I came across a website www.sarahwilson.com.au that describes this persons journey combating autoimmune disease. As it turns out I have recently ordered her book "I Quit Sugar" purely because I think I need to cut down sugar, and didn't realise this was the same author until I looked further through her website. While this isn't necessarily related to FFA (and FFA isn't mentioned) there seems to be some similarites about some of the symptoms everyone has talked about in these discussions and certainly links to theories about inflammation, gluten free and autoimmune disease. I thought you might like to take a look at the website as I found I could identify with it in regard to what's happening to my body at the moment. If you get a chance see what you think. Robyn
I also am following these discussions with interest. The gluten free diet is certainly worth a try but I need to wait a few weeks. I think breakfast is the easiest because there are lots of oat,rice &/or corn cereals, like Pam said.
I am studing the anti-inflamatory diet and stress relief as I
had a heart attack 6 yrs ago, have severe arthritis and was recently diagnosed with PTSD after finally seeking answers to past stress .... so sounds like I am falling apart (I really am not and I count my blessings that I am still pretty healthy) but my point is: stress & inflamation have been definitely a part of my life, so I agree with it affecting the auto-immune system.
There is lots out there about the anti-inflamatory diet, like Pam suggested Dr Weil and others - do a search. I do know it is very important to cut out white flours, rice, pasta (brown and whole grains are OK)and processed foods, especially sugars. Lots of fruits & veggies and I would think, Pam, that red white and even dark chocolate is good because they keep recommending them for a healthy heart. Also coffee and tea. It goes on & on.
Jules, what is the 5:2 fasting regimen? CJ- I wouldn't give up wine quite yet - and I have no intention of giving it up forever. Frankly, I think you need it when you're going about making such major changes. I do think it takes a bit more than three days off gluten. I've been off for just about a month. My skin has cleared up significantly. I had been getting these middle-aged breakouts, especially on my forehead. I used to have strange itching on the top of my shin, which is gone. Occasionally had some sore spots in my mouth. Gone. And my moods are much, much more even. That said, while my scalp inflammation is down - I don't seem to have the red bumps right now - there is still a bit of inflammation and soreness in a couple of spots. I do think I'm losing a bit less hair, I don't have unrealistic expectations that this will magically come to a screeching halt, but I'm trying to be hopeful.
Hi ladies,
I'm reading with interest the comments about gluten free and particularly stress. When I had my first appointment 2 yrs ago with my specialist she asked me if I had experienced any particularly stressful events as she said it is reported stress can trigger the condition. Often we don't know how our bodies handle stress and I don't really think I have any more stress than some other people, however I had been going through some major life changes and situations the previous couple of years which I believe did create more stress than usual for me. My son also got married (which can be a stressful time one way or another). If I really think about perhaps a 5 year period before contracting FFA it was full of a lot of stressful events which are mostly part of life (including deaths in the family) that we often have no control over.
So maybe - if you put together emotional, environmental, hormonal and dietary stresses on our bodies they might impact on some people like ourselves by producing FFA. While this doesn't give us necessarily a treatment for cure it might give us some insight into changes we can make - like diet, that might help us. It sounds like some of you are having success with gluten free and in the last year I have noticed that milk products don't agree with me so I am trying lactose free milk etc. I think I'll try cutting down or out wheat also and see how that goes. Who knows it might help the hair condition too! Here's hoping. Love reading this conversation thanks to everyone for their ideas. Robyn
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