Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: on Thursday

Discussion Forum

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by anettemandell on Thursday. 9 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

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Comment by PamW San Diego, CA, USA on September 18, 2012 at 7:32am

My derm knew it was FFA as soon as I told her about the eyebrows. She called it Post-Menopausal Front Fibrosing Alopecia - and doctors do believe that there is a hormonal trigger. Chris, I had a hysterectomy but my ovaries were left. That's why I was never sure when menopause started -- but I have to say that my hot flashes were really, really bad this year.
Also, every one of my siblings and my parents have or had autoimmune diseases - diabetes, Chron's, and Pemphigus. I thought I was going to be lucky. I am an ex-smoker but I don't really drink - only an occassional glass of wine.

Comment by Debs on September 18, 2012 at 2:43am

Hi Ladies, I am 49. I noticed that my eyebrows were falling out (and not growing back) about 18 months ago. I had my eyebrows tattoed last year, I still have a little eyebrow hair but not much. I have not gone through the menopause yet, however I only menstruate about 3 times a year so I am heading that way. I have not heard of anybody having FFA that is in their 20s or 30s... so maybe it is linked to hormones changing as we age..

Comment by ChrisC. Chicago, IL on September 18, 2012 at 12:34am

Hi all,
I'm 57. . . started noticing the lack of eyebrows two years ago. Had a hysterectomy when I was 46. . . I had my ovaries out as well. I was wondering if that had anything to do with it, but some of us are just going through menopause so that's not part of the equation. hmmmm. . . Live in an urban area (Chicago), don't smoke, drink in moderation . . . maybe it is all the diet soda I consumed over the years!? :-) There is a history of some conditions in my family that are thought to be autoimmune . . . Vitiligo, ankylosing spondylitis, eczema. Not sure if that is related, but wonder.

Comment by CJ- Christine from Ottawa Canada on September 17, 2012 at 10:26pm

I am 52.. literally going through menopause at the moment. hot flashes.. missing periods etc.. cranky too.

Comment by PamW San Diego, CA, USA on September 17, 2012 at 7:50pm

I am 55 and noticed my eyebrows and hair loss in March of this year. I got the official diagnosis in July. I don't really know when my menopause started - it seems like forever.

Comment by PamW San Diego, CA, USA on September 17, 2012 at 7:48pm

Comment by PamW San Diego, CA, USA on September 17, 2012 at 7:48pm

Comment by KarenGinny - Iowa, US on September 17, 2012 at 6:18pm

I am 47 and have been dealing with this for about 2 years now. I'm not in menopause yet but probably heading that way.

Comment by Heidi Short UK on September 17, 2012 at 4:44pm

I'm 48 and I was 43 when I started going through the menopause. It's early I know, as my sister who is 3 years older than me is still having periods and she is 51 now, I haven't had one for 5 years! I thought I had early menopause because I smoked up until I was 43, but now I think perhaps this is all connected!
Mairi I looked up the Rosa monkton interview and I agree it looks like she has our problem, I'm not on twitter either so I can't check if she has written anything, I looked on the internet with her name but I didn't find anything.

Comment by MairiM on September 17, 2012 at 12:55pm

What are your ages? I am thinking that I might be very much the oldest (I am 66), but I have had this disease probably less than two years like the rest of you.

 

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