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Comment by illustr8r on April 20, 2018 at 7:41pm

I have been putting Latisse that use to save my eyelashes on my brows (after I do my eyes). They have been growing in-not like "real" brows but they help the micro bladed brows look more real. My eye dr. told me that Latisse will becoming out with an eyebrow formula.

I went to the Derm on Monday and...I have new growth! I've gained a 1/4 inch! The area where she did the biopsy has filled in. The only explanation...castor oil. She said that I'm the third patient that has found relief and positive results with castor oil and she is going to investigate it further. Will what I have regrown stay? That is the bigger question. Wax and wane... I'll keep my fingers and toes crossed.

Comment by Minter on April 19, 2018 at 8:26am

@Plf, Glad to hear the wedding went well!

As far as brows, I'm not an expert or anything about microblading- but if done correctly I don't think it really should cause scarring.  

Though I will say, because of my horrible thick bumpy FFA skin my technician said she is not going to do the microblading next time as it all just blurs anyway and will do a "powder" brow. I also still have some brow hair and I am thinking along your line, that I need to do something sooner then later to make sure I keep what brows I have left! I also use brow powder as if I don't, even with the brow hair they look shiny so a bit of powder neatens them up.  

But again, I still LOVE my brows and I am very happy I had them done! 

Comment by Minter on April 19, 2018 at 8:16am

Up and down, up and down- yes that is life with FFA @ Halfbakedwho! It stinks that you are living life away from home for some time yet, hopefully September will come soon for you and all will be calm again for you and your hair- PS, love your latest spelling of Clobetasol ;-D 

Comment by Plf on April 18, 2018 at 7:26pm

• Hello lovely ladies..well made it to the wedding without any visible further eyebrow or hair loss...I'm still making deals yes even preying..that the disease has halted..yes again deniel.  As I said before no drugs, but now considered topical Minoxidil for eyebrows to prevent further loss..but then I think arrrgh what if by applying product I irritate the area and I lose more eye brow.
• Worried that if I microblaxed eyebrow s that eventually area will be scarred and even microblading won't be an option.  Thanks all and I hope today is a good day for all

Comment by Halfbakedwho on April 18, 2018 at 4:50pm

Oh thank you both, and Minter - I am up and down with this. I agree, let the damn hair all fall out, be done with it! But no, we will go with continuous creeping crud as a « look ». After a week of religious (prayers included) application of Clobéstasal 2x/day, the red dots are  no longer visible. 

I am living a pretty crazy life these days, and I hope it will calm down possibly next September. I spend three days a week away from home. Tonight, in another Airbnb. That’s neither here nor there, but... does my hair dislike travel? Or maybe my hair prefers to never be home? It’s like trying to figure out what my cats want, though that’s actually easier (they want food, duh). 

I only write on this board at the end of the day when free-association is in overdrive  (though it kind of always is). Now the question of course is ... how does my hair feel about this? Or more specifically, how does my scalp feel? Apparently, inconsolable... alas. 

Comment by Minter on April 18, 2018 at 9:35am

@Plf, yes, yes- no cure, could be worse, have to keep on movin' on as they say!  But saying that, we all know it doesn't mean that life with FFA doesn't just suck at times :-(  

If it was just the hair or just the skin problems it might be slightly easier to deal with, but why does it have to be both and then on top of that have to have bizarre untreatable symptoms of both hair and skin, ugh.  

Comment by Plf on April 17, 2018 at 8:52am

Hola Minter, halfbakedwho Etal...no drugs, slow loss of hair and eyebrows..got excited about underarm hair growth after years of shaving, no arm hair..no drug therapy..value my liver..yes will have to consider a wig...have messaged people that were on the site 10 years ago, they don't respond...so my conclusion there is no answer..no cure, could be worse..we just have to move on..that's not to say I'm no angry, sad  & very bloody annoyed..life sucks.. but I'm alive...brave tonight but in a mess tomorrow, sorry FFA friends it's our curse

Comment by Minter on April 17, 2018 at 8:30am

@Halfbakedwho, you aren't alone. It is so frustrating, I mean really frustrating and I am using frustrating as I am being polite and don't want to use the words I really want to use to describe this horrible disease and what it does to our confidence and well being let alone what it does to us physically.

I've said it before, this slow incessant creeping hair loss is so incredibly maddening, I sometimes wish it would just all fall out and then I'd be done and that is that, I have no hair, deal with it and get on with life instead of this patchy thinning mess that I have to figure out what to do with every morning noon and night to look "normal".  

One of the worse things about what is happening to us is not knowing what causes it, how to make it better and having no options except to just go on and maybe try a cocktail of different drugs and treatments and hope for the best and our hair will come back which never seems to happen or do nothing and hope for the best which also never happens or do something in between and get the same results.  

@Halfbakedwho, I hope you can get back to acupuncture, it should help with the inflammation at the very least, whatever they do with those needles is awesome!  and I am agreement, what is the point of a painful biopsy at this stage for you.  I hope between acupuncture and western medicine you can find a treatment plan that works for you- I don't know french but I will now butcher the language and say bonne luck to you my FFA friend!

Comment by Wyobalance on April 16, 2018 at 9:54pm

A reminder CARF is having their patient conference in Philly

June 9th & 10th with a reception Friday evening June 8th.

This site gives you all the info plus registration options:

http://www.carfintl.org/patient-doctor-conference.php

Comment by Halfbakedwho on April 16, 2018 at 9:31pm

THere’s a hook, and I’m off it? Where do I find it? Should I get a hook tatoo? Defnitely off whatever hook I suppose. Bed is a good idea. 

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