Comment

Comment by Jen on May 16, 2014 at 12:16pm

I know exactly when I started FFA. It was one month after my husband's death I noticed two round spots one by the widow's peak and the other behind the right ear. There was a third tiny spot by my right temple. I did nothing for 8 months thinking it would come back. After 8 months I showed it to my derm  who diagnosed and injected immediately. Within a week, I lost my entire hairline in the injected areas. About one inch. Then later I lost around the ears. I also have a dent in the right temple. I cover it with hair that I pull forward. I do not want to take any drugs internally since my family have a history of several life threatening illness. Since the injections are causing dents and the hair is falling out anyway, I will not be seeking continued treatment. I am trying to concentrate on hairstyles to disguise the choppy hairline until I can no longer disguise it.  I am interested in hearing from anyone who have used hairpieces effectively.

Love to all you brave girls,

Jen. 

Comment by MJ on May 16, 2014 at 10:32am

April, that is my situation exactly, but I think a very stressful episode caused a speedup which prompted me to notice it. And I wonder if now that I have changed my diet, health and no longer feel anxious, it has slowed because of that, rather than the drugs. Would really like to get off drugs as quickly as possible before new health issues arise from them. MJ

Comment by April on May 16, 2014 at 10:07am

Rebecca, I haven't taken cyclosporine, but I've seen it mentioned in the recent, large study that was done on FFA. They said it was effective, slightly less so then finasteride I think. Did your doctor say how long you would be on it? MJ, I am wondering about burn out too. If it exists and how long does it take! I just went through some old photos of myself looking at my hairline. I can see the beginnings of the hair loss 5 years ago. It has just gone so slow for me that I didn't even know it was happening for a long time. Now I'm wondering if the treatment I am doing is actually helping or if my hair loss is just really slow anyway...

Comment by MJ on May 14, 2014 at 5:34pm

Me too on the hairline obsession! In fact, I saw a woman just today in the market and tried to keep sneaking glances at her! Meme, your comment prompts me to ask about your 10 years of FFA. I have heard so much that the condition will reach a point of burnout. I had my derm follow up appt. last week and was told I was "stable." Based on a review of the photos from my first visit in January, both docs seemed to think I had some growth in the non scarred area. I would really like to hear some cases where burnout has been reached and on average how long it took.
MJ

Comment by Meme on May 14, 2014 at 5:09pm

I know what you mean. I am constantly looking at womans hairlines. I have been tempted sometimes to approach them for a chat but have never had the courage. I went for nearly 10 years without knowing what my condition was so maybe they are in the same situation.

 

Comment by Jen on May 14, 2014 at 3:12am

Hi Pam,

I do the same thing. I am obsessed with looking at hairlines. I see so many women with high hairlines that  I wonder if they realize that they may have FFA. Are you still happy with the small hairpieces?

Comment by Pam on May 14, 2014 at 3:06am

I was out at an event yesterday (an auction actually!) and noticed TWO women in the crowd with noticeable FFA.

I know that my sensors are out to recognise it, but it does make me wonder if it is getting more common. Do other people see it too?

(I should be paying attention to the auction prices, but can`t help looking at hair conditions!)

Comment by Mary on May 12, 2014 at 7:19pm

Thanks Brenda for the welcome.

Comment by Brenda, IL US on May 12, 2014 at 4:30pm

Hi Curlytop!  Sorry about your FFA diagnosis but welcome to the group.

Comment by April on May 11, 2014 at 2:45pm

Welcome Curlytop! You will find a lot of support and information here. Post any questions you have, there are many knowledgeable ladies here: )

• ‹ Previous
• 1
• …
• 284
• 285
• 286
• 287
• 288
• …
• 507
• Next ›
• Page