Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Nov 25, 2024

Discussion Forum

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

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Comment by Jules UK on April 24, 2014 at 11:09am

Hi Jen, the hairpieces I've ordered are fixed with wig tape but it's similar to a wound dressing apparently, allowing the skin to breathe so the hairpiece can stay in place for prolonged periods.

Comment by Jen on April 24, 2014 at 11:08am

Liz,

I just checked the Trendco site and saw Vesta. Is this the one you use?  It looks like it would do the job.  I will see if I can get something like that here. thanks so much.

Comment by Jen on April 24, 2014 at 11:01am

Hi MJ, It is a relief that I do not suffer from the symptoms but at the same time I cannot tell when I need to see the doctor.

Liz, Are the clips hard on your hairline?   Does your piece look like bangs or some other types. I live in Canada and will go to the hairpiece shops here. I purchased some fake bangs at the mall but they did not match so I believe that I need something better.

Comment by MJ on April 23, 2014 at 4:19pm
Jen, inam like you as I have no symptoms either. I am very thankful for that, however it is impossible for me to tell if I am active or not. I was wondering how the front hair pieces work foe someone with fine hair...seems like clips would be hard to hide.
MJ
Comment by Liz on April 23, 2014 at 4:01pm

Jen. I have a hair piece which I bought from Trendco for about £50. It clips in and covers where my hair has gone. I love it! I can forget I have it in. It blends in with my hair. My son said to his friend last week 'Look at my mums new wig' and his friend said 'what wig'. It does exactly what I need it to do. x

Comment by Jen on April 23, 2014 at 2:45pm

Hi Jules,

Thank you for your reply.  Would I be presumptuous to ask if you can post pictures of the 2 hairpieces before you attach them? I am thinking that pictures after you attach them is too much to ask.  It would be a really good thing if we can figure out a solution to the hairline so we can feel normal again.  For now, I may just need to work on the edges with small hairpieces and clever hairstyling. I am not ready for a wig.

 

My FFA has absolutely no symptoms. No itch or pain or inflammation. I just lose the hair in the shower.  Sometimes  I may see 4 or so baby hairs on my desk which look like the ones on my hairline. 

Comment by Jules UK on April 23, 2014 at 3:32am
Jen, I've ordered 2 hairpieces just as you describe. They're from Pam's hairdresser in Cheltenham but they're not ready yet. They should be OK to leave in situ and survive washing, drying, swimming etc.... That's the plan anyway. I'll let you know.
Re the posts about how to tell when FFA is active, I find that the "doll's head hair" appears plus some mild itching or that "crawling" sensation occurr. I have it at the moment and my front hairline has receded by about a cm in places. Looking a bit chewed! Hey ho!
Comment by Jen on April 22, 2014 at 6:08pm

Hi Everyone,

I was looking on line at the lace hairpieces for sideburns and wondered if this (cut to fit)  would be a solution for areas around the face where the hairline has receded. I am also wondering if anyone has tried any small hairpiece attachment and was satisfied. 

Warm regards,

Jen.

  

Comment by Kath UK on April 22, 2014 at 5:25pm

Debs - I've been following your eyebrow tattoos information with interest as I'm now thinking of having it done. (I find that penciling in my eyebrows every day and checking all the time to make sure they are OK is a real bore).  You seem to have had a great success with your tattoos but there's no way I can get to your lady in Chertsey so I guess I will have to look around Edinburgh and see if I can find somebody good up here.  How long did your tattoos last?  Did it hurt and do you know if there is any qualifications that I should look for in a semi-permanent cosmetic tattooist?   I'd be really grateful for any info.

Comment by Debs on April 22, 2014 at 3:43pm
Very happy, had my eyebrows topped up this morning, had semi permanent makeup last January, still looked nice but the tattoo fades a little and you do need to get them topped up. I want back to the fantastic Belinda Hayle in Chertsey, Surrey. She has worked wonders again. Thoroughly recommend Belinda to any ladies that want to stabalise the appearance of eyebrows/eyelashes. It's a huge confidence boost.
 

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