Comment

Comment by Anne Louise on March 29, 2014 at 8:47pm

I have been reading a lot the past few days since my conference and it seems to me out gut is the cause of our problems but also can be the solution. So much of our immunity comes from our gut. Antibiotics wipe out the good bacteria that are essential in maintaining a healthy digestive tract. When it becomes too permeable, bad stuff can get into the bloodstream...the result of a leaky gut. I don't know enough about probiotics to recommend a brand or amount yet, but I'm sure someone out there does. I am fascinated by all of this and will continue to study and share. So far everyone that has responded to this thread has been on antibiotics in the time leading up to their FFA diagnosis. Are there any of you ladies that do not have an antibiotic history?

Comment by PamW San Diego, CA, USA on March 29, 2014 at 12:09pm

I am going to jump on the bandwagon. I don't remember dates, but if had a lot of urinary tract infections and sinus infections and took antibiotics several times. Is this a question for Dr. Christos? Could someone reach out to him?

I would also like a recommendation on probiotics. And, who is taking duasteride? I need info.

Comment by Mandy on March 29, 2014 at 9:57am

Hi C my GP told me that he thought that and infection/virus I had in the December which I struggled to get over May have triggered the FFA... He explained that the body had been fighting an infection/virus and the when I was over it my body still thought it was there and mistook the make up of my hair for the make up of the infection/virus??? Who knows x

Comment by Celia on March 29, 2014 at 5:45am

I wonder ?  I have always felt my FFA was triggered by an illness - severe double pneumonia from which it was touch and go for a while - I had a lot of anti-biotics and X rays and took many months to recover - after this my hair began falling out steadily and I was told it was because of being so ill and having lost so much weight. Then 10 months later the inflammation began followed by The Diagnosis.  Can anyone recommend any particular probiotic ? Thanks.  Is there anyone else who feels that medications have triggered their FFA ?

Comment by Maddy, California, U.S. on March 28, 2014 at 4:26pm

I agree. Really interesting comments about the probiotics, infections and antibiotics. I just saw several similarities, so wanted to speak up. First, when I started going through perimenopause, my skin became very oily and I started to have severe acne breakouts...almost like cysts on my face. I was on Amoxicillin for a couple of years. I think my FFA was definitely triggered by a medical condition....while not an infection exactly, I got Influenza really bad the year before my FFA started. It literally took my lungs months to recover (probably close to having an pneumonia). Finally, I actually thought to myself the other day how much better my FFA seems now that I eat an Activia yogurt every morning regularly (for about two months now). I have MUCH less hair shedding. I wonder if we are onto something?

Comment by Jules UK on March 28, 2014 at 4:01pm

Really interesting comments about probiotics.  Does this mean that if I make my own yogurt, it may help? Or is that too simple?  I've just heard from Nottingham that I've been randomly selected to take part in the research into psycho-social affects of alopecia.  My appt is on April 8th.  The Dr sounds lovely. Has anyone else opted to participate?

Comment by Annie on March 28, 2014 at 3:47pm

Anne, I also had a severe ear infection a few years ago.  I took two rounds of Amoxicillin, then ended up having to take Zirithromiacin to clear it up.  I've always wondered if the perhaps the infection triggered my ffa since I'd rarely been sick in my life up to that point.  Regarding antibiotics, I've always had oily skin, and have taken more rounds of antibiotics to combat acne than I can count.  I have been taking probiotics for about three months and have started making kefir, which has natural probiotics. 

Comment by Anne Louise on March 28, 2014 at 11:48am

MJ wouldn't it be great if all we had to do was take probiotics and we could cure FFA?! Ive been taking one on and off since I started Doxy a month ago. After learning more about them I plan to research some more and figure out the best one to take. As far as I can tell, there is not much harm that can come from taking probiotics and there could be a ton of benefits.

Comment by MJ on March 28, 2014 at 11:26am

Anne, that is very interesting. I had taken a bunch of rounds of antibiotics in the year before my FFA seemed to have started. I also took lots of flucanazole to prevent and treat subsequent yeast problems. One time, in the month before I really noticed my balding area, i was actually on a two week course of flucanazole, which I subsequently discovered has hair loss as a side effect. Since drastically changing my diet and reducing stress, I feel like alot of my gut problems have resolved. Interestingly, in the year before my dx I was also taking a probiotic called VSL #3 which is typically given to crohns and ulcerative colitis patients. My colorectal doc told me to take it for my intestinal issues. I stopped taking it once dx with FFA because I got leery of anything I had been taking, including my prescription nasal steroid for seasonal allergies. I just wasn't sure what might have been a trigger. I think I may reconsider the probiotic. Interestingly, the thing that seemed to resolve my bowel issues (tmi) was the slow release iron tab my derm has me on. It is so hard to know what to do...but the one thing I am grateful for is that all of this has really put me on the road to much better overall health and I feel better than I have in a long, long time!
MJ

Comment by Brenda, IL US on March 28, 2014 at 10:39am

KarenGinny.  My derm diagnosed me with FFA and LPP.  She didnt do a biopsy because she said the scarring was so evident.  I too had a bad reaction on my first try at a generic for plaquenil.  When i saw a new lupus specialist he told me to try another brand.  I had my pharmacy order the real drug and ive never had a problem with it.

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