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Comment by Brenda, IL US on March 5, 2014 at 10:18am

My dermatologist told me that my eyebrows would come back but not my hair.  It"s been over a year and i haven't had much luck.  A few hairs sprouted after four rounds of steroid injections but they've fallen out and the indentations from the shots haven't filled in yet.  Latisse is helping to bring back my eyelashes.

Comment by Anne Louise on March 5, 2014 at 10:06am

I am definitely considering getting my eyebrows tattooed, but the pictures I have seen online are not all that appealing. I have always had very thick dark eyebrows, in fact I spent a considerable amount of money on electrolysis years ago because they were such maintenance. How ironic! Now I take forever penciling them in but I am finally content with how they look and everyone tells me they look fine.

My problem is that I love to swim, I'm on a Master's swim team and I'm in the pool twice a week. I truly look like an alien as I only have a few stray hairs left. If my hairline continues to recede...yikes!

My dermatologist started me on Latisse which I just started on Friday and he seemed pretty hopeful that it would work. When I asked about the scarring he replied that he is not so certain that the eyebrows have scarring alopecia. It makes no sense to me and I think he was trying to give me some hope as he just dealt me a devastating diagnosis. Has anyone heard this? Can the eyebrow loss in fact be a different sort of pathology than the scalp loss?

Comment by Brenda, IL US on March 5, 2014 at 10:06am

Hi Anne welcome to the group.  It's easier dealing with FFA when you have support.  You"ll find that here.  I'm trying to find a place to get my eyebrows done.  I've had steroid injections, and I've used latisse and rogaine with no luck.  Good luck to you.

Comment by MJ on March 5, 2014 at 7:12am

Anne, if you still have some eyebrows left, you might want to try Rogaine on them. My derm has me using it on my thinning brows and it appears to be working. It has been two months and I do have some new sprouts and they have not thinned anymore.

Comment by Celia on March 5, 2014 at 2:49am

Anne - sorry you too have needed to join us.  On a practical note - have you thought about having your eyebrows tattooed on - it makes such a difference rather than having to pencil them in.  Do a bit of research and find a really efficient person to go to - it's worth it.  I have chosen not to tell friends about my FFA as I didn't want anyone to feel sorry for me or to constantly think about my hair when they see me.  I just try to hide it with styling and will do that as long as I can.  I remember years ago a friend referring to a woman in the town as - 'you know who I mean - she wears a wig.'  I never thought about that at the time but I certainly do now ! I don't want FFA to be the way I am viewed so - it's under wraps !  Something for you to think about. x

Comment by MJ on March 4, 2014 at 4:29pm

Anne, I can relate to your sentiments. From an overall vanity perspective, I found having a mastectomy and reconstructed breast at age 46 easier to handle! Four years later, all that is a distant memory. My cancer is over and done with, but as you said, I don't know when FFA will end.

Comment by Liz on March 4, 2014 at 4:21pm

Hi Anne. Welcome to the group. I'm 42 and have had a diagnosis for the past 18 months. My mum also has FFA xx

Comment by Anne Louise on March 4, 2014 at 3:58pm

Thank you for the welcome, ladies. As you both had said, it is not life threatening and I do try to remind myself of that. Yet I must say this has been much harder to cope with than having cancer while pregnant! I had a ton of support and there was a pretty clear cut plan and prognosis. With FFA there is so much uncertainty and no end in sight, and people don't send cards or casseroles when you are losing your hair. : )In some ways I think I'd rather lose whatever I'm going to lose and get it over with!

Comment by MJ on March 4, 2014 at 3:52pm

Hi Anne, I was dx in December and I am so grateful that I found this group. I cannot imagine going through this alone...so much helpfuk information! I am in such a better olace now in dealing with this than I was just a few months ago when diagnosed.
MJ

Comment by sallylwess on March 4, 2014 at 11:59am

Welcome to the group Anne.  I have learned so much from the wonderful ladies on this forum.  I am always learning something new.  This diagnosis is a devastating one, but as Meme said, it is not life threatening.  For that I am very thankful.  Take care of yourself, Anne.  

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