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Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies 0 Likes
Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue
Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies 14 Likes
CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue
Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies 0 Likes
Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue
Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies 0 Likes
Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue
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Polly - that is great to hear your eyebrow tattoo went well. We are hoping to have a get together here again in Bucks when the weather is better - I'll send out a choice of dates as before and we'll make a best fit plan. Looking forward to seeing you then,
Very best wishes.
My hairpiece is supposed to last about a year, but if my hair recedes considerably during that time it will have to be made larger I suppose! It is all one piece, just a strip that goes across my forehead and sides exactly where I have lost my own hair.
I had it done by Rob Davidson-Lamb at Barefaced Medical Aesthetics, 127 Promenade, Cheltenham, GL50 1NW tel 01242 222690. They have a website giving more information on what they do.
Hi Pam,
I too wish that you can share some pics. It is very inspiring that you are able to find a way to live fully with FFA. I cannot go to your hair guy since I am in Canada but it would be great if I can show it to someone here who could probably help me design a hairpiece for the front and temple hairline.
Well done Pam! I agree with everything you say, especially about mourning for your lost appearance and coming to terms with it. For me that has been the most difficult journey and I too have had serious reservations about the various drug treatments but accepted that all I could do was try what was on offer but I could not bring back what was lost and had to move on. In the winter it is easier to cope with - I can go out wearing a hat and no one will take a second glance and know why I am really wearing one.
Thanks for your supportive feedback and comments - it all helps! I must admit it is still early days in terms of wearing my hairpiece, as I had it in December, and so it is only a couple of months, and I haven`t yet had hot sticky days to contend with...it may feel itchy and intolerable then!
I went to a hair/skin place and saw a guy there who was brilliant - he was recommended to me, as he specialises in fitting hair pieces and extensions for both men and women. He drew a template of my forehead and then had the piece tailor made, with fine European wavy human hair identical in colour and texture to my own. The hair is threaded onto a breathable see through piece, and taped in place with breathable wig tape. I can shower and wash my hair normally, and keep in on all the time for sleeping, cycling, wearing hats etc. It acts just like normal hair, so I need to style it with a blowdryer after I have washed it. It needs to be taken off every month so the skin underneath can be thoroughly washed and cleaned, which I can either do myself (by soaking it off for about 15 minutes) or I can go back to him and he will do it for me. I am due a colour treatment next week, so he will do both my own hair and the hairpiece.
The compliments from friends have been amazing - I look like I used to about twenty years ago, and they all say my hair looks fantastic, what have I done! I have just told most of them that I have got a new hairdresser, and had some extensions put in as I wanted a bit more volume!
The guy who did it is genuinely good, and I have passed on details to Debs as she is compiling a list of recommended people for hairpieces and wigs.
I also am with you Pam. It has been a journey, and it has taken some time, but I can say I have made peace, for the most part, with having FFA. I am also trying to just live life in the most healthy way I can. I know I can't reverse what damage has been done, and I will have to adapt by wearing a wig at some point. For now, when I am getting ready to go out, I just try to style what hair I have left, not fret over what is gone, and get on with my day. I am also drawing on my eyebrows. Who knew I would have to become an artist?
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