Frontal Fibrosing Alopecia

Information

Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Nov 25, 2024

Discussion Forum

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Comment Wall

Comment

You need to be a member of Frontal Fibrosing Alopecia to add comments!

Comment by Celia on November 7, 2013 at 4:44am

Ooooooops - blond moment ! http://youtu.be/0lLeXr9J93Q   this is the link and it's about reversing your autoimmune disorder......... x

 

Comment by Mandy on November 6, 2013 at 3:57pm
Thank you Celia x
Comment by Annie on November 6, 2013 at 1:00pm

I agree that the severity of this disease is stress-related.  My scalp was calm at my July visit with my doctor, then a death in the family caused a painful flareup in early September.  My scalp is just beginning to calm down two months later.  All the drugs in the world can't combat stress, but my doctor did say that he thought the flareup would have been much worse if I hadn't been taking Plaquenil.  He also told me to call him immediately if I have another flareup so he could prescribe short term steroids to shorten the severity and duration.

Comment by Celia on November 6, 2013 at 8:46am

Hi Mandy - just type in  Treatment for FFA, it is the 5th article and there is a box on it with blue writing on - FFA - hope you find it. x

Comment by Mandy on November 6, 2013 at 8:37am
Hi Celia, can find one that runs for about three minutes and is just a lady talking... Do you have the link? X
Comment by Celia on November 6, 2013 at 7:39am

I have just looked into          Treatment for FFA    on the internet  - there was an interesting youtube video (8 mins) that may be worth watching - (cancel the ad at the beginning !)   

Comment by Mandy on November 6, 2013 at 7:01am
I agree ladies... My head can look perfectly normal when I get up but I have late checked it a work and it is bright red again... My job can be very stressful and busy... But we all need to pay the bills! I am looking into work four days and that would then give me a long weekend :0)
I'm also taking aconite as they believe the RTA I was involved in 10 years ago could be the root cause??!
Comment by Caro UK on November 6, 2013 at 4:45am
I agree. I'm sure my immune system has been damaged by working nights. I first noticed my FFA about 18 months ago. I had had a period of nearly three years when I was not working and I felt really well during this time. I had to return to a very stressful job three years ago. I'd spent a year looking for other less demanding work but had got nowhere. From the first day I felt stressed. I was working 30 hours a week to start with. It was too much but I needed the job and that was the contract on offer. After a few months I asked to work nights. I had always worked nights in the past. It is very hard on the immune system but I cope better with the work at night. I work a twelve and a half hour shift on my feet pretty much continually, sometimes without a break. I'm 58. Last year I asked to reduce my hours which was allowed. It has made a difference as I have more time between shifts to recover, but the stress I am putting my body through every time I go to work cannot be helping me. My immune system is constantly being compromised but I have to keep going for another 18 months before I retire. I'd be interested to know if there are any other shift workers on here who have been similarly affected.
Comment by Brenda, IL US on November 5, 2013 at 9:24pm

I really believe this is stress related.  Every time i have been under extreme emotional or physical stress my temples have receded and my hair has thinned.  It always grew back but not as thick.  Since i had surgically induced menopause in 1998 its gotten worse.  I also developed horrible allergies in 1992.  Thats when my doctor thinks i developed lupus.  Its a puzzle.

Comment by Jules UK on November 5, 2013 at 6:01pm
Sorry, it was aconite, not arnica.
 

Members (602)

 
 
 

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2025   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service