Comment

Comment by Mandy on November 5, 2013 at 5:13pm

Thanks Jules... Think mine is stress related too lol. I will let you know how I get on too x

Comment by Jules UK on November 5, 2013 at 4:46pm

I'm also intrigued by the idea of 'whacking' the scalp with something spikey..... Think I'll go shopping for a new hairbrush. X

Comment by Jules UK on November 5, 2013 at 4:45pm

Hi Mandy, I've tried homeopathy, but the therapist gave me tablets to calm my anxious personality! Which apparently is at the root of this problem. The latest tablets were arnica and should reverse the effects of shock. I can't say I'm convinced but I'm sure that my FFA was brought on by stress. Anyway, there's been no improvement. If there ever is, you'll all be first to know!! X

Comment by Mandy on November 5, 2013 at 4:18pm

Hi ladies, I'm new on here... Joined the weekend :0)
Saw my GP in May and was referred to the Derm... Due my biopsy the end of the month, but it know it FFA! Derm took me of Doxy that the GP had prescribed and changed from Betnovate to Dermovate... This burnt my head so back on Betnovate.
But I have been trying natural remedies... Oils from my aromatherapist which seem to help loads to reduce the redness. I am very interested in Homeopathy as they deal with the cause and where the problem began... Has anyone gone in this direction?

Comment by Celia on November 5, 2013 at 2:58pm

Annie - that is absolutely right - of that I am sure.  My system went into overdrive almost 3 years ago when I was battling with pneumonia.  I am certain that I absolutely know this was the cause. I was so ill and eventually had to shuffle around using a zimmer frame, so thin and weak.  3 weeks before all of that I was playing squash, swimming gyming and cycling.  How to correct it is the BIG question.  At the moment most of us are on various cocktails of treatment and we must accept that the medics have not come up with a 'cure' rather they are doing as much as they can by trying different meds - it is difficult to know whether meds are working or whether any changes in the condition would have happened anyway. In other words - 'shots in the dark'.  The only treatment I can be sure of is the topical kind - ie dermovate / clobetasol.  This does 'dampen down' the redness, but I don't really have a clue if hydroxychloroquine or any antibiotics work.  This frustrating situation is what we are all trying to get our heads around.  My hairloss continues despite treatment and this is the case for many of you.  Apologies for 'going on' a bit - sometimes monologues feel a bit self-indulgent but good to be able to sound off on this forum. x

Comment by Annie on November 5, 2013 at 2:08pm

Celia, I think the problem is that our autoimmune systems are in overdrive, which isn't healthy.  Something has caused our autoimmune systems to overreact and attack our own bodies.  I've been healthy my entire life and taken good care of myself by exercising and eating healthy.  I do have seasonal allergies, but I've never been sick other than an occasional cold or flu.  My doctor said it shows God has a sense of humor.

Comment by Celia on November 5, 2013 at 11:21am

Interesting !  We are all trying to stay healthy and eat all the right things, and as Jean said 'improve auto-immune systems' .  I am going to ask a dumb question now...............why are we offered drugs to suppress the auto-immune system on the premise that it is the AI system that is attacking healthy hair follicles and destroying them so that they scar over.  I was offered ACTOS but declined as it can, in suppressing the AI system, leave the user less likely to fight infection, that is just one side effect that may happen. 

Comment by Debs on November 5, 2013 at 4:36am

Jean... this does actually make sense to me... after I had my eyebrows tattooed I have not lost any more hair from my eyebrows... I did not regrow any but the hair loss in this area has halted... this is one of the reasons I got my eyelash enhancements done back in June this year, I was hoping to trigger the same effect... touch wood and my eyelashes have not remained stable since I had the tattoo in this area.  I have heard of this from other people too.  I can only think the action of the tattoo needle somehow stimulates extra cellular activity which prevents hair loss.... whatever it is I would definately recommend trying it. 

Comment by Jean on November 5, 2013 at 4:24am

I don't know whether this is helpful but for what it's worth............

I'm not too concerned about what's happening with the scalp (prescribed local medication/shampoo) but I've been trying to improve my autoimmune system as I also suffer with arthritis and psoriasis.  To this end, I've been seeing a Chinese practitioner for acupuncture and pills to sort out my gut.  He's also given me an 'instrument' which looks like a long flexible pipe with seven sharp pins at the end.  I have to use it to  whack my head (not where I've lost hair but the bit between there and my crown) for 5 minutes on alternate days!!!  Sounds bizarre but Belinda Hale (eyebrow lady) was telling me that an FFA sufferer had successfully grown eyelashes following an eyelid tattoo and I've now got  a few hairs growing on my eyebrows following a tattoo.  Perhaps it's something to do with stimulating the skin and with no other tried and tested solutions in the offing I'm going to continue with the 'Chinese torture'.  It's only been 3 weeks so far and I'll obviously share any results (ever the optimist) with you lovely FFA sufferers.

Ever hopeful - Jean

Comment by Alice on November 4, 2013 at 5:42pm

I took doxy for years for another condition. Be sure to drink plenty of water with it.

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