Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Nov 25, 2024

Discussion Forum

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

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Comment by Caro UK on September 21, 2013 at 9:16am

Hello Celia. Thanks so much for the invitiation. Yes the 9th October is good for me as well. In fact it's perfect as I am not working that week! Really looking forward to seeing everyone again.

Comment by Pam on September 21, 2013 at 5:10am

I could do Oct 2nd, 3rd, and possibly the following week too, but will let you decide a date and then see if I can make arrangements to join you.

Comment by Debs on September 21, 2013 at 4:58am

Hello Celia, thanks very much for organising us UK ladies again. I can do the 9th Oct the other dates are OK for me too.

Comment by Celia on September 19, 2013 at 5:47pm

Hope also to hear from Caro ! Trying not to get in a muddle with this ! x

Comment by Celia on September 19, 2013 at 5:42pm

Hello - regarding our get together....my suggested dates were - 2,3,4,9,10,11th October - so far :-

Julie 3,9,10
Sammi 3,4,9,10
Paula 9, but best for her are Fridays - ie 4,11th
Polly 2,4,9
So at the moment the best date looks to be the 9th unless anyone has a better idea ? I hope that we can make this work. I don't know how to contact Heidi as she doesn't log on very often but hope to hear from Liz and Debs.
Best wishes !

Comment by Pam on September 19, 2013 at 3:41pm

Thank you Kath for passing on information about your hairpiece - I am very grateful.

Comment by Celia on September 19, 2013 at 11:40am

Thank you Sammi for your response. Will keep posting as I get replies then I will post my e mail here so you can contact me to give directions - don't want to post directions on the forum ! x

Comment by sammi on September 19, 2013 at 11:10am

Hi Celia would love to meet up and I'm free all those dates except the 2nd of October. I have already met up with Julie and Terry at the Trafford Centre on the days of appointments with Dr H and it was very good to talk and discuss medications! Sammi x

Comment by Rita - Canada on September 19, 2013 at 7:54am

Carol & Debs, Thank you so much, I will do my research with all your info, have printed it out to carry w/me.

Comment by Debs on September 19, 2013 at 3:30am

Rita, I also use the wigsupport website for all of my wig info. You do need to buy name brand wigs, the ones that Carol has listed, there are some very cheap wigs on the market but I think if a wig costs the same as a pizza it will probably only last as long!... You don't need to spend a fortune on a wig for it to look natural. My preference is synthetics because they bizarrely look less 'wiggy' than human hair wigs. They are not too thick and you don't have to style them. Mine cost Ignite, Jon Renau brand £99 - Julia, Jon Renau brand £145, Stream, Ellen Wille brand £120 - Techno Cut, Gisela mayer brand £140, I have a human hair wig from Raquel Welch that was about £500 that I never wear because it is so difficult to style.

If you want to check out a good range of wigs look at

www.voguewigs.com
www.wigs.com

these online wig stores are in the USA and carry a huge line of wigs. NOTE you don't have to purchase from these sites as you may well find the same wigs cheaper somewhere else, I just suggest looking at the sites to see just how many lovely wigs are on the market.

 

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