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Frontal Fibrosing Alopecia
Information
This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.
Location: Dubai UAE
Members: 600
Latest Activity: yesterday
Discussion Forum
Hair Toppers
Started by Leni. Last reply by Lang Bozic May 22. 10 Replies 0 Likes
I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue
Get Ahead of Hairloss Event plus new information on FFA
Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies 1 Like
Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue
Food Allergy Testing question
Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies 0 Likes
Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue
CARF Conference 2018 Notes
Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies 14 Likes
CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue
Comment Wall
Comment
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Comment by Celia on September 22, 2013 at 8:25am
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Thank you for messages re our get together. My e mail address is celiareeve@hotsmail.com for those of you needing directions. If you e mail me then I will send info, rather than here. Hope that's OK. So - the 9th October is the date and I hope that Paula can make that one ! So we are Julie, Sammi, Paula, Polly, Caroline, Pam, Debs and hopefully Heidi if she gets a message. Have a good rest of the weekend ! x
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Comment by Caro UK on September 21, 2013 at 9:16am
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Hello Celia. Thanks so much for the invitiation. Yes the 9th October is good for me as well. In fact it's perfect as I am not working that week! Really looking forward to seeing everyone again.
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Comment by Pam on September 21, 2013 at 5:10am
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I could do Oct 2nd, 3rd, and possibly the following week too, but will let you decide a date and then see if I can make arrangements to join you.
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Comment by Debs on September 21, 2013 at 4:58am
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Hello Celia, thanks very much for organising us UK ladies again. I can do the 9th Oct the other dates are OK for me too.
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Hope also to hear from Caro ! Trying not to get in a muddle with this ! x
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Hello - regarding our get together....my suggested dates were - 2,3,4,9,10,11th October - so far :-
Julie 3,9,10
Sammi 3,4,9,10
Paula 9, but best for her are Fridays - ie 4,11th
Polly 2,4,9
So at the moment the best date looks to be the 9th unless anyone has a better idea ? I hope that we can make this work. I don't know how to contact Heidi as she doesn't log on very often but hope to hear from Liz and Debs.
Best wishes !
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Thank you Kath for passing on information about your hairpiece - I am very grateful.
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Thank you Sammi for your response. Will keep posting as I get replies then I will post my e mail here so you can contact me to give directions - don't want to post directions on the forum ! x
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Hi Celia would love to meet up and I'm free all those dates except the 2nd of October. I have already met up with Julie and Terry at the Trafford Centre on the days of appointments with Dr H and it was very good to talk and discuss medications! Sammi x
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Carol & Debs, Thank you so much, I will do my research with all your info, have printed it out to carry w/me.
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