Alopecia World
Where acceptance is all there is!
Frontal Fibrosing Alopecia
Information
This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.
Location: Dubai UAE
Members: 599
Latest Activity: Jul 25
Discussion Forum
Dermatologists who specialize in alopecia?
Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
Food Allergy Testing question
Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies 0 Likes
Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue
Hair Toppers
Started by Leni. Last reply by Lang Bozic May 22. 10 Replies 0 Likes
I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue
Get Ahead of Hairloss Event plus new information on FFA
Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies 1 Like
Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue
Comment Wall
Comment
-
Comment by Brenda, IL US on August 9, 2013 at 6:38pm
-
Liz you look fabulous! I love your wig. It looks like its your natural hair. Thanks for sharing with us.
-
Comment by Liz on August 9, 2013 at 5:02pm
-
Thank you all for your lovely comments. The whole wig buying experience went a lot better than I thought and in the end turned out to be quite enjoyable. Having a wig on makes me feel a little bit more like my old self on days that were 'good hair days!' I liked it so much that I decided to wear it straight away. xx
-
Comment by Annie on August 9, 2013 at 4:44pm
-
Liz, you look great! The wig is perfect for you and looks very natural.
-
Comment by christiekd on August 9, 2013 at 4:21pm
-
I LOVE IT! You look amazing! Thanks for sharing.
-
Comment by Jodie UK on August 9, 2013 at 2:38pm
-
Liz you look beautiful!!!
-
-
My new wig! (below) x
-
-
-
-
Not sure how others are using Clobetesol, but here is how I do it: 2x per day for two weeks, then only on weekends for 5-6 weeks. Then I start all over again. My doctor says you have to keep "surprising" the hair follicles. This helps with sensitivity also because after 2 weeks your follicles get a little break for 5-6 weeks. Then I use the protopic on the days I don't use Clobetesol.
-
-
Christiekd & Alice, thanks for your helpful information. I'll start using the Retin A on my hairline as well as face. Alice, I've stopped using the Clobetesol for a while & still have the tenderness, though not as severe. I also had stinging along my hairline when I had my hair colored on Tuesday. The stinging stopped when my hairdresser rinsed my hair. I'm wondering if it has something to do with the open follicles where I've recently lost hair. I've always had a sensitive scalp.
-
Comment by Debs on August 8, 2013 at 6:02am
-
Ladies in the UK - have seen this info on the Alopecia UK website, a lady used the company HEAD4HAIR.COM to get a hair system, she is very pleased with it. They do partial hair systems - this is just a piece to cover the front - exactly what we need with FFA - she recommends getting the 'swiss lace base'. The company are based in Manchester but you can send a template of the area you want covered in the post with a sample of your own hair. Prices seem to start at £129.00 Might be worth looking at for those of you that want supplemental hair but not a full wig. XXX
Disclaimer
Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.
© 2026 Created by Alopecia World.
Powered by
You need to be a member of Frontal Fibrosing Alopecia to add comments!