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Frontal Fibrosing Alopecia
Information
This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.
Location: Dubai UAE
Members: 599
Latest Activity: Jul 25
Discussion Forum
Dermatologists who specialize in alopecia?
Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
Food Allergy Testing question
Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies 0 Likes
Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue
Hair Toppers
Started by Leni. Last reply by Lang Bozic May 22. 10 Replies 0 Likes
I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue
Get Ahead of Hairloss Event plus new information on FFA
Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies 1 Like
Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue
Comment Wall
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Comment by Chrisy, MA USA on July 23, 2013 at 8:05am
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Hello! I am also wondering if plaquenil will ever work for us. But We have no choice than to believe is helping somehow. I don't know anybody that had FFA and have seen results but I can tell you from personal experience that there is hope. My husband has a very rear autoimmune disease as well where he showed some inflammation on his forehead. For a while he treated it with topical steroid injections and steroid cream with no results until he changed dermatologist and he started plaquenil twice a day. After about 6 months he had no signs of inflammation on his forehead. This dermatologist also recommended vitamin D3 and omega 3. The 50% that we all hear might not be specifically for FFA sufferers but for all the people with autoimmune diseases with inflammation. Wishing us all the best of luck with this medicine!!!
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Comment by KarenGinny - Iowa, US on July 22, 2013 at 5:24pm
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Happy Birthday Celia! Hope you have a wonderful day!
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Happy birthday Celia and thank you for the work you do! have a lovely evening Sammix
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Comment by Annie on July 22, 2013 at 10:29am
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Hello everyone,
AC, thank you for your information. I'm definitely going to go out & get some Reservatrol after work today. One thing that I'm also thinking about is attacking this disease through my digestive system with probiotics. Is anyone taking them? If so, do you think they're helping?
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Comment by Liz on July 22, 2013 at 8:09am
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Happy Birthday Celia. Have a lovely day xx
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Comment by Kath UK on July 22, 2013 at 7:42am
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Happy Birthday, Celia! xx
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Happy birthday, Celia! XX
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Comment by Debs on July 22, 2013 at 3:46am
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Celia, Happy Birthday have a super day. XXXX
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Happy Birthday Celia, enjoy your country walk.
Tuesday is start of the holidays !!!!!!
yes must meet up again.
Xx
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Comment by Celia on July 21, 2013 at 4:28pm
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Rita - that's the best post I have seen in months ! Thank you for that !
Pam - yes - it continues to be devastating and The Thing you wake up to face every day - well at least that is the way it seems to me. Plaquenil is hydroxychloroquine.
Paula- your hols must be starting soon - enjoy - and come on over to see me as and when you have time.
Simone - I reckon that Latisse must be in the same 'bracket' as Regaine - you have to use it forever or lose the effect. Eyebrow tattoo is the best thing (thanks Debs !).
I have a birthday tomorrow - starting with a country power walk with my husband and neighbour - great ! X
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