Where acceptance is all there is!
Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies 0 Likes
Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue
Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies 0 Likes
Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue
Started by Leni. Last reply by Lang Bozic May 22. 10 Replies 0 Likes
I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue
Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies 1 Like
Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue
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I wore my wig for over 17 hours last week at work... I honestly did not know I had anything on my head. There is no sensation from a wig, it isn't hot, itchy or anything else. 95% of women have an average size head, different wig brands can vary slightly but you have straps inside (like a bra) that you can loosen/tighten up. Like the other ladies have said please check out www.wigsupport.com for everything wig related.
Note: counter-intuitively synthetic wigs can look/feel more natural than a human hair wig. Synthetics maintain their style when washed and are a lot less hassle. Recommend a synthetic to begin with. XXXX
Rita, I suspect that the reason derms are seeing FFA in "affluent" women is b/c they are the ones who seek out a specialist when they are losing hair. I believe that FFA is a lot more common than is generally thought and that a lot of postmenopausal women think it's just part of normal hair thinning that often comes with aging. Most of us will admit that we didn't notice it right away.
Sandy's comments inspire me. I also wear synthetic, open wefted wigs and live in a hot climate and am outside most of the day. A couple of weeks ago I experimented with leaving my own puny hair down or wearing my wig in a low ponytail. The ponytail was much cooler. I could never get my own hair into a good ponytail anyway, so that is not an option.
BTW, my policy in selling wigs to my clients is to give the lowest online price I can find on the day of the sale. While this may not make as much profit, I still do make money. I have found that the online stores use a bigger markup than the manufacturer recommends and then give the discount. If storefront retailers were more customer oriented, they would compete with the online stores and still make a profit. Unfortunately many do not see things this way.
Yesterday was my 3rd visit to derm. One has to see the assistant prior and told me in their research, FFA was seen mainly in Postmenopausal,Caucasian,Affluent Women. The word affluent startled me(I would consider myself middle class)and I wondered-ok-prob.eats well/colors hair as I do,perhaps a multitude of vitamins etc. What the heck does this all mean really? Eat poorly,discontinue hair coloring & vits if this is what causes this affliction. Anyway, the Derm came in & told her I had tried topical Clobetasol for 8 mths now & hair continued to shed and didn't really want to do the oral drug route. However, because she continuously reminded me that if I did nothing & give up,I would surely lose much of my hair, I came away with the dreaded Overused drug in society, an antibiotic. The one she prescribed is Doxycycline. I immediately went to the health store for probiotics but am hugely uptight about taking this drug for 3 mth trial .She also said to continue w/Clobetasol.
Carol - I looked at the wig support group earlier today - I am not quite ready yet, but it looks like a good one. Some ladies here have had this problem for a number of years. For me it's only been 18 months but it feels like a lifetime ! I totally admire many of you who haven't let IT take over your life - I am still battling with this. It's so comforting though to know there are many people out there who understand. I see Dr Harries on Thursday and sometimes I think that making that round trip is a little pointless. Any questions any of you might have - I will ask. XX
Sandy - thanks for the info.
I was looking back and you were one of the first ladies to comment on this site. It started one year ago today. You have come a long way and sound soooooooooooo upbeat now ! That's great ! How short is your own hair now ? Do you go to a salon to have it cut now and again ?
Kath - thanks for your comments. Funny thing is my hair has always been a pretty miserable affair, fine, floppy and a mousy brown but how I treasure it now. I don't think I can do a part head of hair even for in private. So when do you shave off what's left and go down the scarf and wig route ? Anyone like to share their personal experience ?
I also don't want people to think I've had chemotherapy and feel concerned and sorry for me. So will I tell more people?
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