Comment

Comment by Debs on April 13, 2013 at 5:42am

Simone, same as Pam has just said. A derm gave me clobetasol last November, he said use it for 2 to 3 weeks every 3 months if I had redness/itching. I only used it for 7 days just to see what would happen but I don't thankfully get any redness/itching so I never used it again. Dr Harries has confirmed it does not do anything for hair loss.

Comment by PamW San Diego, CA, USA on April 12, 2013 at 10:28pm

My doctors have cautioned me to be careful with the clobetasol because it can cause skin to thin.

Comment by Simone NJ USA on April 12, 2013 at 10:05pm

Hi Debs:

Do you know if there are any possible side effects from usung Clobetasol?

Comment by Judy on April 12, 2013 at 7:31pm

Lacy, It would be great for the 3 of us to meet up. When Pam gets our messages let's make plans.

Comment by Bernadette on April 12, 2013 at 7:04pm

Aimee, thank you for the YouTube info. Debs, I will keep the group posted on the wig search =).

Comment by Debs on April 12, 2013 at 6:18pm

Sharon, clobestasol does not stop the hair loss, it just treats any redness/itching that some people get with scarring hair loss. I advise you get a definate diagnosis because lupus is a condition you need to get medical help for ASAP as it effects other parts of your body - not just your hair.

Comment by Shar on April 12, 2013 at 1:18pm

I have been diagnosed by biopsies of either discoid lupus or LLP. I have scarring hair loss behind both ears & up to top of front of head. I have also had 2 basal cells on a part bald spot. My latest dermatologist wants me to use clobetasol 60cc 2 x a day with 5 refills. He said nothing about stopping it for 2 weeks at a time (which is what I've read). Has anyone ever hear of this? Thanks for any help. -Sharon

Comment by Jules UK on April 12, 2013 at 10:20am

Hi Celia, that sounds fantastic, and really generous of you! I'd love to come please. Any of those dates would be good for me. Could I bring something to contribute -such as a pud? And if I could give anyone a lift, that's no problem. Caro is nearby I know. This is really exciting! Thank you. X

Comment by Debs on April 12, 2013 at 4:05am

Hi Lace, glad you are still liking your Meena wigs, I have become addicted to wig buying now, I have found a few websites in the UK that often do half price deals and I check them out regularly and pick up what I want at big discounts. I have a new Drew wig coming soon, I need to get it cut so I can wear it to work in the future. I am 'growing' my hair now and slowly wearing slightly longer wigs. AC, thanks for the YouTube info - I find it very reassuring watching other people talking about their supplemental hair. Bernadette, welcome to the group, please let us all know how your wig purchasing goes, maybe you will be able to wear your weave for quite a long time yet. XXX

Comment by Lace on April 12, 2013 at 2:09am

Oh, Debs--

Loving the new do! I haven't been on the boards for some time, so I'm just now seeing it. It's so wonderful on you! I'm thinking about going longer, but I still haven't opened my other 'Meena' wig yet. Still, there's something about it being spring that makes me want to look a little different. We'll see!

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