Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 599
Latest Activity: Jul 25

Discussion Forum

Dermatologists who specialize in alopecia?

Started by NorthCarolinaMama. Last reply by LauraLGiraldo Jul 25. 2 Replies

Hope everyone is having a great weekend!I'm a freelance writer working on a story about alopecia. I need to find a dermatologist at major hospital or teaching institution to interview -- any suggestions?I've already reached to physicians at Duke,…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by DragonandFox Jul 22. 11 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

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Comment by Lorn. New York, USA on March 20, 2013 at 9:12pm
Pam - I live in huntington. I appreciate the advice from everyone. When I see the dermotologist, I am going to ask him if he can recommend a good professional tattoo cosmetician. Alice, I am also going to ask him about using elidel. I was using desonide but stopped that because of extended use and eye health.
Comment by Alice on March 20, 2013 at 10:57am

I have had very good results using Elidel (pimecrolimus) cream on my eyebrows. After about 6 months of use, they have almost completely grown back. It's quite expensive but the samples I got from my derm lasted a long time. I still use a light pencil/powder to fill the sparse areas but don't bother if I'm just going to the gym or something. I would recommend trying this before resorting to tattoos.

Comment by PamW San Diego, CA, USA on March 20, 2013 at 7:13am
I have tattoos also, with hairline strokes and the cost for me was much less. You need to get a recommendation from someone who has already used the cosmetician. Also, I asked my dermatologist. They know who to recommend. By the way I grew up on LI and moved from E. Northport to San Diego.
Comment by Debs on March 20, 2013 at 3:23am

Lorn, that is funny, I just got it in my head your were in the UK too. The hairlike strokes that Simone has just posted are what my lady does too. Very realistic.

Comment by Simone NJ USA on March 19, 2013 at 9:11pm
Hi Lorn:

I live in New Jersey and there is a place that offers the embroider tatoo(fine hairlike strokes for natural appearance for the brows). It's called The Whitney Center for Permanent Cosmetics. They have branches in NY/NJ/FL. If you go to their website there are several pictures of their work and it's amazing and natural looking!! The cost I believe is between $1000-1200. I hope this helps...
Comment by Lorn. New York, USA on March 19, 2013 at 6:52pm
Hi Deba. Thank you for the eyebrow info. I would love to go to the person who did yours because judging by your picture they look really good I would never have quessed. I probably didn't put it out there but I live on Long Island New York. So if anyone knows a good perminent make up person let me know. Although - it could be. Great excuse to visit the uk
Comment by Liz on March 19, 2013 at 5:56pm

I'm feeling rough. Im not sure if I've caught a bug or if it's the antibiotics or the steriod injections. Anyone else feel rough when they've taken Doxycycline and does it get better?
x

Comment by Simone NJ USA on March 19, 2013 at 3:56pm
Judy..
Sorry..that message made no sense..lol..you mentioned that your eyebrows are growing back...did you put anything on them?
Comment by Simone NJ USA on March 19, 2013 at 3:55pm
Hi Judy:
You me ruined that your eyebrows are growing back(yeah, great!)..were you putting anything on them or just started to grow back?
Comment by Sigga on March 19, 2013 at 8:10am

Ok Rebecca,Arnaldur and Yrsa they are really good writers.I have to but some more picturs so you can see how my hair has become...

 

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