Comment

Comment by PJ - MN, USA on March 21, 2013 at 8:10am

Debs you look great in your new picture. You look great in all the styles your trying, and you always have such a big smile on your face. Very encouraging for when that time comes for me. My Derm says to wash your hair every day to keep the follicles from clogging up. Which you don't want to happen with FFA. Shampoos/conditioners can leave residue on the scalp.

Comment by Debs on March 21, 2013 at 5:23am

I used Nizoral shampoo for a few months as that is recommend for inflammation but I have now switched to a very gentle shampoo that some people on another alopecia support website were using : Faith In Nature, Seaweed shampoo. I got it off Amazon for less that £6.00 It feel nice after I wash my hair and it does not have any paraben or sles and is fragrence/colour free. I am washing my hair less, I used to wash it every day but now a couple of times a week. I dont use any hair dye or styling products at all, just shampoo and leave it to dry naturally. I am of course wearing wigs so I don't need to style my hair. Apart from my front hair line I am not losing hair or having any thinning on any other part of my scalp, although that of course doesn't mean that I wont get that in the future.

Comment by ChrisC. Chicago, IL on March 21, 2013 at 12:31am

Hi Pam and all,
I feel just like you, Pam. . . one day I think I can manage all this, since activity around the follicles seems less "angry". Then I get relaxed for a bit. . . I just got back from Florida where I didn't think about it at all. Now today I notice my hairline at the top of my forward is red, itchy and more sparse. I was religious about applying the Minoxidil 2X daily for months and the hairloss kept progressing. So I reduced to 1X in the AM before styling my hair. I'm thinner at the top as well and I'm not convinced that it is helping. I keep it up as I'm afraid if I stop outright, then who knows what would happen. So for now I am taking Plaquenil 2X day, with Protopic at the hairline at night and Minoxidil most mornings.

I see less irritation at the temples, but the front hairline is still active. Yuck. . . my part seems OK and I had heard that FFA was just along the leading edges.

Comment by Simone NJ USA on March 20, 2013 at 11:40pm

Hi Alice:

I thought using Elidel is only for very short term use? So I'm surprised that you have been using for 6 months. Have you had any side effects and did you put the cream basically all over your brows? How how did you use the Elidel on the brows? Thanks...

Comment by PamW San Diego, CA, USA on March 20, 2013 at 9:19pm

My scalp is really pink today. Wish I knew what makes one day different from the next. Has anyone received any advice about the frequency of shampooing?

Also, I feel like most of my hair loss is now around my center part and not the temples and front hairline. Liz, when you went to Dr. Harries, did he think the Rogaine would help with this type of hair loss. Chris, did you try Rogaine (minoxidil)? Anyone else?

Comment by Lorn. New York, USA on March 20, 2013 at 9:12pm

Pam - I live in huntington. I appreciate the advice from everyone. When I see the dermotologist, I am going to ask him if he can recommend a good professional tattoo cosmetician. Alice, I am also going to ask him about using elidel. I was using desonide but stopped that because of extended use and eye health.

Comment by Alice on March 20, 2013 at 10:57am

I have had very good results using Elidel (pimecrolimus) cream on my eyebrows. After about 6 months of use, they have almost completely grown back. It's quite expensive but the samples I got from my derm lasted a long time. I still use a light pencil/powder to fill the sparse areas but don't bother if I'm just going to the gym or something. I would recommend trying this before resorting to tattoos.

Comment by PamW San Diego, CA, USA on March 20, 2013 at 7:13am

I have tattoos also, with hairline strokes and the cost for me was much less. You need to get a recommendation from someone who has already used the cosmetician. Also, I asked my dermatologist. They know who to recommend. By the way I grew up on LI and moved from E. Northport to San Diego.

Comment by Debs on March 20, 2013 at 3:23am

Lorn, that is funny, I just got it in my head your were in the UK too. The hairlike strokes that Simone has just posted are what my lady does too. Very realistic.

Comment by Simone NJ USA on March 19, 2013 at 9:11pm

Hi Lorn:

I live in New Jersey and there is a place that offers the embroider tatoo(fine hairlike strokes for natural appearance for the brows). It's called The Whitney Center for Permanent Cosmetics. They have branches in NY/NJ/FL. If you go to their website there are several pictures of their work and it's amazing and natural looking!! The cost I believe is between $1000-1200. I hope this helps...

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