Comment

Comment by Susanne on March 5, 2013 at 11:43am

I like it, Alice. It's nice to go into denial every now and then, isn't it and a sunny spot by the pool seems like a great place to do it, Celia. I was much happier during Christmas break while I was walking on the beach. The sunshine and fresh air is good for us.

Comment by Alice on March 5, 2013 at 11:33am

Robyn,
I don't know if Elizabeth I had FFA but some derms in Spain have speculated that the Duchess of Urbino may have had it. See http://apps.elsevier.es/watermark/ctl_servlet?_f=10&pident_arti...
If they did, we may in be good company. But I'd sill rather have hair.
I'm not ready for a wig just yet, but have been buying lots of scarves and hats in case the need arises.

Comment by Kath UK on March 5, 2013 at 7:36am

Hi Debs,
Just saw your post to Liz about headband wigs. Thanks so much for sharing the info - that's brilliant - such a help! I've been looking for exactly that sort of thing and you've made it a lot easier. I'm going to look it up now.

Comment by Robyn, Melb. Australia on March 5, 2013 at 4:33am

Hi ladies,
Alice I love your theories although I have to admit to not knowing about any of the stuff you are talking about! It's nice to go to a fantasy land every so often though! I have actually wondered if Queen Elizabeth the 1st had FFA as in later life she appeared (if you believe all the movies you see!) to have an extremely wide forehead - so if that's the case I guess we're all in good company!
Celia it sounds wonderful where you are and very relaxing. It's very hot in Melbourne at the moment for the beginning of Autumn, but quite beautiful, so we're not complaining about the heat too often and I'm sure the much cooler weather is right around the corner! An Indian Summer would be nice though.....
I have been enjoying my beautiful granddaughter over the past couple of weeks and not really thinking about my FFA as my daughter in law has had quite a few set backs since the birth. Mastitis (which is bad enough) and then due to a hospital stay on IV drip she developed a blood clot in her leg which was a really serious situation. I can talk about it now as things are finally improving (after 5 weeks!), and she is at home finally with Chelsea and my son after needing to stay 2 weeks after hospital at her mum's with Chelsea having home/hospital care. Thankfully they live close by so Ryan (my son) could visit each night (he had to work and look after Izzy their dog). We're hoping she is on the mend and I have to say her attitude is wonderful - which makes me feel very grateful, so I'm taking a leaf out of her book and making the best of my FFA situation I've decided.
Quite a few of you have spoken about loved ones and friends with much more serious health issues than FFA and it really does put our problem into perspective - however don't get me wrong, I'd much rather I didn't have FFA and I've had all the feelings everyone has expressed in this discussion over the 2 years that I've had the condition.
I hope you don't mind me 'unburdening' myself, but it's quite a relief to be able to talk about what we thought would be a wonderful experience in becoming grandparents - to what did become a very scary experience. Such is the roller coaster of life! You never know what is around the corner. Thanks for listening ladies.

Comment by Debs on March 5, 2013 at 4:25am

Liz, I know you mentioned a few posts back you are thinking about trying a wig... I have found some HEADBAND wigs on sale, am going to get one for myself.

WWW.WIGTRENDZ.CO.UK

Brand is HENRY MARGU, BAND WIGS. There are 2 wigs that would suit our FFA, the PAGE BAND (this looks exactly like your hair Liz in your photo so it would be very easy for you to use this wig to transition into wearing supplemental hair) and a CLASSIC BAND. both sytles are bobs on a wide hair band, they are suitable for people with hair loss and are not just a fashion statement.

The price that we would pay with the VAT refief is PAGE BAND £65.60, CLASSIC BAND £69.60 - these wigs are very cheap at the moment because they are in a sale. The Henry Margu brand is a good quality brand and these wigs do retail at much higher prices. You just download their VAT relief form on the website and post it to them. I have used them before to purchase the wig I am wearing in my photo and they gave good customer service.

I think the headband wig would be comfortable to wear in summer, on the beach and just nice and casual for popping up the shops.

This is also a cheaper option Liz than buying a full wig to start with.

Good luck.

Comment by Liz on March 5, 2013 at 2:36am

Celia. Sounds lovely. Enjoy Abu Dhabi! Alice. I'm going with your theories, they sound cool!! Perhaps I shall discuss them with Dr Harries ;o)
xx

Comment by Alice on March 4, 2013 at 11:33am

Lest we take ourselves too seriously, I have 2 new theories about FFA:
(1) One is based upon the sci-fi series "Dune" by Frank Herbert. We are all turning into powerful priestesses called Bene Gesserit. Somehow, we've been getting the drug melange in our diets, which gives us superhuman mental abilities but also causes our hair and eyebrows to fall out. See http://en.wikipedia.org/wiki/Bene_Gesserit
(2) The other is based upon the ancient science of Physiognomy, which claims that a high, wide forehead is a sign of intelligence and open-mindness. See http://ssdivining.homestead.com/Physiognomy.html
Both of these theories suggest that we are all evolving into smarter and more powerful women. Unfortunately, neither of these theories accounts for the bumps and itching. But I'm working on it.

Comment by Simone NJ USA on March 3, 2013 at 10:20pm

Hi Liz::

Good luck on your appointment..let us know how it goes...x

Comment by Liz on March 3, 2013 at 6:29am

Hi Simone. Im not sure that I was taking them long enough to know either way. I was prescribed 8 weeks worth of medication and I took 5 weeks worth. I wasnt given another appointment until this June which means that there would be 9 months between appointments anyway. Who knows! Im off to see Dr Harries in a couple of weeks so hopefully he'll be a bit nicer than the doctor I saw. I dont even care if he does nothing for me just so long as he is nice :o)
x

Comment by Simone NJ USA on March 2, 2013 at 5:46pm

Hi Liz:

I'm sorry about the more hairloss...question... Do you think maybe once taking these meds then suddenly deciding to stop may have caused the hair to regress?

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