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Comment by Susanne on February 21, 2013 at 4:18pm

Sure, Simone. Yes, eyebrows are affected. Hard to know how long I've had it, actually. I didn't notice it properly until I went to the derm to see about my eyebrows and that was in July. It was clear that I had had it for a bit. I've been taking Plaquenil for not quite three months.

Comment by Simone NJ USA on February 21, 2013 at 2:59pm

Hi Susanne:
Could tell me how long you have had FFA and have your eyebrows been affected as get and also what are taking and how long you have been it? I'm sure you have said it already but since I'm still fairly new to the group I need to catch up...thanks a lot...

Comment by Susanne on February 21, 2013 at 10:00am

Here is an M.D.'s take on the whole gluten "fad". http://www.huffingtonpost.com/david-katz-md/gluten-free-diet_b_9070...

Comment by Susanne on February 21, 2013 at 9:32am

All the best to you tomorrow, Debs.

As the gluten-free guinea pig, I want to let you all know how it is at almost six weeks without gluten and without much replacement through other grains, but rather more meat and veg and healthy oils. (I'm eating a pumpkin "pancake" for breakfast as I type). I'm leaning a bit toward the paleo diet, but am not following strictly by any means. I've had a couple of days of itching and one small red patch, but it seems that the hair loss has slowed down somewhat. It certainly hasn't increased. To be honest, I'm not sure if this is going to stop it - I'm skeptical. BUT while I was super skeptical of this whole gluten-free business to start with, I can already tell you I'm not going back. My diet is a lot better, I've lost a bit of weight, my skin has cleared up, my mood is significantly better. It feels like I'm on some sort of low-dose anti-depressant. I haven't sobbed uncontrollably about this whole mess in weeks and weeks and it's not because I haven't felt distressed by it. It's the strangest thing. Since everyone says to watch out for other autoimmune diseases, I've decided that this just may keep me from getting on. I think the big problem with the whole gluten-free thing is that (at least here in the U.S.) it's such a diet fad at the moment and that makes a lot of people skeptical. By the way, the nutritionist/acupuncturist who is treating me studied conventional medicine in Germany before coming to the States and turning to alternative medicine.

Comment by Simone NJ USA on February 21, 2013 at 8:53am

Hi Debs:

Good luck tomorrow...I'm curious about the doctor's opinion on gluten/diet as most doctors aren't trained to provide nutrition to their patients but rather treat them with just meds. Xx

Comment by Debs on February 21, 2013 at 8:19am

Hi Celia, yes I am jetting up to Salford tomorrow... I will ask about gluten/diet and see if Dr Harries has an opinion on that. I suspect that most medical doctors tend to not look at the whole person and taking a holistic approach where you examine effects of diet, stress etc is not really taught during their training. I will of course ask the question. I know I will be offered the same meds that you have Celia, which is OK because at the moment I only have the steroid lotion Dermovate to use and I have not been applying it because I don't thank goodness experience any itching or redness with my FFA... Stacey, I do use Nizoral once a week, I have not found any problems with it, I use other regular shampoos too, I feel that because I wear wigs to work now I want to make sure I keep my scalp extra clean for hygiene reasons and I feel that as Nizoral is a medicated shampoo it must give a more thorough clean - this is just my opinion. XXX

Comment by Jules UK on February 21, 2013 at 7:22am

Oh Stacey, you poor thing! I haven't tried Nizoral but had a similar experience with Protopic. If the hairloss slows now, you might assume a connection. I do feel that we're a bit like little lab rats -everything is trial and error! X

Comment by Stacey on February 21, 2013 at 4:22am

Hi Has anyone tried Nizoral Shampoo and how did you get on? I have shed loads in the last few weeks and the main difference that would cause any effect would be the nizoral. I have read about possible shedding when you start but wonder if I should just stop it. I have also found out that the pill I was on and the implant before that were andronic so I have changed to a less androngic one in the hope that the loss slows down. My hair line is going rapidly now

Comment by Alice on February 20, 2013 at 5:20pm

Ellen, Thanks for the info about the FM med you are using for itching. I tried it orally years ago, when they were prescribing it for just about everything but all it did was make me feel spacey. I didn't realize it came in a topical form. I'm glad the tea tree oil is helping. I've been using it along w/ TTO conditioner but now my hair seems very dry. I'm wondering what I can use for the dryness that won't further irritate my scalp. If it's not one thing, it's another.

Comment by ElleMN, USA on February 20, 2013 at 4:11pm

Just finally getting back to Alice re: the new medication I was prescribed to help with itching. It Gabapentin 6% buffered solution (prescribed in another form for fibromyalgia). I'm supposed to use it on spots that are unbearably itchy. I have only used it once; I switched to plain old tea tree shampoo and that seems to be working. I think the head and shoulders classic clean is just too strong for me. I'll post if I use it further with any success.

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