Comment

Comment by Jules UK on December 28, 2012 at 6:42am

Pam, what is Actos? It has probably been mentioned before, I'm sure. Does it have another name in the UK? I've just started doxycycline but Dr says it can take 3months to see a difference, if any.
Celia, hope the flooding passed you by and your Christmas was a good one.
Debs, It's so reassuring to hear your positive comments about starting to wear a wig. You really help! Thanks.
Bit early, but Happy New Year all!

Comment by PamW San Diego, CA, USA on December 27, 2012 at 5:10pm

Another gal on another board says it helped her and she started noticing the difference after being on the drug for about 4 weeks. I am on for a little over 20 days. She says she sees regrowth -- I always thought regrowth was impossible. I will be happy if things don't get worse.

Comment by PamW San Diego, CA, USA on December 27, 2012 at 5:08pm

Chris, I think it is. I don't see hair all over the place anymore, the redness is down and itching and burning only occurs if I don't eat right. I am taking 15 mg per day. Let me know what you decide!

Comment by ChrisC. Chicago, IL on December 27, 2012 at 5:01pm

Hey Pam, is the Actos helping? I'm in the waiting room at Dr. Barbosa's office. Looking for something else.

Comment by Debs on December 22, 2012 at 9:39pm

Celia I do hope the rain stops and you don't get flooded. X

Comment by Debs on December 22, 2012 at 7:53am

Jules thanks for passing on what happened with Dr Harries, I am waiting to hear when I will get my first appointment with him. I went outlast night with 4 girlfriends. 3 have seen me wearing wigs before(I am experimenting wearing them when I go out in the evenings) but one friend I had not told, amazingly she complimented me on my hairstyle and thought I had just tonged it straight! If I can't save enough hair I have been experimenting with wig wearing now for 2 months and feel comfortable in them thank goodness.
MERRY CHRISTMAS TO YOU ALL AND A HEALTHY NEW YEAR, thanks for all your support during the year.

Comment by Jules UK on December 21, 2012 at 2:24pm

Also..... Dr Harries said that thinking now leaned towards an environmental cause for the condition, since it's such a new thing. But stupidly I didn't press him on ideas about what in the environment might be responsible...... Food, pesticides, pollution? Anyone heard anything about this? I'll make sure I follow it up next time. (1st March,)

Comment by Jules UK on December 21, 2012 at 12:14pm

Thanks, Debs. It was as I anticipated really, but at least if any research is undertaken, hopefully we'll be in the right place to benefit with Dr Harries, perhaps. He didn't tell me anything I wasn't already aware of, but prescribed a stronger Protopic plus antibiotics. My impression from what he said is that, with this condition, we are each "pre-programmed" to lose an amount of hair. He cannot predict for anyone how much they will lose, nor how quickly. He cannot even say with any certainty that treatment makes a difference. For some, it seems to, but they may have slowed hairloss anyway.
It sounds quite negative but in a funny way, I feel a bit more accepting of it now. I'm crossing fingers that I'll be one of the lucky ones who only lose an inch or so from the front. The rest is OK really.
Celia, I'm sorry but I didn't pick up your email until after my appt. I went up on Wed night and didn't have Internet connection. But when I lost my hair from the temples this year, I didn't notice any redness either. I think recession from there has now stopped but I'm still putting Protopic there.
Happy Christmas everyone! Let's forget FFA for a few days if we can! Xx

Comment by Debs on December 20, 2012 at 11:15pm

Jules - good luck with Dr Harries today. I will be thinking of you.
Barbara - welcome to the group. XXX

Comment by Jules UK on December 19, 2012 at 11:48am

Welcome Barbara. Hope you find the posts here useful - I've learned more here than from any dr so far. But I'm seeing Dr Harries tomorrow so, although I pretty much know what to expect, it's reassuring to know that I'm "in the system".

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