Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 600
Latest Activity: yesterday

Discussion Forum

Hair Toppers

Started by Leni. Last reply by Lang Bozic May 22. 10 Replies

I am interested in getting a topper but don't know where to go for one. Having one of those weeks when the hair keeps falling and I am not feeling very comfortable. I don't want to spend a lot of money. Thinking of ordering off the internet. Please…Continue

Get Ahead of Hairloss Event plus new information on FFA

Started by Liz. Last reply by Carol Aug 7, 2025. 11 Replies

Hi I don't post on here much so I may well be giving information which you might have been discussing already. Are any of you in the UK going to the Get Ahead of Hairloss event in London at the end of September? It has been organised by Dr Wong who…Continue

Food Allergy Testing question

Started by NorthCarolinaMama. Last reply by lordiron Nov 25, 2024. 10 Replies

Hello!I was wondering if anyone has been tested for food allergies to determine if a particular food is causing inflammation, which in turn could exacerbate FFA. I had the skin test a couple of years ago at an allergy clinic, and it came back…Continue

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14, 2024. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

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Comment by CJ- Christine from Ottawa Canada on November 8, 2012 at 8:51pm

I think its only on the face, BUT who knows!!! The only thing I`m learning is that not that much is certain and lots is uncertain. I`m looking into tattooing!

Comment by PamW San Diego, CA, USA on November 8, 2012 at 5:49pm

I have red spots between my eyebrows - on the bridge of my nose. CJ is it only on the face? I think I have a rash on my arms sometimes.

Comment by PamW San Diego, CA, USA on November 8, 2012 at 5:48pm

Comment by Heidi Short UK on November 8, 2012 at 3:46pm

Funny you should say that CJ, when you look at my forehead under a light it looks as if I have got a rash under my skin. I wandered if it was to do with FFA, I was going to ask my derm next visit. Did you find any thing else interesting about ffa?

Comment by CJ- Christine from Ottawa Canada on November 8, 2012 at 2:01pm

HI All,
I learned at the Skin Matters conference that FFA can cause 'bumpy skin' or bumps on the face. I have noticed that my skin along the jaw line had changed texture over the last year and I assumed it was age related but apparently it is something often seen in FFA. Its kind of crepe- like with bumps that look like very small emerging pimples that don't go on to become pimples... hard to describe really. anyone else have this?

Comment by KarenGinny - Iowa, US on November 8, 2012 at 1:33pm

I've been using Neutrogena T-gel shampoo for scalp irritation for about a year now. I've also tried Nioxin shampoo and conditioner but I use the t-gel more since it is less expensive. It seems to help control the itching and irritation pretty well. - Karen

Comment by Debs on November 8, 2012 at 2:37am

Morning Liz, now you have told me you have good results with Nizoral shampoo I will definately give it a go. Thanks, popping off to Tesco shortly to stock up.. XXX

Comment by Liz on November 7, 2012 at 4:52pm

Hi Debs. I've used Nizoral shampoo before and it's fantastic for scalp iritation. I have used it a number of times of the years and it's always worked better than any prescribed hair treatments I've had :o)

Comment by Debs on November 7, 2012 at 3:23pm

Hello Ladies, I have found some other FFA folk on a webisite in the UK, the alopecia UK forum. I have asked a few of them what treatment they have and if it is working... One lady kindly told me she uses shampoos to help calm down inflammation; NIZORAL shampoo that is about £6, NIOXIN conditioner and sometimes another shampoo called POLYTAR. I have only just got this info so I can't say what they are like but it is a cheap option to try, I know it isn't a cure but if it can help control the inflammation it might be worth having a go.

Comment by Debs on November 7, 2012 at 4:13am

my eyebrows are tattooed on. I had them done last November, so they have lasted a year and the colour is still good. I have a tiny bit of eyebrow hair left but had to always use a pencil to fill them in. It did not hurt. I think it definately is worth doing. For any ladies in the UK there is a clinic in Chertsey, Surrey that provides this service, I did not know about it last year when I had mine done but they do a lot of work with ladies that have alopecia.. If anyone would like their info I have kept the details. XXX

 

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