Frontal Fibrosing Alopecia

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Frontal Fibrosing Alopecia

This is specifically for frontal fibrosing alopecia sufferers. To share information and support each other.

Location: Dubai UAE
Members: 602
Latest Activity: Jul 14

Discussion Forum

CARF Conference 2018 Notes

Started by CurlyK. Last reply by kevinsstelly Jul 14. 32 Replies

CARF 2018 Conference Notes:First of all, I am so glad I went to the CARF Conference! It was worth every dime I spent – a true investment in myself, but hopefully I can bless and encourage others from what I learned.The CARF staff and volunteers are…Continue

Botox and FFA

Started by 2Dachshunds. Last reply by Shawnaynay Jul 8, 2023. 18 Replies

Hi Everyone: I remember there is a women on here who connected Botox to FFA. I was given the article, Frontal Alopecia after Repeated BotulinumToxin Type A Injections for Forehead Wrinkles:An Underestimated Entity?Antonino Di Pietro a Bianca Maria…Continue

Tags: Botox, FFA

Trying a new approach with CBD oil...

Started by Robin. Last reply by anettemandell Apr 20, 2023. 31 Replies

Hello All, I am venturing into new territory. It just dawned on me that a good experiment would be to try a medical grade CBD oil tincture on my hairline and see if it affects the redness. CBD is the nonpsychoactive part of marijuana that is being…Continue

Man with FFA. New member.

Started by Thomas. Last reply by Thomas Nov 23, 2022. 27 Replies

Hello,Thought I’d share my experience, as one of the few men with FFA, in the hope that it will be useful to others. It’s possible that the condition progresses and responds differently in men. I’m 40, live in London and otherwise healthy.I first…Continue

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Comment by PamW San Diego, CA, USA on November 6, 2012 at 8:25pm

Debs - I really like the wig. I agree with Sandy that I am not a fan of the part on the fringe that I have. How does your part look?

Comment by PamW San Diego, CA, USA on November 6, 2012 at 8:25pm

Comment by Heidi Short UK on November 6, 2012 at 1:22pm

Debs you look great! I've just shown all my family your pictures and you have given me such hope that a wig can look so good and natural!X

Comment by Debs on November 6, 2012 at 7:49am

Hello Ladies, this damn webiste, needless to say I didn't intend to post the photo of me closeup and wigless (was trying to just do it as an attachment.. anyway, this is me 11 months after I first noticed 2 small bald patches at my temples. This photo is me in my lace front wig. I have really got fed up with my hair being unstyleable and have decided just this morning to use wigs and headbands etc.. now to cover this head of mine up. I have spent quite a lot of time and money this summer buying wigs and accesssories (wig stands, shammpoo etc) so I am all set. Trying to stay positive. XX

Comment by Debs on November 6, 2012 at 7:43am

Comment by MairiM on November 5, 2012 at 4:22pm

I await with interest where this reply will appear :-) Might be an idea to ditch the whole thing and set up a Yahoo group which will work properly with threads, FAQ etc.? We could copy and paste all the useful information people have found. I don't know if it would be worth contacting the webmaster for this site - it really doesn't work as it should.

Comment by MairiM on October 13, 2012 at 7:01am

I do like the discussions because of the REPLY box - someone coming late to this site can then follow a conversation through on one topic. This page would be fine if there was a way of commenting on a specific post, rather than just adding to the list of comments. There is a problem with the discussion pages, though, in that when you get an email with a discussion comment, it seems to take you to the top of the discussion, instead of to the specific comment you are looking for. Even if we do decide to stick to this page only, I do think we should keep all the Meds comments in a discussion, for the sake of those who are unlucky enough to join us in the future.

Comment by PamW San Diego, CA, USA on October 12, 2012 at 10:46pm

Hi, Heidi. I agree. I am having trouble following posts since we started making use of the Discussion pages. I would rather just follow along with the "Comments" page.

Has anyone heard from Christine? She was having a big conference this week. I can't wait to find out what she heard.

Comment by Heidi Short UK on October 12, 2012 at 11:10am

Hi everyone is it me or is this web site having a few blips! I wrote on the wall 16 hours ago and it hasn't come up, but it has when I click on my own photo. Also it doesn't do all the conversations in order, I go from two days ago to now and then 6hours ago!!

Comment by PamW San Diego, CA, USA on October 12, 2012 at 10:33am

Sandy, if I wear mine I will have to wait for a break like winter vacation otherwise all of the kids will notice and I won't have a minute's peace.
Chris it is my left foot. I actually drove myself to the hospital because I didn't want to wake my husband up - it was 2 in the morning. Right now even with the boot it hurts like crazy. When were you able to put weight on your foot? I can't get around my classroom in a wheelchair. I don't know what to worry about first - going bald or being lame.

 

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