Hello,

Has anyone ever tried cortisone shots during an outbreak?

I've been giving the nasal spray a try on my "forehead" hairline where I have very tiny red dots at the base of the hairs (it has been a very half hearted try though, as I keep forgetting to do it ) :-/  

But- I did try it a couple of times on my forearm/hand when it was super itchy , just spritzed some on and rubbed it in and it definitely made a difference in the itchiness level- so it is worth a shot, at least for the itchiness/irritation and the cost/side effect level is way lower then some of these drugs I would think.

I just ordered some CBD (hemp) oil also, the brand is Ananda Hemp they've got a deal going for 20% off until the 15th so that gave me the incentive to give the oil a try.  

I've been using their CBD salve/ointment on my achy hands and achy neck which also helps immensely with the itching/irritation and very much with the arthritis/middle aged hands pain and now I want to try the oil internally and maybe dab a bit on the hairline and see what happens.  

Halfbakedwho, good to have you on this side of the world!  Enjoy your time in FLA, I hope you can grin and bear it with Mom!  (I have one similar too, sighhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh)

Good to know about the sale with Ananda, that is the brand I have been using the oil and the salve but now just put salve on hairline.

So I have white or silver discs where each hair follicle comes out. Then around that is redish skin patches.  My derm says that is the disease, want to check with yall because I dont have little red bumps.  So now my hair on forehead is falling out faster I think, my cowlick that I used to fight with forever is getting smaller and

smaller.  Sigh, so sad, I dont want all my hair to fall out : (

2 Dachshunds,

I don't blame you for not wanting to lose your hair. I fight every single day to try to keep what I have left.  With bangs and a headband on windy days I'm okay for now but worry so much about what the future holds.  I'm taking a medication to suppress the immune system, put CBD oil on the hairline and have changed my diet as much as possible to an anti-inflammatory one with no gluten and very little dairy or sugar.  Also have changed all of my lotions, hair products, deodorant and make-up to Be Green products with no chemicals.  Just when I think I have done everything to stop this stupid disease, up pops a painful pustule on my front hairline this morning.  I don't have white or silver discs around my hair follicles but I do have little black dots around them and the area is swollen where the disease is active.  Damn!  I just don't know what to do any more.  It's exhausting and occupies my mind constantly.

Have not posted for a long time. Have had this horrid condition for 5 years. Tried everything and paid a fortune to see private consultants. I now have the interlace system and have stopped all medication. Life is not great but I don't have a horrid bald forehead and most days I feel ok. I am having a new system next week as its now 2 Years since I got my new hair from Lucinder Ellary. I'm excited To get my hair done. For me it's the only option.

Claire Julia,

I'm so glad that you posted to let us know that you feel okay most days but life still isn't what it was before.  I wish that Lucinda Ellery had places close to me in Florida because I would definitely try the intralace system.  I found a salon that will do a bonded hairpiece but she said she would need to shave a portion of my head in order to bond the piece.  Then maintenance would be every 6 weeks.  

I am so sick and tired of how bad my hair looks. I'm exhausted just worrying about it all of the time.  I'm so sad because I had such big plans and dreams for my life when I retire in about 4 years.  Now I don't want to do anything, go anywhere and I can find no joy in my life.  I should be looking forward to spending time with my grandkids and taking them to Disney World but right now I can't even begin to think about it.

That's why I appreciate the ladies who let us know how they have gotten on with their lives using helper hair or wigs.  It gives me hope that I will be able to crawl out of this dark pit one day.  

Big hugs and many thanks to all of you brave ladies.

2Dachsunds, you just made me realize that my own cowlick that used to drive me bonkers is gone forever also.  Now that I look back I see that I kept burning my forehead with the curling iron/straightener when doing my bangs, but I couldn't figure out why and it was because my hairline was disappearing but I didn't know it yet.    Anyway, I've tried using the ananda salve on my hairline, but the smell, which I love! bothers my eyes- so that is why I will give the oil a go, plus I want to start taking it internally- too many achy joints for the salve to cover haha!  

ClaireJulia, I am so happy to hear you are pleased with Lucinda Ellery, I hope life is good for you! 

Kandy15,  sending you hugs, I agree- this disease is the most mentally draining thing I've ever dealt with.  It sucks.  

Hi Kandy Minter Claire Julia, illustr8r and everybody

Kandy - please don’t let your hair keep you from your life. I’m 53 as of yesterday, and there’s still so much to do, as I imagine there is for you! Can you imagine a man saying the same thing? Actually if this were a man’s disease it would have already been cured (duh!). I know it’s not the same for us, but some of these men go around looking just frankly scary (don’t take this wrong, but I find this especially true here in the States) and they take up all the space and time and walk around like they own the place. Okay so they do but still. 

Though I hadn’t been thinking about it until I got here - people at home are used to my intense hair- but my mom begs to differ... in her opinion, my hair is looking weird officially now. I was just describing to someone how my big curly hair is only helpful if I pull it forward, but then my mother complains that that looks weird too. Another option - wearing a headband to hide the front, but then big fat scary hair in the back that stands up. 

Am tempted to get the brazilian hair straightening again, and wear a chic headband. The dermatologist hates the brazilian straightening. Am wondering if I am going to need the bonded piece sooner rather than later, and let her shave my head partially (like you say Kandy) or maybe just going with the former.

In all honesty I know I’m just going to be indecisive and maybe just get my hair blown out as the least invasive option, until I go home at least. Then when I get home I’ll obsess in a different way ; ). 

I am just aiming for more or less normal, though actually looking nice would be nice too ; )

this is what I mean...

Gosh @HBW I would kill to have that much hair! I understand how it is that “this” hair is NOT the hair I’ve known my whole life and the adjustment and adaption to salvage our look is an endless chore.

I think your curls and color are wonderful! Have you thought about having sideburns cut that you pull in front of your ears? It’s how I am able to manage a pixie cut. You wouldn’t need to go THAT short though. A curly shag? I think with a consultation with a good hair stylist you might be able to have a workaround to hide your loss for now. 

My baby fine flat  straight hair is envious of those bouncy curls!

yeah well the side burn thing doesn't cut it really, it sort of looks like side locks, like I'm a religious freak. Am thinking of getting it straightened when I get home, and doing a headband for a bit...

Halfbakedwho,

You have beautiful curly hair and I don't think anyone looking at you could detect that you have a hair loss problem.  I know that we will never have our hair from when we were younger and oh so carefree but your hair looks great!

Halfbakedwho,

You look wonderful I think!  As much as I study everybody's hairline that walks past me these days, I would not give your hairline a second glance as I think it looks great!  Your wonderful curly hair gives you a great boost and I think you should just rock the look you have for now!

I agree, we all have this angst, I know you know that your hairline is disappearing, but halfbakedwho, your hair is amazing, I cannot tell it's receding, ..celeb cele your curls

Oops celebrate

Thank you my friends. It’s not easy hair, but it seems that unless you’re my sister (who got the good hair) then complaining about hair is just a sort of female rite of passage, whether you have it on your head or not...

Wow Halfbakedwho, your hair does look fabulous! But, saying that I know what you mean- to everyone else whose head it is not on- it looks fine, but when it is your hair you just know.  Anyway- 

Happy (Belated) Birthday!!!!

Halfbakedwho: I agree with everyone!  Your hair does look fabulous!  Maybe this is a reminder to all of us (me) to let go of my obsession of looking at other people's hairlines and just live.

I know it is easier said than done and I want to enjoy life more instead of worry, worry, worrying about my disappearing hair. 

Happy Valentine's Day everyone:  Big Hugs to you all!!!

Happy Valentines Day!

I was wondering if anyone who has tried acupuncture for this stupid FAA has had any success as far as stopping the progression of it. I have seen posts where it has been tried by some but I can't find any results.  I ask because a very sweet friend of mine went yesterday to have acupuncture to get some relief for her back pain.  She asked the acupuncturist if it would help alopecia and the lady told her that she had other clients that have alopecia and their hair has grown back all curly.  I explained to my friend - again - that I have a scarring alopecia and it might not work for me.  She confessed that she didn't know that there were  different types of alopecia and was excited that she may have found a cure for me.    Anyway, I just wanted to ask that question of the ladies on this site because we are obviously the "experts" with having to deal with this.  I think we know more then even the dermatologists.

Happy Valentine’s Day!

HBW I agree I love your hair! I also completely understand your perspective, as does everyone else on this site, because it’s completely relative to how much hair you had previously and what the future holds.  It’s the complete unknown.  We all fear the worst and hope for the best. NOBODY understands unless they have the condition.  

Kandy15 thanks for your posts you are such a welcome addition to this group. My reading connected to acupuncture and alopecia seems to state it can help re alopecia areata but not LPP/FFA... however, this is my latest ‘hope’ and Ive had 3 sessions to date with a pretty amazing acupuncturist who came highly recommended and whilst he’s not promising anything I am learning so very much from him (he lectures and trains in other countries too!!) I am new(ish) to the concept of eastern medicine and it seems to make so much sense.  I also like the belief that we can self heal too.  Heavens above though, don’t you just feel so exhausted with this whole thing?!?!  We MUST stay positive, calm and stress free as much as we can.........but it’s soooooo hard!

big hugs to you all xx

Hello ladies. A bright spot on a Sunday. I had my eyebrows micro bladed the first time almost two years ago and they had faded to almost nothing. We all know how exhausting it is to deal with our hair issues but dealing with almost no eyebrows was even more discouraging. 

10 days ago I had them microbladed again. The healing process isn't fun BUT I feel like I have my face back again. They're not perfect but I feel like I have a good starting point in the morning which is huge. I would strongly encourage anyone who's lost their eyebrows to consider it!

I've also been using the ananda hemp salve and the scent is strong but I'm finding it gives me some relief from the awful itching I have especially in areas where I've lost hair like the back of my neck. I've been trying the hemp oil on my scalp and it's helping as well. 

I'm working on managing my stress levels. I know that when I'm dealing with more stressful situations the itching is worse.

All of this has come from all of you on this site. Thank you!!!

Yay for you AnnieMay!  It is great reading your happy post :-D

Getting my brows done was one of the best things I've ever done also, they make such a difference- you don't even realize how much until you have them done!  & yes the first 10 days is kind of ugh. but well worth it in the end.  I use Ananda salve also and just got the oil over the weekend, very happy with their stuff!

I have been using a brow box with a brush and sometimes a brow pencil to darken my brows but I am noticing  more and more that the left one is disappearing on the last third.  This if the side of my head where I have lost more hair too.  I guess I've been lucky to have kept my brows for as long as I have but now it is time for me to do something about them before they are totally gone.  I will check into who does microblading in my small town to see if I can find someone. Can someone tell me about how much they pay to have this done?  Are the eyebrows scabbed up afterwards and look bad until they heal?  I have had to have bangs cut now that are long enough to kind of cover the brows.  My 83 year old  mom loves the bangs.  "Honey,  when you get your wig, you should definitely get one with bangs because you look so cute!"  Well, thanks mom but you remember 10 year old me with bangs - I'm still getting used to being 61 with bangs. 

AnnieMay, I am also working hard to control my stress levels.  It is a work in progress to be sure.  It got the better of me yesterday and I had myself a good cry, which I haven't done in a while.  Grief tears are full of toxins so it's good for us to get them out of our system when we need to.  I downloaded an app called CALM last month and have been using it to meditate, which I have never been very good at.  It really does help me to focus for those 10 - 15 minute sessions.

Thinking of you all who are on this site and sending big hugs to each.

Kandy15 I love the way your mom thinks!  She sounds adorable and supportive!  I am planning on some bangs and probably some glasses that will help me hide my brows.  Along with the loss of brows I seem to have some atrophy where the brows were on the sides.  My derm said that that can happen with FFA, so not sure that tattooing brows in will work for me.  There seems to always be "that one more thing" that comes along with the diagnosis of FFA that sneaks in to surprise us.

Kandy15, I did the pencil/powder thing for my brows for what seems like years and was constantly checking on them and god forbid if I was swimming or sweating- oh no where did my brows go!! 

I paid about $300 in 2017 that was for the consultation, the first application & followup touchups.  Sadly, my skin has become so "tough" because of FFA that she was going through blades like crazy trying to micro blade and it all the fine lines ended up blurred together once it healed so she said that's it- next time around she will do a powder fill as  microblading and my skin do not mix. Yet again, thanks FFA.  Which is fine for me- but make sure wherever you go that they are aware of your FFA.  Also the brows fade faster then with "regular skin" Yay for FFA ugh. 

I still use powder on my brows, only because otherwise I have a bit of a shine on my skin, so the powder dulls them - but a bit of powder in the morning is no great hardship!

The healing is, wow not fun!  I scheduled it so I wasn't doing Anything for those first 5ish days as yes, there is scabbing and after the first day or two the color turns very dark- then it is like omg what did I do! But be patient as it will lighten up to where it is supposed to be and then around the 5th day the worst of the scabbing is done (if I remember correctly)  I must've googled for days about microblading and healing so I pretty much knew what to expect, but still it is a bit jarring to look in the mirror the first few days.  No swimming, no sweating, no getting the face wet while healing. But, again- it was so, so, so worth it!  

Definitely find a technician that is experienced and knows what they are doing especially with this FFA, go on several consultations if you have to to find one that you trust. I love my technician as she is passionate about what she does and it is not a sideline or anything. 

Good luck and it will be one of the best things you can do for yourself! 

Minter,  Thanks for the advice on the microblading.  I am so thankful for this site because we are all here to guide and support one another.  I had lunch with my sister yesterday and she told me that her daughter had the microblading done a while ago and that the technician actually came to her house from another state to do it.  She said it was a big surgical event with the tools and the gloves and gowns, etc.  I will be having a conversation with my niece to see how it went for her.  My sister said she thought about having it done but is too scared.  Her brows are really thin but all there.  It's funny how I am always checking out everyone's hair and brows now where ever I go.  I wonder how many women with hair loss problems are checking my hair and brows out too?  

Quick question lovely ladies,  I’m just wondering if anyone has a diagnosis of FFA/LPP and managed not to have any of the other related troublesome issues such as eyebrow loss , facial skin issues or any other autoimmune conditions?  I think I could just about cope... (possibly)...losing my hair if everything else was going to be ok.  Amazing how you begin to bargain.... ?!? 

Also has anyone tried Drunk Elephant products?  I’ve read they are fragrance free etc etc. 

Many thanks x 

Afraid, I have been fortunate enough to have been able to keep my eyebrows for the past 3 years but am just now noticing that the left one is disappearing on the outer third.  I do not have any other autoimmune diseases that I know about. My sister and I were talking just yesterday about that.  She says if you have one then another is sure to follow.  She has Sjogren's disease which has a lot of issues that go along with it and also psoriasis. 

Thanks to the suggestions from the wonderful ladies on this site I have downloaded the EWG app on my phone.  I have looked up a lot of products that are chemical free.  I found an online store called Be Green.  I now am using their face wash, night cream, day cream, lotions and deodorants.  I am very happy with them.  I have not heard of Drunk Elephant products but if you try them, please let us know what you think.

Hi everyone, on my way home and stuck in the Atlanta airport, bad weather today.

I was able to see CurlyK in Sarasota Florida! Thank you so much for driving to see me! We had a lovely lunch. Meet up if you can, kiddos, it’s worth it.

I still have my eyebrows, they’re thinner but they’re there. I don’t have bumps on my face as far as I can tell. I also have no other autoimmune issues. I eat what I want but try to be healthy. I am trying to give up diet soda now though - nasty stuff. 

So I am in for the long inevitable progression of my hair loss I suppose. Right now, so tired. 

Thanks K15 & HBW 

Some great info & advice x 

HBW how brilliant to meet up with CurlyK!  Have a good flight back to France zzzz 

hi afraid, so far my eyebrows are sparse, but I think are responding to olive oil, enough there still to use eye brow powder ( but still sparse), lost hair on arms, and about 3 cm off the front of my hair line..so far quite fortunate by the sounds of it.  About 5 years ago I had bilateral frozen shoulders for about 18 months which is ? Auto immune.

My eyebrows have responded very well to Castor oil. I just put it on every night and rub it in. So far they are coming back to an acceptable level.

@HBW and @CurlyK That’s wonderful that you two were able to meet each other! Yay! 

Regarding eyebrows...I use Latisse for my eyelashes and I swipe the brush across my brows too. I have new hairs coming in but I know I won’t recover them all. I have two large spots in my brows that are obviously scarred and ruined forever. The new hairs that come in at least add to the illusion of brows with the old microblading that needs refreshed...I’m drawing too much now to look normal.

Im trying to stretch my Latisse prescription so I bolster my lashes and eyebrows with Castor oil. It works well.

Hi ladies 

I have not posted for a few years, I have been living with FFA for nearly 8 years now.

 I used medication for just over a year - hydroxychloroquine sulphate and for a couple of months doxycycline antibiotics.  The hydroxychloroquine sulphate did slow the hair loss down but I felt it was creating a “death by a thousand cuts” scenario where it was prolonging the time it takes for the FFA to burn out.  The doxycycline upset my tummy, so did a few other tetracyclines I tried.  After a year of meds I decided to stop.  I am an otherwise healthy woman and for me the possible side effects of any drug isn’t worth the limited payoff on my hair loss but we must all do what feels right for us.

I wore  a wig to work because my appearance had to be very smart in the corporate world.  In my private life I wear a head band.  

I have my brows defined with semi permanent makeup.  

Having been diagnosed 8 years ago, FFA is now the new normal.  I have lost about 2 inches from my front hairline.  It is continues ...  I don’t think about it obsessively as I did in that first year of diagnosis and just get on with life.  

I was diagnosed with an over active thyroid (Graves disease) in January 2017.  I took anti thyroid meds for 4 months and have been OK since then.  This is an autoimmune condition.  

Anyone recently diagnosed I would say to “hit the ground running” sort your appearance out ASAP, if your eyebrows/lashes are thinning try latisse or get semi permanent makeup.  If you struggle to style yourself change up your hairstyle with a fringe (bangs for you ladies in the USA), synthetic wigs that retail around £100 - £300 look very natural, bizarrely often more natural than human hair wigs because they are not as dense and they hold their style after washing.  Brands -Amore, Ellen Wille, Raquel Welsh, Natural Image, Jon Renau all do super synthetic wigs in a variety of colours and hair textures.

Headbands and buffs are great ways to style yourself for the gym, yoga and for smart casual wear. 

For any ladies in the UK that usually go to Belinda Hayle for their semi permanent makeup, unfortunately she is no longer running her wonderful clinic but a couple of years ago one of her trainees did my colour boost, Rebecca was extremely gentle and did an excellent job.  I will use Rebecca’s clinic in future.  Her details are Rebecca Chase in Camberley, Surrey. 

A couple of years ago I gave a DNA sample to Guy’s hospital in London where they are doing research into FFA, which is referred to as an epidemic because it is now so common.  Like most disease there is a genetic element to this.  There is something in our DNA that makes us susceptible to this condition but the trigger is unknown.  Since Kossard first diagnosed FFA in 1994 (FFA is also knows as Kossard’s syndrome) it makes sense the trigger is something in our modern world (man made).  

Anyone struggling psychologically with their diagnosis I found it helpful to attend a few meetings in the UK run by Alopecia UK.  I am sure there are similar support groups in other countries.  I also get together a couple of times a year, through the generous hospitality of another lady with FFA, with several ladies in the UK to catch up.

Sending a big hug out to you all... 

Wow Deb's, fantastic input, I live in Australia..so a lot of the resources don't apply, really appreciate your positive attitude, yes just got to realise we are not alone and we r alive to tell our stories, go girl you are inspiring

Thanks sooooo much Debs for your comment.  It does feel in the beginning as if ‘normal’ life will end and the only way forward is to run away or become a recluse...quite a difficult proposition when I need to work and I’m a sociable being! 

Perspectives on ‘how to’ keep going from others with the same condition(s) is so supportive.  Thank you. 

Debs,

it is always good to hear from ladies who have been going through this for a long time.  I have been diagnosed just over a year and I take plaquenil.   My hairline is itchy and scaly and I have some new hair growth that is a curlier texture than the rest of my hair.  I have hope that the plaquenil is fighting back.   Is this how your hairline recess or do you think it could be new growth?  Also I am using CBD oil on the hairline.  It may just be the grape seed oil base, but it is soothing.

i found a really good eye brow product by Anstasia Beverly Hills, Inc. it is a pomade you apply with a brush.   I find it easy to use and it is waterproof so it stays on very well and it comes in different colors.  I use the blonde - it has plenty of pigment, really looks light brown.  

I know some of you use Ananda Hemp oil - just saw they are having a 15% off sale on everything until March 1!  :-)

 I'd post the link but not able to do it ;-( 

Hi ladies! I am going through another round of itching all along my scalp line, down the sides of my face, and now down my neck. I have never used anything prescribed for that kind of itching before. What do you find works best for this?

Curly K, Zyrtec helps me and Clobatesol foam. 

@CurlyK Clobetasol really helped calm the itchiness. I also use Cortizone 10 for eczema along my hairline when the white shiny skin feels tight and itchy. I use CeraVe body lotion all over because it seems if my head is itchy the rest will follow. :(

Hi all, I hardly ever comment , but follow a lot of your posts and I am very thankful to know I am not alone with this birden of FFS and all the frustrating daily issues that seem to come with it...

I just wanted to say that I take Piriton Tablets for the itching and it really helps every time. I have tried other antihistamines, hut they all did not work or got me feeling really stressed... I spoke to my than Dermatologist, and he said its fine to take this when needed.

Further I am using the eyebrow marker from “KIKO Milan” which seems to last all day, and is super easy to use. I always buy 2, as the worry to not find one or one having dried up is so stressful... 

For the bold patch/very receeded hairline, I currently use a headband every day - people think I have some crazy obsession with this look I guess, haha!  Luckily I have a fair bit curly hair at the back, so it looks like I do it for fashion to people who “don’t know”. ;) 

I order them via Zizway (google it). The Top Knot ones and just have the top knot at then back. they are soft and stretchy and I can bare them. (I hate and have always hated hats and beanies and stuff like that) 

Anyways, I am sending you all strength & light with this horrid desease. 

P.S.: 

hahaha, sorry - spellcheck and typing on the phone..!?

I meant ‘burden’ and ‘FFA’ - even though FFS would suit this illness quite accurately actually...!

@CurlyK Also, maybe boost your B-12 too. Not crazy amount but 500-1000mg a day. Low B12 causes itchiness and hair loss. It was part of the puzzle for me to get this mess calmed down. I have to take 500mg a day because I have a deficiency.

Great input everyone! Thank you. I’ll give these a go. 

Curly K, like yourself I haven't used any medication  (other than in first year a corticosteroid on scalp) which did absolutely nothing for me. After extensive reading/research I just don't believe there's any real efficacy or cosistency n their effectiveness, & the side effects concern me (short & long). Having said that, if some feel from using them, that they've found relief from symptons of this rotten condition without side effects, then that's a good thing. My Mum had breast cancer in her mid 40's so am reluctant to try dutasteride &finasteride. Anyway I use products from a company here (Auzzie land) called Moo Goo; shampoo&conditioner (no harsh chemicals, silicon free,sls free)& a scalp cream, made from natural oils, active   ingredients ie coconut & olive oils, plus almond, melaleuca, lavender, rosemary oils etc. Many people who suffer from eczema,  seborrheic dermatitis & mild psoriasis use it as a natural alternative, (it is marketed as "symptomatic relief of dry& inflamed skin around scalp, ears, and along side of nose"), made in Aust, not sure if they sell to o/seas. My husband uses it for seb dermatitis. It's by no means a cure & may not work for all, but I've found the shampoo/ condit is gentle to scalp & hair, & the scalp cream somewhat soothing, altho to a limited extent, so by no means a cure.Thx for other suggestions from the ladies here, I should give them a try. I find the itching & odd scalp/skin feeeelings (anywhere from mild to intense)are one of the most haunting & distressing symptons of this disease. I have also had an incredibly itchy neck rash twice (?maybe 3 times))over the last 6&half plus years living with this. And the last few weeks had a pinkish itchy eyelid & itchiness along eyelids/eyelash line where I barely have any eyelashes left to write home about! Also the non-existent eyebrows area & along sides of my face sometimes feel niggly itchy. Why is that ? with no hair there (no arm leg hair all gone, face eyelashes/brows pretty well zilch); maybe the nerves surrounding the 'on the way out' follicles under the skin are activated on/off during the process ...... I wish it could be explained scientifically, cause it just sometimes feels sooo freaky. I'm one of those people who needs an informed explanation. I have learnt more about this disorder from the ladies at this forum & by doing my OWN research, as my GP ( whom by way is a lovely lady doctor -gr8 support) knows little about ffa/lpp); and the 2 derms i've seen, obviously were pretty ignorant on the subject. If it wasn't for this forum/site I would feel much MORE helpless living with this, than I would have without all of your input,  thankyou all for listening!!  Xx

Jules Australia, after reading your post I went and googled Moo Goo and it is available here in the USA both through their site and on Amazon.  Looks like good stuff so will bookmark it to give it a better read later. Thanks for passing it on!

Hi everyone

back to work and life here. I have come to realize I must have LLP - my eyebrows remain but I am getting other bald spots further back in my scalp. My mom is sending me on the NasalCrom (I think?) and there is a thread on FB on an immunosuppressant for rheumetoid issues (sorry can’t spell) that could maybe be not too nasty...

thank you all once again for just being here, will be back later.  ; )

Hello to all and as always, thank you for the great information on so many things that we encounter with this crappy LPP/FAA.  My hands were super itchy this morning - the first time I have had this problem anywhere besides my hairline.  I rubbed some Calendula cream on them and they felt better right away. 

I'm having (another) really down day today.  It seems that no matter how I style my hair all of the balding areas stick out like glaring headlights.  The sides of my head, my temples and my receding hairline is getting harder to camouflage. 

I have checked into bonded hair for those areas.  My question is for those who have gone the bonded hair route.   Did you only have a hairpiece made and bonded for the front and sides?  Did a portion of your head need to be shaved in order to properly bond it?  What about having the rest of your bio hair colored and cut?  How is that accomplished when you have a portion of bonded hair?  So many questions, I know.  If anyone can shed some light on this process, I would really appreciate it.      

Hi Kandy. In addition to the receding hairline, I thinned out alot on top through the crown. I had a mold made that goes from front hairline to crown. It’s like a cap for your head similar to a wig. Yes, they had to shave some spots where the edge of the cap gets glued to the scalp. As far as cutting and coloring your bio hair, they can keep that trimmed up to match your overall hairstyle and they can color it too. They do this coloring of bio hair when your bonded piece is not on your scalp. Hope this helps!