Jules, yes same again!  I avoid cameras like the plague and also tell myself that I won't die from this disease, but it doesn't help much :-(

I also always had thin hair, but there was a lot of it - now it is just thin.  I have pretty much given up on bangs and do a low part and kind of zig zag it a bit to make it look "normal" and that it is supposed to be that way.  The hair fiber powders help a lot to hide the wider then normal part, but doesn't do much for the high, high, high forehead.  It also doesn't help that that the "bald band" is bright white and shiny.  

Kandy & illustr8r, I am Constantly checking out other women's hair, especially the ones my age or older. Now I am also checking out women who have shaved heads or are bald so I know what to look forward to!

I haven't noticed any atrophy around my brows, yet- but I suppose it happening is only a matter of time as well.  I still have a a little brow hair left, but the microblading has gotten much, much lighter though to be honest I prefer it a lighter color so that is ok!  But I will probably have to get it re-done within the year and not microbladed as it doesn't "stay" and is a waste of time money and gives a lot of pain because my skin has thickened up so much she really had to work hard and it hurt, a lot, I just will do the powdered permanent brows, that is what my tech refers to it as.  Irregardless it is still one of the best things I have done for myself, I love my brows! 

Atrophy, eh? Grrrreat! Another term I didn’t know that now I have but don’t want. Thanks FFA! Arg!!!!

Hi All - thinking of you all.  I seem to be in middle of flare....not that the hair loss ever really stops.  Terrified about what lies ahead...but trying to seize the day.  It’s a nightmare. Are there any positive stories?? I’m beginning to wonder....

Hi all of you,

Back on this forum and after so many years with this dreadful disease it is obvious that only women who suffer from this condition really understand you. We lose at lot in life, even if this disease does´nt kill you, But to feel joy? I havn´t for the past 3 years. Like you I hate mirrors, I hate photos I hate dinnerparties. I Always have exuses not to go. I hate to hear "well just get a wig or a hairpiece", even women with FFA say "get on with yourl life, get a wig or shave your head". Shaving it´s out of the question I think I have tried 10 different hairpieces, all of them are quite horrible. The cheapest one are around 500$ - synthetic fibres. A custom made hairpiece with human hair will cost around 2000$ per year.

Whats really make me depressed is when my hairdresser says that my hair is much better, thicker" and so on. It is not! I have a many bald spots on the crown, absolutley no hair on my temples and a very, very high forehead. Even my dermatologist tries to convince me that some spots have  disappeared after three months on Metothrexate. I feel deceived! Methotrexate is a very potent immune suppressive drug with many sideeffects.

Trying to live day by day - but the future really make me horrified. I believe that maybe - if friends and family could be a bit more understanding, every day life would be a little better.

Louise-

This is an awful, soul crushing disease and I don't mean to be flippant at all by saying I will shave what is left of my hair when the time comes- It is just that I have a relative with FFA and the only hair left is really only on the back of her head- so seeing her hair and knowing what is in store for me, I have decided I would shave what is left of my hair when the time comes. I don't know what other option there would be at that point, meaning that is what I feel will work for me- whether that means just being bald all the time or wearing wigs or whatever.  All I know is I don't want to end up looking like her.

I feel sometimes like I am living on a timer of some sort, that I have to do everything I can while I still have "hair" before I end up not wanting to do what I want to do- pretty much only out of embarrassment, because obviously physically I will still be healthy and able to do stuff- but mentally I won't.  I've also realized that I have already limited my life, just socially now it is really only family and a couple craft groups, church and such & also going through a divorce so will also probably never date or be involved with anyone ever again, so dying alone with no hair is also something to look forward to! 

Which now when I see it all written out it all does sound pretty silly, but that is what this disease does- it makes you want to hide away because of shame and feeling embarrassed & to someone with a full head of hair, it would sound ridiculous!  Oh I can't do that because I have no hair.  What?! But until someone, like all of us here- is living this life, no one would understand how it feels :-( & even then it feels different to each of us suffering from FFA. 

I guess we each have to do what what we think is the best option for ourselves and being able to come here and learn and share and vent and yell and scream and ramble even like my post here- but every bit of it helps every single day to get through this, I know it helps me.

Hi everyone,

I can relate 100% to the feelings of sadness and despair that has been written here.  This morning I am angry!  I vented to myself in the car all the way to work.  I simply DO NOT understand how I ended up with this disease.  I've never smoked, never have done illegal drugs, hardly ever consumed alcohol, ate right and exercised regularly and here I am, singled out for a lifetime of misery with this disease.  I am so frightened of the future.  All of my dreams for retirement - traveling, spending time with my grandkids, even volunteering at animal shelters have been squashed.  I don't even want to leave my house or have visitors anymore, but I still work so I don't have a choice.  I feel like I'm on a timer too, trying to get things done before I quit my job and become a total recluse. 

It baffles me too as to why, with modern science and cures being discovered for other diseases, that not one doctor/scientist can offer anything to help us.  To truly cure us and give us hope for a future. 

Anyway, this is my rant for the day.  I am so sad and depressed.  I know that all of you ladies are as well.  I pray for all of us every day, for strength, comfort and a cure.  

Louise - 

You are right - this is an AWFUL disease and one that nobody really understands... currently no cure and no defined reason that we get it.  I know that it affects each of us differently and my defining moment was when I had been outside working in the backyard on a hot day,.  My curly hair was out to my shoulders and the top of my head was flat with sweat filled hair and my forehead looked like it was all the way to the middle of the crown of my head....  It was that moment that I decided this wasn’t going to define me and I could do something about it!  Yes, bonded hair is expensive - in the USA about $2200, but can I tell you that it’s the best money I’ve spent in years... it gave me my self esteem back.  I get nothing but compliments on my hair and how good it looks.  Most of my friends just looked at me and asked what was different.  I told them that I cut my hair, got a new color and lost weight..... and as time has passed I have told some that it’s hairpiece. It has given me back my self esteem.  There are also places where you can buy a baseball hat that has hair attached, or even hairpieces that are just meant to be worn under a hat of your choice, and those are much less expensive as they are synthetic hair.  There are less expensive solutions than human hair.... check it out and live life!!!!!  We only have one shot and to live it behind closed doors because we are afraid what others think isn’t, to me, living life.  Maybe find a support group for people with Alopecia - they are popping up all over the country.  We all react differently to this, I understand that, and I am not diminishing your feelings, as I was there about a year ago... but no more.... I bit the bullet and bought the hair.... best thing I ever did for myself!  

Bloomingdalekid,

I so appreciate your positive attitude and how bonded hair had such a good impact on your life.  I am trying very hard to get to the acceptance stage of this disease and what is to come.  It's hard as you well know since you have had to experience the fear of not knowing what to expect and how long it would be before you needed to have the bonded hair.  You look beautiful in your picture.  Your attitude gives me hope, although I'm certain that my heart will always be sad.

I have checked into support groups in my town/county in Florida but had no luck in finding one.  That's when I searched on the internet and found this site which has helped me tremendously.

Hugs and deepest gratitude to all.

Ladies, I am with  you.  Throughout the winter this is more tolerable (and with my wig, warmer on my head!), but this spring and forthcoming summer I am again faced with decisions, and discouraged by how much I am dwelling on this.  I too have considered shaving my head, but as I am still working, I find this too drastic and also the color of my scalp compared to my face after tanning and just living life for all these years is just too weird

So I keep purchasing and spending so much money on wigs now.  Pieces don't do it and I don;t think even bonding is appropriate as I have lost at least six inches on front going back, almost everything around my ears and now my nape is skinny and horrific too. 

This is unbelievable and had taken so much out of me.  I have to keep working just to pay for my hair!  And, yes, I think about growing older gracefully often and know I will be an old lady with a lopsided wig.  I am uncomfortable all of the time, at home, at the pool, taking walks, with my grandchildren (sleepovers are not fun anymore!) and more.  I know no one really knows and I get compliments constantly on my "cute" hair.  What a stupid joke!

Thank you all for baring your soul with exactly what it's like living with this horrid disorder.... it sure  is a test to maintaining our sanity, & I relate to every single one of your feelings,; the desparation, frustration, embarrassment (at times), doing the things we enjoy NOW as much as possible (with thoughts that as this progresses those things may become less joyful). Bloomingdalekid, I admire your tenacity to, as you have said many times, "not let this disease beat you or bring you down' .... That's what I TRY to keep telling myself, but oh boy, sometimes that is sooo hard to keep up. Your hair looks great & I love to hear your positive attitude, so please keep posting; I was wondering though have you experienced the odd, wierd sensations, painful discomfort & scalp tenderness, itchiness etc with ffa/lpp or just the loss. As Sad in Chicago said, wearing a wig or hairpiece in very hot humid weather can be extremely uncomfortable, especially when those ghastly sensory scalp symptons 'rare their ugly head' ... I have had to put up with this many times  & i feel that besides the never ending 'outgoing tide' (hair creeping back from forehead &all around the ears), the scalp sensory symptons have been one of the WORST things to live with (for myself anyhow)..... as for me these sensory symptons are not just in front, but all over, epec on top; it's amazing when I have long periods of much more subdued scalp discomfort, just how much better I feel (much more positive, can 'get on with it'), so to speak; as when the pain feelings are niggling, you just don't get much of a break from the reminder that the disease is ever present; can be quite an eerie feeling, not good for your emotional 'peace of mind'. I love gardening & exercising but the combination of hot weather, sweating (and its been observed that FFA causes EXTRA sweating on forehead in area of hair loss, Gr8, another wonderful side effect :-(() &wearing a hat .... it's not conducive to an already itchy head & hairline. We had close to 6 months of such hot humid weather here in Qld Australia this past summer, & although my scalp has been much less troublesome for a while now, just 5 or 10mins of being in the heat,without any extra effort makes your forehead sweat (b4 ffa I was not a person that sweated readily) ....  , Well I just can't imagine what it would be like in a wig or bonded hairpiece. Winter would probably be ok, but Summers here, not so sure! And yes I agree, only those actually going through this can truly empathise, understand just what it's like; to live & cope with on a daily basis.so thankyou again for being such wonderful support, Love to you all, my FFA/LPP sisters, big HUGS ..... wish it could be in person, if any of you ever come to Auzzie land for a hol, & you find the,time please look me up, ... but for now HUGS online will have to do :-)))  xxx

Jules, Australia,

I understand completely. I live in Sydney if you're ever down here. Not as hot as QLD but too hot for me as I'm originally from UK.

One idea I am going to pursue about the excess sweating we have where we have lost hair is perhaps botox.  I have read that people have had botox injections along their hairline and it has helped with the sweating.  I am hoping this is true as I would l love to not look like I have just stepped out of a shower when I get hot and the sweat starts streaming down my face.  Not a great look!

Jules, Australia, 

I have had the scalp tenderness and it hurts for days - then I have a bout of hair loss - mostly off the crown now.  I also get the itchy scalp, but that hasn’t happened much lately.  I live in coastal California, so I don’t have the humidity and heat that you all have in Australia.  I was in Australia in October - wish I had known and perhaps we could have met - I was in Sydney for 10 days and Cairns for 4 days.... I think Cairns is in Queensland, right?  I have my bad days too, don’t let my positivity fool you.  When I take my “helper hair” off at night and see the awful state my real hair is in, I just want to cry.  I used to have thick, full hair - and it started to disappear in 2003.  My hairdresser told me at that time that I was losing my hair and should get it checked out... of course I didn’t think anything about it.  Fast forward to 2007 - and my forehead started getting higher.  My eyebrows are almost totally gone and I have no hair on my arms.  My forehead has receded about 2 inches but I still have my sideburns (sort of).  I don’t have the facial breakout that so many talk about.  I do have the scaly look around hair follicles on my head - so I suspect I am going to go through a shedding phase soon.  I wash my hair in the shower and have a “catcher” in the drain so I can see how much hair I lose every time I was my hair and it is very scary to me - but I tell myself there’s nothing I can do about it so I try not to fret, and put my “helper hair” on when I go out.  I avoid mirrors when I am inside my house.... So, yes, I have anxiety about my appearance too.  I had my bonded hairpiece changed to “clips” so I can clip it on the crown of my head and then I tape the front to my forehead.  With the lace front I can style it about anyway that I want, including pulling it back.  I am going to Palm Springs this weekend where it will be 97F, so it will be a real test to see if the tape continues to hold like they way it will.  Sorry for my ranting.... This group is fantastic and everyone is very open and honest.  We are in this together and we are all at different places in the acceptance phase.  I wish only the best for all of us.  

Botox for sweating? KarenD, I've heard about it for underarms, but never for the head, that would be awesome if it works not too mention maybe doing double duty to smooth out the forehead!  

I'm hoping it works- I can just be standing and doing nothing in even the mildest of heat and I break out sweating on my forehead and scalp, I HATE IT.  Even with HRT therapy it still happens, though not as bucket dripping as before I started, but still happening.  Everyone else around is cool as a cucumber and I'm the one with stringy hair and shiny forehead from sweat. As nice as warm weather is, I dread it because of my sweating.  

I also want to say thank you to everyone for telling it like it is, how horrible this disease is- we are not alone in this ladies, we have each other! 

Wow, so scalp botox is a really a thing and is really something that would work to limit the uncontrollable random head sweating! Apparently it is done mostly by the spin class diva's who don't want to ruin their blowout with sweat :-/ seriously?!

But I will be giving my dermo a call next week to see if this is something they do in their office - thanks KarenD for mentioning it!

Minter, let me know what your Derm says!  I haven't approached mine with my questions yet but have had the idea tucked away for when I lose a bit more hair and need a break from the sweating and the sad look it leaves behind.  I like to know I have some options out there to look forward to when things get me down!

I will definitely share what I learn about this procedure KarenD,

it is so frustrating and embarrassing and annoying to be standing there blotting my wet forehead while everyone else is cool, calm and collected :-( 

Hello ladies, I am hoping you can help me for an upcoming business trip for the once a year pilgrimage to my corporation’s head office. I a  afraid of being in a windy climate in a downtown city where I will need to walk several blocks from the hotel to the all day meetings. I am afraid all my carefully combed hair covering bald spots including bangs will all be wind blown by the time I get to the meeting place. 

When end I was diagnosed with FFA, I switched from general commercial hairspray to hairspray rated as a “1” on the EWG website. Does anyone have a good hairspray that holds. I really appreciate any comments.  My hair is just above my shoulders with bangs and obviously large comb overs.  Please help,

There is a hairspray called Big sexy Hair.  I get mine at Ulta.... it is super hold....nothing is going to move your hair!  Good luck!  

Hi Bloomingdalekid,

I ordered the hairspray you recommended and it arrived today. Just wanted to give you a big “Thank You”. You are a life saver!

It’s a bad day & I need to vent ...I apologise in advance...

I used to love going to the hairdressers... loved a good head massage, reading the trashy magazines, feeling great after a colour, cut & blowdry .... needless to say I haven’t been to the hairdresser in ages. My hair looks awful - grey roots, too blonde highlights & in desperate need of a cut. I’m too embarrassed to go near the place. More hair has fallen out above & behind my ears - my glasses arms now rest on bare skin, my frontal hairline has gone further back & I’m sure I can feel thinned out spots when I run my fingers through my hair. This is all exacerbating already low self esteem & depression. I applaud any of you who have managed to get to the point of acceptance - I’m not sure I ever will. 

Hi Lu,  

I am sorry you feel so down, I have been where you are as well and am sure I will be there again and it is not a fun time at all.  

I just want to say that I was really surprised one day and pleased when my hairdresser said she has taken care of ladies with hair that is much further gone then mine or yours and she is happy to do it because that is why she became a hairdresser is to help people look their best.  

It helped me a lot to hear that and I always remember it now when the last thing I want to do is go get my hair cut or colored because I know I will be sitting there looking like, well we all know what we look like when our FFA hair is wet :-(  the place where I go also has a room off to the back where she says some clients go for privacy when they are getting their hair done.  

I don't know what your place is like, but hopefully they have the same kind attitude my hairdresser does and even though it is awful to sit there and see how bad our really has gotten, it does look so much better afterwards and it is worth it.  Because we are worth it!

I hope you are feeling better soon, it helps a lot to be able to come here and vent, rant, rave, whatever you want to do.  

My glasses are on bare skin too, I hate it, it is very annoying-  another fun quirk of having FFA. :-( yay. 

Hello Minter and Lu,

First I would like to mention that none of us should feel ashamed  of our emotions when it comes to this horrible  condition. Why should we accept this disease or any disease. Sometimes I`m so provoked by this word  acceptance, that I hear from dermatologists, family, friends and even persons with FFA. I myself Will never accept it, I Will fight it whatever it takes when it comes to medication. 

I don’t even know how to cope With it, wigs, hairpieces? Noone who has’nt got FFA can understand the feeling of putting a wig on an itching scalp, often with painful wounds.

Minter, I have a wonderful hairdresser, she is just doing the haircut, I Will wash it before I go there and I never look at myself in the mirror with wet hair, I even coulor my hair with organic haircolour,

Big hugs

Louise

Thankyou Minter & Louise for your words of support. 

I went to the dermatologist today & made an appointment to have my hair done at their in-house salon - if they can’t be understanding & compassionate there no one can. 

Hi Ladies,

I totally relate to the feelings about having hair colored, cut and styled.  I haven't been since the beginning of January and am in desperate need of the works.  I absolutely HATE going anymore because I feel like I'm on display for all of the other clients to look at me and feel sorry for me.   There are no private rooms where I go and the gal that has been doing my hair for 20 years is sympathetic but she has never seen anyone with this type of hair loss.    When I leave my hair does look better but my heart is always so heavy and I am still so depressed.  I'm more self-conscious now because my hair has thinned so much around my ears that my right ear pokes out of my hair.  I'm constantly fluffing up that area so it doesn't look so dumb.

I am sad and I am mad about what this stupid LPP/FFA has done to my life as I know all of you feel the exact same way.  Can't stand to look in the mirror.  Can't stand to dream about my plans for the future because now wigs are in it.  Can't stand to see other people with non-diseased hair and being happy in their lives.  I am SO jealous of them.

So that is my rant for the day.  Thank you all for understanding and for being here for me.  I pray for a cure every day for all of us.

Many wig and hair piece salons also have beauticians who cut and color, because after all, they need to blend or work with your real hair as well as provide your needed purchase.  Even if you are not ready for a purchase, you should establish a relationship so when  you are ready it will not be so overwhelming.  Or, you can call one of them and get a referral for someone who can manage you privately.  I had to leave my beloved hairdresser for the same reason, but she understood.  Then I found one, a referral from my hair piece person, who has a station in an independent salon type place who only handles one client at a time with a closed door.  More hassle, but doable.  

Finally had the time to make some calls and find out if anyone in my area treats increased scalp sweating with botox and turns out, there isn't anyone, not even my own dermatologist!  

But I did find a plastic surgeon with a very good reputation who is willing to consult with me and do the research on this- so it is a start anyway.  

During the winter the excess scalp sweating was bad enough but now that it is getting warmer it is getting worse so I am hoping that this doctor will be able to treat me as I am so tired of being the odd one out blotting my face and dripping sweat when everyone else is cool as a cucumber and can't even blame this on menopause anymore either, it is just yet another weird embarrassing side effect of FFA yay.  

I will keep you all updated as I find out more information :-) 

Me again with more stuff about head sweat! ;-D  

I was reading on social media about this little watch sort of device that you wear on your wrist that can be adjusted to cool you down or warm you up and thought wow that is pretty neat, but it comes with a hefty price tag so gave up on that thought very quickly.  

But it got me thinking and I tried blowing on my inner wrist and that itself cooled me down right away!  To make it work even faster try licking your wrist and blowing (which isn't always an option out in the world haha)  so dab a bit of water or use a wet wipe and blow with same results.  

I get overheated and head sweaty a lot especially while getting ready in the morning and it drives me bonkers because I have no idea why it happens (well I do, it is because of stupid FFA)!!!!!

So now instead of having to sit and fan myself with a magazine or something waiting and waiting to cool down, I do the wrist thing and boom, I am a kool kat again haha!

Anyway, hope this helps someone!  This head/scalp sweating does drive me bonkers and I am certain I am not the only one :-( 

Good job Minter!

It seems that we are forever trying to figure out ideas of how to help ourselves regarding this stupid disease.  From the research that I have done and the ideas that I have read on this site, I am more informed than the dermatologist PA.  She allows me to try different medications and even adjust them according to my reactions to them.  She tells me there is no cure and no stopping it so I think she is agreeable to whatever I suggest to make me feel like I am at least doing something to fight this and keep my hair for awhile.  Exhausting.....   

I have been on the Ketosis diet since last January and was really strict with it.  I took magnesium for muscle cramps that are a side effect of the diet.  Recently I am eating low carb but not strict Keto.  So, I stopped taking the magnesium (200mg daily).  Maybe coincidence, but I had a very itchy outbreak that was driving me crazy.  

Fast forward, I was watching a Nova series on the Dead Sea.  A woman with really bad psoriasis showed great improvement with her skin from being in that area because there is a lot of magnesium in the air.  This made me wonder if the magnesium would help my skin condition.  

I have started taking magnesium supplements again  and my itching has gotten much better.   If you try this, get high absorption magnesium, easier on your digestive system.  

BubbaLu, interesting about magnesium- I'll have to look into that, thanks for sharing!

Kandy15, I know what you mean, my dermo is very similar!   Kind of wonder what is the point of the medical degree if I am the one doing all the research on this disease ;-/  

Thanks everyone!  I took magnesium this am and have been using the Moo Goo shampoo and conditioner for about 1.5 months.  It helped, the itching went way down and the silver discs around the hair follicles abated.  But now the itch is back and those stupid silver discs.  Shoot!  I'm taking CBD capsules, 25mg, they help with the red blotches and pain on the hairline.

Guess I need to go back to not eating bread or pasta or red sauce all of which I ate this week.  Darn. I love tomatoes!  : (

Hi there-

Which MooGoo product have you ladies bought as a facial moisturizer? I got overwhelmed with the choices and got Skin Milk Udder Cream. I love the smell and I can tell it makes my skin smooth but it’s a bit drying or something when it’s time to put foundation on.

Im hoping it heals the red blotches and fades the weird age spots or melasma that I have on my cheeks.

Thanks!

Hi illustr8r, sorry just saw this as I haven't been on here lately since it has been so quiet!  

I got the Ani-Aging Face Cream as a sample with my last order and I really like it and will order a full size.  I didn't use the udder cream on my face, but I did find it to be oddly drying as well - Did you order any of their other products? 

Yes, this site has been quiet so, even though I look every day, I usually don't post.  Facebook has probably taken most posters or maybe we are just resigned to our fate with this stupid FFA.  Not much anyone can say to make us feel better or have hope for a cure.  For me, I'm still really depressed some days, and other days I'm like - whatever!  Gotta handle it the best way I can as the frontal hairline keeps receding and the active disease is still there.

I agree, it has been really quiet on here.  I agree with Kandy 15 that many have possibly gone to the Facebook page, although I don’t see any familiar names on there.  I think those of us that have been dealing with this for a while have come to the awful conclusion that there’s not a lot we can do other than try for acceptance, as the prescribed medications aren’t always helpful and can sometimes be detrimental to our health.  Others, like myself, have found alternative solutions in “helper” hair, and I’m very happy with my choice, albeit rather expensive.  When I take my helper hair off at night and see the reality of the disease, I still have a moment of sadness, but will not let it keep me from living my life.  Hey, a hat works really well too when I just need to run out.  I’ve gone back to work part time for the summer to replace the person that replaced me when I retired - she is on maternity leave.  I wear my helper hair every day and get tons of compliments on it, but it makes it harder for me at night to see what the reality of my hair is....  Oh well, it is what it is and these are the cards I was dealt in this life and am doing my best to learn to deal with it, although very difficult at times.  Hang in there everybody.... it’s great to have a group where we can share our feelings - and sometimes a few triumphs show up too.  

Thanks @Minter! I will give the MooGoo Anti Aging product a try and use the Udder Cream after I shower and/on my hands. :)

Current FFA status is stable I think. I’ve been using Watermans GrowMe Shampoo and I like it. I bought it’s matching conditioner and I’m happy with that too. It gives my hair volume and it feels thicker.

In August, I’m getting my brows refreshed. I’m so tired of drawing them on every day so it’s time to get them microbladed again. Last time I was there I didn’t know I had FFA. I’m curious to see if she knows about it now from from other clients who have it too.

It has been quiet here! I still check in. I hope everyone is doing okay and is having more good days than bad. You know how it is! ((Hugs))

Hi Lovely Ladies, Glad to see some folks out there. I am checking the site regularly also.

well I do have some optimistic news hopefully I am not just wistful thinking. I googled sunscreen and FFA full name. And found an article in the Australian Dermatology. The dermatologist had his FFA patient completely stop using sunscreen. After 18 months, there was some hair regrow this. After 2 years a little more. At 3 years after not using sunscreen, the hair had regrown and you could not see any bald spots.   The article includes photos of each of these time periods. I would send the article but I can’t figure out the technology on how to send. Please google and read it. You will find it interesting.

Best to all!

The article is on researchgate.net by the Australian Journal of Dermatology dated June 2018.

https://www.researchgate.net/publication/325740394_Frontal_fibrosin...

Does anyone need wigs? Maybe I can help you. Our company sells wigs, topper, toupee and extenstions. This is my email address: adatang@hairiwear.com. If you have any needs, please contact me.

Thank you Bloomingdalekid. This is the article!  I have stopped the oxybenzene and avobenzene almost 1 1/2 years ago. I had some regrow this. I still have titanium dioxide in my moisturizer and am considering stopping that as well. Need to stop SPF in sunscreen, moisturizer and liquid foundation. Has anyone else tried this and if so for how long and any results.

Love you guys!

Good luck with the Moo Goo illustr8r!  I really like each one of the products I've tried so far and I am still using their shampoo & conditioner plus the protein shot.  

I am glad everyone seems to be doing well, the warm weather may have gotten in the way of posting online lately, which is a good thing!!!  

I’m still here too! I’ve been focusing on trying to look my best with two weddings this summer both in windy places. It’s hard enough being 62 and grappling with aging skin (which is much worse with FFA) but dealing with a HUGE shiny white forehead is humiliating and beyond exhausting. The second of the two weddings is next week and I should be excited about it but part of me is dreading it. 

Hi Toby & all,

One of the lead doctors for that research, Prof Sinclair, is my dermatologist. He’s told me to cut sunscreen & to make sure my shampoo / conditioner has no titanium dioxide in it. He’s put me on a dutasteride/minoxidil/spironolactone mix which I’ve been taking for the past 6 months. Haven’t noticed any hair regrowth yet but there is a substantially less hair loss..... & they’ll consider doing a hair transplant after 1 year of treatment. 

Good luck all. 

Which shampoos did he recommend?  Also how about make up and moisturizer?

Hi everyone, also a while since I have posted ..living in the land of denial, sounds like some small wins..but not 'the cure', Lu can you tell me if you have had any side effects from the medications?  I'm good to hear re the reduction in hair loss.  Annie may hope your weddings are a huge celebration and lots of fun, hope you have found an amazing outfit to wear.  I am now sticking with a pixie cut, no more bobs, which just highlighted my lack of hair at the front.  Thanks Toby for the current research, will definitely pass info onto my daughter , like me has always worn a moisturizer with SPF in it..harsh Aussie climate.  Good luck to all and thanks for the ongoing discussion

Hi Pam, he didn’t recommend anything in particular but his in-house salon sells the Keratase range. I told him I was using stuff with no parabens or sulfates but he said the big thing to avoid is titanium dioxide (which is what is in sunscreen). Didn’t talk about makeup (cos I don’t wear it often). As for moisturisers, again avoid anything with sunscreen in it or if it has sunscreen just avoid putting it higher than your eyebrows (or where they would be if you have them ... I do not). 

Plf, I haven’t noticed any adverse side effects. He’s also got me taking a mix of viramins & amines. Not sure if it’s the vitamins or the meds but my eyelashes are definitely thicker & longer. 

Lu, lots of good info!

Just double checked my moo goo shampoo/conditioners no titanium dioxide in it- I was 98% certain there wasn't!  I almost always wear a hat when I'm going to be outside for sometime so no sunscreen goes on my forehead anyway so I guess I'm ok there.  Though to be honest if it came down to wearing sunscreen or not, with or without titanium dioxide I will opt to wear it!   

AnnieMay, I hear you with the huge shiny white forehead, I HATE it!  I use Neat Feat 3B Face Saver (amazon) or Bare Minerals Primer (or sometimes both)! along and Rimmel matte face powder and the two of them seem to do the trick to cut down on the shininess - not much I can do about the bright whiteness though except use a little blush/contour powder and hope that it all looks somewhat natural. Good luck at the wedding and I am sure you will look beautiful!   

Plf, I also now have a pixie cut with "baby bangs" swept across the forehead so it looks like my hair is supposed to be this way, I love it- much easier then trying to pull my bangs down or trying to hairspray it all into place, I wish I went with baby bangs years ago!

Wow, thanks for the article Bloomingdalekid and everyone for talking about this.  I had stopped SPF quite awhile ago along with other chemical ingredient filled products.  I understood the safe sunscreen to use was the zinc oxide kind, I guess that is different than titanium oxide?  

I have had less itching and now that it is super hot, and I sweat a lot and seems like itching is becoming bad again.

I'm using the Moo Goo shampoo and conditioner and think those help. Ive tried Beauty Bar face cleanser and lotion but did not think the lotion was moisturizing enough.

The article is very hopeful, I am excited!!!